Glioblastoma cancer claims my wife.

Posted by boilerbob @boilerbob, Oct 14 3:12pm

My wife recently passed away after 17 months fighting Glioblastoma cancer.
I felt helpless not being able to treat and cure the cancer.
After 54 years of marriage, I'm alone and lost without my guiding light.
This is a cancer that must be funded so a cure can be found.

Interested in more discussions like this? Go to the Brain Tumor Support Group.

I’m sorry for your loss.

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@boilerbob
I had several meningiomas over the last 23 years, so imagine my surprise to be diagnosed with a GBM this past March. Ironically, I have been involved in funding brain tumor research since my original diagnosis, chairing our local Walk for 15 years. YES! We must find a cure!

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Bob, I am so sorry. One limitation of this wonderful forum is that we can't reach out and give you a real hug. Such a loss after sharing life together for 54 years. Again, my condolences.

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So very sorry for you and your family. I agree, there needs to be more focus on GBM. My brother is in his 10th month and we pray every day for a breakthrough treatment.

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So sorry for your loss. We are in month 13 and recurrence popped up this month In a different spot than the original resected and treated area. Looking to start radiation and Avastin.

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oh Bob i am truly sorry, my dad has the same cancer, my parents have been married for 52 years, so i understand your pain. thinking of you and sending love

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@boilerbob, researchers are working tirelessly searching for a cure. The breakthroughs of today will hopefully mean successful treatments of tomorrow.

I'm tagging @IndianaScott who knows first hand about losing his life partner to a brain tumor. Bob, after 54 years together I can understand your feeling lost without your guiding light.

How are you doing today? What would you like us to know about your wife? Would you mind sharing something about her that makes you smile?

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@colleenyoung

@boilerbob, researchers are working tirelessly searching for a cure. The breakthroughs of today will hopefully mean successful treatments of tomorrow.

I'm tagging @IndianaScott who knows first hand about losing his life partner to a brain tumor. Bob, after 54 years together I can understand your feeling lost without your guiding light.

How are you doing today? What would you like us to know about your wife? Would you mind sharing something about her that makes you smile?

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Hi, @boilerbob I'm Scott, the fellow @colleenyoung tagged in her post. I'm sorry for your loss and understand your feelings of being adrift right now. My wife and I were married for 41 years, the last 15 while she waged her war with brain cancer.

I know we are all different but there were a couple of things I did after I lost my wife that helped me.

First, I began a "to do" list. Many items were small, (write a letter to an old friend, call someone, paint the wheelchair nicks in our walls, etc.) and some were larger (visit a friend who had provided crucial support for me from far away, reconnect with some old friends I lost touch with during my years as caregiving took over my life, and others). I vowed I would accomplish at least one item a day off my list and then add one to the bottom. This gave me not only a sense of accomplishment but also something to know I had in my future. I still keep my list and continue to do this every single day.

Another was a promise I made to myself to not make any major life's decisions for 18 months. My emotions were just too raw and during that time I really no longer knew myself well enough to know what my future might hold or what I really needed or wanted.

I hope the sun is shining today wherever you are. Let me know if I can answer any questions.

Strength, Courage, & Peace

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@colleenyoung

@boilerbob, researchers are working tirelessly searching for a cure. The breakthroughs of today will hopefully mean successful treatments of tomorrow.

I'm tagging @IndianaScott who knows first hand about losing his life partner to a brain tumor. Bob, after 54 years together I can understand your feeling lost without your guiding light.

How are you doing today? What would you like us to know about your wife? Would you mind sharing something about her that makes you smile?

Jump to this post

My concern is that GBM is not a "glamor" cancer that gets a lot of visibility or coverage in national publications, etc.
I smile thinking about the hugs we shared, with little kisses, and how her words picked me up when I felt down or something went
Check out her obituary at Bismarck Funeral Home under Ellen Jackson.

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@IndianaScott

Hi, @boilerbob I'm Scott, the fellow @colleenyoung tagged in her post. I'm sorry for your loss and understand your feelings of being adrift right now. My wife and I were married for 41 years, the last 15 while she waged her war with brain cancer.

I know we are all different but there were a couple of things I did after I lost my wife that helped me.

First, I began a "to do" list. Many items were small, (write a letter to an old friend, call someone, paint the wheelchair nicks in our walls, etc.) and some were larger (visit a friend who had provided crucial support for me from far away, reconnect with some old friends I lost touch with during my years as caregiving took over my life, and others). I vowed I would accomplish at least one item a day off my list and then add one to the bottom. This gave me not only a sense of accomplishment but also something to know I had in my future. I still keep my list and continue to do this every single day.

Another was a promise I made to myself to not make any major life's decisions for 18 months. My emotions were just too raw and during that time I really no longer knew myself well enough to know what my future might hold or what I really needed or wanted.

I hope the sun is shining today wherever you are. Let me know if I can answer any questions.

Strength, Courage, & Peace

Jump to this post

Thank you for the helpful idea of the "to-do" list, which will give me things to do that keep my mind busy.
I have made one decision without waiting, our son and I promised Ellen that we would live close to each other and support each other with our anxiety disorders. I'm selling the house in Bismarck ND to move into an independent living facility 5 blocks from where our son lives in Seattle WA. Our son also lives by himself.
The sun has been shining in Bismarck and I've opened the shades to let it all come into the house and my life.
Thanks again for you support.

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