Gilbert's syndrome symptoms

Posted by noendinsight @noendinsight, Jun 16 10:35pm

Hi,
I'm 47yo male. Recently I had some blood work done and from what it looks like I may have Gilbert's syndrome. A lot of official information I've found online says jaundice is the only symptom. I've also read lots of stories of people who have all kinds of symptoms. Now I have anxiety and panic disorder and I have a lot of weird symptoms. What I'm trying to ask is what to people who have Gilbert's experience. If unconjugated bilirubin is toxic then there should be something other than jaundice. I'm just trying to get some answers. TIA

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Welcome @noendinsight, I am not familiar with Gilbert's Syndrome but did find a few resources that might be helpful while you wait for other members with experience to respond.

-- American Liver Foundation - How To Manage Gilbert Syndrome:
https://liverfoundation.org/liver-diseases/rare-disease/gilbert-syndrome/
-- Patient education: Gilbert syndrome (Beyond the Basics):
https://www.uptodate.com/contents/gilbert-syndrome-beyond-the-basics

@whineboy, @jlv123456 and @asugent have mentioned Gilbert's Syndrome in other discussions and may have some thoughts or experience to share with you. Have you thought about seeking help at a teaching hospital or major health facility?

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My MD diagnosed me with Gilbert's syndrome recently. Does anyone get any symptoms other than jaundice?

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Hello @noendinsight

In addition to @johnbishop's great information, here is a list of comments where members have mentioned Gilbert's Syndrome here on Connect: https://connect.mayoclinic.org/search/?search=Gilbert%27s+syndrome

As you read through these posts, you will undoubtedly find others with many of the same concerns that you have. You can post questions in any of these discussions by clicking on "Reply."

Will you post an update?

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@johnbishop

Welcome @noendinsight, I am not familiar with Gilbert's Syndrome but did find a few resources that might be helpful while you wait for other members with experience to respond.

-- American Liver Foundation - How To Manage Gilbert Syndrome:
https://liverfoundation.org/liver-diseases/rare-disease/gilbert-syndrome/
-- Patient education: Gilbert syndrome (Beyond the Basics):
https://www.uptodate.com/contents/gilbert-syndrome-beyond-the-basics

@whineboy, @jlv123456 and @asugent have mentioned Gilbert's Syndrome in other discussions and may have some thoughts or experience to share with you. Have you thought about seeking help at a teaching hospital or major health facility?

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Thanks for the information. No I haven't looked in to teaching hospitals .

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@noendinsight

Thanks for the information. No I haven't looked in to teaching hospitals .

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If you are located in the USA, here's a site that shows the list of teaching hospitals - https://healthguideusa.org/teaching_hospitals.htm.

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@johnbishop

If you are located in the USA, here's a site that shows the list of teaching hospitals - https://healthguideusa.org/teaching_hospitals.htm.

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Awesome, thanks

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