1. < Digestive Health

GI Disorder and Internal Shaking

Posted by gigiraj @gigiraj, Feb 15, 2019

Hi all. I'm a 21 year old South Asian female and I have been having GI issues for about five years--mainly along the lines of constipation. I do have bowel movements every day but it takes a long time & I am rarely fully cleared out. These GI issues are always accompanied by other health issues (gas, pressure in head, etc). Recently, some scary new conditions have manifested: In the past few weeks, there have been times where my heart starts beating wildly and very fast. Sometimes, when I'm tired and constipated, my entire body feels like its vibrating internally; the shakes aren't visible but it feels like all my muscles are quivering. At this point, I feel a constant shaking/quivering within my body, especially in my heart cavity.

I have had TWO EKG's and both came back normal. All lab tests for diabetes, hypertension, cholesterol, etc came back within normal limits. I am very concerned about this internal shaking. My dad says he found something about how GI disorders can impact muscoskeletal system and since the heart is a muscle, it's contracting and being affected. But I wanted to know if anyone here can help!!!!!!! If anyone knows anything at all please please please let me know!!!!!

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gabbystellato8 | @gabbystellato8 | Dec 13, 2022
In reply to @gigiraj "@hopeful33250 and @kanaazpereira thank you SO much for your consideration and resources! I really appreciate it...." + (show)
@gigiraj

@hopeful33250 and @kanaazpereira thank you SO much for your consideration and resources! I really appreciate it. It has confirmed for me that this is definitely originating along my gut-brain axis. I am looking into VZV as was mentioned in the article. POTS does not really fit but I am looking into it as well.

I haven't had headaches so much as a building pressure in my head that goes away when I passed built-up gas. I looked at @ calical's post about their seizures and luckily, what I am experiencing is nowhere near that severe. @ tigertoo's suggestion on Transverse Myelitis is a possibility (according to symptoms on John's Hopkins' website): I have bowel issues, my legs/arms can sometimes feel heavy/odd, and sometimes I have pain [more like soreness] in my lower back/hips when I've eaten but am constipated. I am also looking into Vagus Nerve Dysfunction as that is what fits my symptoms closest (pain in ear, occasional pain in vocal cords & hoarse voice = possibly due to acid reflux, unusual heart rate)

However, my internal shaking and increased heart rate has temporarily stopped! There could be a number of reasons why this is:
1) I had been anxious about my heart for two weeks. I went to the Emergency Room and started crying. After crying and having confirmation from the ER that I wasn't having a heart attack, I felt calm and comfortable so my shaking was potentially because of a buildup of stress and lack of sleep.
2) I started taking Miralax and Prevacid on the 14th as my doctor prescribed. Perhaps they are just now kicking in.

While I am glad my heart tremors have stopped, I am afraid that this is just another stop on the way to some disease I need to identify before it's too late. I have had a myriad of symptoms over the years, most of which I believe stemmed from my gut; constipation is the one constant. I have also recently been having a variety of brain fog (trouble visualizing reasoning for instinctive activities, trouble reviewing my thoughts) and have always had very poor blood circulation, pains in breastbone/chest, strange & intense drowsiness after eating, inability to feel hunger except by way of fatigue, and post-constipation pain in the left side of my brain/left eye.

I will still look into getting a heart monitor! And I will most likely post about this in the Brain & Nervous System group as well. If it is not a GI disorder, I'm not sure how to move forward.

Jump to this post

Everything you are saying is exactly what I'm dealing with from the internal shaking to the head pressure even the ears and eye issue and it's my left side too. I haven't had a normal bowel movement in a long time I'm guessing that's linked to something. I was wondering about sibo? I wake up with the back of my neck sore alot too

REPLY
1 reply
lauead626 | @lauead626 | Jan 19, 2023

I have internal vibrations from consuming sugar and caffeine. The least intake of either one sets my nerves off and it's really depressing having this as it feels like someone is having a battle in your body. I am also now feeling rather lightheaded. I refrained from most sugar and all caffeine, and it is better, but am still feeling light headed. A neurologist diagnosed me with internal tremors. The only way they can do this is to confirm you don't have Parkinson's. It's been a horrible 3 years now.

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rere1889 | @rere1889 | Jan 23, 2023

Digestive issues. Elevated enzymes in my pancreas.
Every time I eat, I start vibrating like a Tams unit on the inside. It starts at my troth and works its way down to my stomach, and then I get neuropathy in my feet. It is almost like I have Neuropathy in my stomach. My heart starts pumping in my ears, my chest starts getting tight like a panic attack, then it works its way down to my feet. I've had an endoscopy with ultrasound, A Colonoscopy. I have severe diverticulosis, but they say it is not caused by that. I need help. I can not work or even take a stand-up without getting dizzy.

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1 reply
Moderator
Amanda Roe | @amandajro | Jan 30, 2023
In reply to @rere1889 "Digestive issues. Elevated enzymes in my pancreas. Every time I eat, I start vibrating like a..." + (show)
@rere1889

Digestive issues. Elevated enzymes in my pancreas.
Every time I eat, I start vibrating like a Tams unit on the inside. It starts at my troth and works its way down to my stomach, and then I get neuropathy in my feet. It is almost like I have Neuropathy in my stomach. My heart starts pumping in my ears, my chest starts getting tight like a panic attack, then it works its way down to my feet. I've had an endoscopy with ultrasound, A Colonoscopy. I have severe diverticulosis, but they say it is not caused by that. I need help. I can not work or even take a stand-up without getting dizzy.

Jump to this post

Hello @rere1889. I am sure this is very worrisome and makes for a rather unpleasant eating experience. You will notice that I have moved your post into an existing discussion to better connect you with other members. You can find your post here:
- GI Disorder and Internal Shaking: https://connect.mayoclinic.org/discussion/gi-disorder-and-internal-shaking/

Because you mentioned elevated enzymes in your pancreas, I thought I'd share some information you may find helpful.

- Pancreatitis: https://www.mayoclinic.org/diseases-conditions/pancreatitis/symptoms-causes/syc-20360227

Do any of the causes align with you?

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seeker587 | @vidya587 | Feb 2, 2023

Hello, I am suffering from gastritis from a long time. Two years back GERD started bothering me as well. Used Pantoprazole and that seemed to help me a lot. My sleep patterns have changed because of GERD. A week ago, while sleeping, I am feeling internal tremors in the back of my spine (only internal). But not when I am awakened. Are these related? Not sure what is causing them. Could that be stress / anxiety, GI Tract issues, pinched nerve or something else? This is kind of driving me crazy.

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1 reply
Moderator
Colleen Young, Connect Director | @colleenyoung | Feb 2, 2023
In reply to @vidya587 "Hello, I am suffering from gastritis from a long time. Two years back GERD started bothering..." + (show)
@vidya587

Hello, I am suffering from gastritis from a long time. Two years back GERD started bothering me as well. Used Pantoprazole and that seemed to help me a lot. My sleep patterns have changed because of GERD. A week ago, while sleeping, I am feeling internal tremors in the back of my spine (only internal). But not when I am awakened. Are these related? Not sure what is causing them. Could that be stress / anxiety, GI Tract issues, pinched nerve or something else? This is kind of driving me crazy.

Jump to this post

Welcome @vidya587. I'm sorry to hear that your sleep patterns have changed since the addition of GERD to your GI issues of gastritis. I moved your question to this existing discussion:
- GI Disorder and Internal Shaking: https://connect.mayoclinic.org/discussion/gi-disorder-and-internal-shaking/

I did this so you can read previous posts and connect with others like @gigiraj @bl3ss3d @rjk @brayimee @oakbourne @gabbystellato8 @lauead626 @emm79 who have dealt with similar symptoms.

Have you seen a neurologist?

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1 reply
seeker587 | @vidya587 | Feb 3, 2023
In reply to @colleenyoung "Welcome @vidya587. I'm sorry to hear that your sleep patterns have changed since the addition of..." + (show)
@colleenyoung

Welcome @vidya587. I'm sorry to hear that your sleep patterns have changed since the addition of GERD to your GI issues of gastritis. I moved your question to this existing discussion:
- GI Disorder and Internal Shaking: https://connect.mayoclinic.org/discussion/gi-disorder-and-internal-shaking/

I did this so you can read previous posts and connect with others like @gigiraj @bl3ss3d @rjk @brayimee @oakbourne @gabbystellato8 @lauead626 @emm79 who have dealt with similar symptoms.

Have you seen a neurologist?

Jump to this post

Thank you @colleenyoung . I didn’t go to neurologist yet. Been to urgent care and they suggested to wait for a week and consult PCP who will be referring me to a neurologist.

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irr4et | @irr4et | Feb 4, 2023

You may want to get ur PCP or a Rheumatologist to check you for Fibromyalgia. I have that and I have internal vibrations in my whole spine when I get still.
Regarding your heart racing, I have found that anxiety does that (bc Cortisol and Adrenalin are released by the Adrenal glands), but also low blood pressure causes the heart to have to beat faster to get enough oxygen to the body. It’s called POTS. My dr put me on 40mgs of Pregnenolone (a supplement), Florinef to hold up my BP at normal level, and Adrenal Cortex and Adrenal Desiccant, both are by Standard Process. All these supplements plus Lyrica and Medical cannabis for pain control, are keeping me alive. Plus I do a lot of deep breathing exercises you can see demonstrated on YouTube. It’s a good treatment plan. I wish success and relief of these symptoms.

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1 reply
seeker587 | @vidya587 | Feb 5, 2023
In reply to @irr4et "You may want to get ur PCP or a Rheumatologist to check you for Fibromyalgia. I..." + (show)
@irr4et

You may want to get ur PCP or a Rheumatologist to check you for Fibromyalgia. I have that and I have internal vibrations in my whole spine when I get still.
Regarding your heart racing, I have found that anxiety does that (bc Cortisol and Adrenalin are released by the Adrenal glands), but also low blood pressure causes the heart to have to beat faster to get enough oxygen to the body. It’s called POTS. My dr put me on 40mgs of Pregnenolone (a supplement), Florinef to hold up my BP at normal level, and Adrenal Cortex and Adrenal Desiccant, both are by Standard Process. All these supplements plus Lyrica and Medical cannabis for pain control, are keeping me alive. Plus I do a lot of deep breathing exercises you can see demonstrated on YouTube. It’s a good treatment plan. I wish success and relief of these symptoms.

Jump to this post

I looked up Fibromyalgia online, and that looks closer to what I am facing. Thank you for posting this.

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iva93 | @iva93 | Feb 6, 2023

I expirience very simmilar symptoms like vibrations, especially in my chest area, bloating and passing alot of gas, straining...my shaking is very severe, in my whole body and it's very noticeable in these episodes. It always comes with feeling of restlessness and not breating in enough air and extreme thirst. In extreme cases I also have heart rate over 120, palpitations. I've been diagnosed with hypothyroidism seven years ago. Was wearing a heart holter and EKG came out normal. I have trouble falling asleep and been waking up with these attacks almost every night for past year. They occur several times a day and it's having a really negative impact on my mental well being. It helps me even knowing someone has these symptoms. It is hard to get any tests done since I don't know where to start from. If someone has any input, I would appreciate it very much if You would share.

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