GERD issues

Posted by janarose @janarose, Feb 29, 2012

I am 22 years old. I don't smoke or drink. Growing up I can remember having a slight hoarse voice in the morning if I ate to late at nights. But never anything too miserable. It would go away within a hour after drinking water.
March 2011 on a Wednesday. I woke up with a hoarse voice that never went away. After a few weeks I started to get slightly worried so I went to my family doctor. I went 3 times over a course of 5-6 weeks and they had no idea after giving me multiple steroids and antibiotics that did nothing. I also had no pain in the beginning my throat didn't hurt at all. My only symptom was the voice. So they sent me to a throat specialist. (Audiologist) He did a throat endoscopy and told me I have GERD. He prescribed me omeprazole 20mg once a day. I changed my diet. I stopped eating hours before I went to sleep. I have never been a soda drinker, I am not a fan of fatty foods. The fattiest thing I like to eat sometimes is chocolate.. So I gave that up. I don't eat big meals. I have always been a snacker. But I didn't seem to get that much better so back as planned in 6weeks. He told me to start taking it twice a day. my throat started to hurt and become really sore around this point. I would wake up in severe pain, and it would hurt through out the day. I would take 2- 20mg omeprazole and I would also drink baking soda mixed with water whenever I couldn't handle the constant burn anymore.. I wouldn't drink the baking soda/water at the same time as taking the omeprazole. I made sure I did that hours apart from one another.
So about 10-12 weeks later my symptoms got much worse. It wasn't working. Nothing seemed to work.
So I went back to the doctor. They did another endoscopy and my throat is more swollen than the first. It's starting to swell up even higher around where my thyroid is.
I started having chest pains and it has become hard to swallow anything.
My heart rate gets insanely high in random occasions.
I feel a knock/thump whenever I swallow.
My throat is always hurting.
I am nauseous when I eat.
It's painful to eat or drink anything; I have lost almost 30lbs because of it.

So I have had a endoscopy twice now,
I got a barium swallow done and he told me I have acid reflux. probe test done,.,Blood work....How many more test need to be done?
I haven’t heard my voice in a year now. It's to the point where I am becoming depressed and I ignore talking to people. I ignore hanging out with friends, because if I talk to much my throat becomes incredibly sore to the point where I won't be able to sleep. I can't yell or whisper. I have one tone. If I yell then I’m pretty much out for the rest of the day because my throat hurts so badly.
I am thinking about going to the Mayo Clinic. Has anyone else been through this? Do you think they will be able to help? Could it be something else?
Im desperate.

Interested in more discussions like this? Go to the Digestive Health Support Group.

Profile picture for ewalkercece @ewalkercece

I have GERD diagnosed by the ER
Since the 7th of December 2020.
1 month now that I know of.

However my swallowing issues started in August of 2020. With an inability to swallow completely or strongly rather. ( * That was around the same time I was perscribed Ativan for sleeping. )

Now January 2021 my swallowing has gotten worse. Now it also has clicking and popping sensations. My throat feels like it has a huge lump inside.

I also have a burning dry mouth & tounge.
Burning dry sinus.
Burning dry throat.

My sinuses are inflamed and my throat.
Which comes and goes.

I've lost some of my senses of smell but have gained incredible abilities with some smells especially sweet and floral.
I have also gained incredible taste buds. I'm tasting wayyyyyy too much.

It hurts so much when I breathe.
My lungs hurt resting, breathing in or out.

I'm talking omeprazole, sucralfate, and pepsid compete. I am also still talking Ativan .50 ( down from 3mg a day.)

I cannot help but think Ativan is the cause of all my problems... idk

I have been to the ER AND DOCTOR in this small city about 16 times since December 7th.

I really need support and answers badly.
When will this go away? Is this all normal?
Has anyone had GERD this bad and they fully recovered?

*I also have an endoscopy scheduled on the 21st. ( I'm scared. )

*And a pulmonary testing tomorrow.

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So sorry to hear about your loss. Thank you for the information

REPLY
Profile picture for wreath @wreath

When I read all the comments about gerd, I have flash backs to seven years ago when my husband was suffering from acid reflux. After some research, I discovered a new procedure they were doing at the Mayo Clinic in Jacksonville called the Linx system. We went down and he had the procedure done and it fixed his acid reflux/gerd issue perfectly. However, while he was there he was diagnosed with Idopathic Pulmonary Fibrosis. His pulmonary Dr there said that most likely he had aspirated the acid into his lungs which contributed to the fibrosis. So, we began our 7 year journey of ups and downs dealing with pulmonary fibrosis. Sadly, on Jan 2, 2021 our 56 years together ended as he quietly slipped away from me to meet his Lord. I share my story to say, please don't mess around if you have serious acid reflux. And the Linx procedure seems to be a much better option than the Nissan procedure. Also the Mayo Clinic in Jacksonville is an awesome place. Please keep me in your prayers, as I begin a new journey alone.

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@wreath It is good of you to share that information with us. I'm so sorry for the loss of your husband. I will pray for you on your new journey and hope you find much love and kindness along the way. Kate

REPLY
Profile picture for wreath @wreath

When I read all the comments about gerd, I have flash backs to seven years ago when my husband was suffering from acid reflux. After some research, I discovered a new procedure they were doing at the Mayo Clinic in Jacksonville called the Linx system. We went down and he had the procedure done and it fixed his acid reflux/gerd issue perfectly. However, while he was there he was diagnosed with Idopathic Pulmonary Fibrosis. His pulmonary Dr there said that most likely he had aspirated the acid into his lungs which contributed to the fibrosis. So, we began our 7 year journey of ups and downs dealing with pulmonary fibrosis. Sadly, on Jan 2, 2021 our 56 years together ended as he quietly slipped away from me to meet his Lord. I share my story to say, please don't mess around if you have serious acid reflux. And the Linx procedure seems to be a much better option than the Nissan procedure. Also the Mayo Clinic in Jacksonville is an awesome place. Please keep me in your prayers, as I begin a new journey alone.

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@wreath So sorry for your loss. My friend suddenly lost her husband a year ago at only 62 years old. I see how hard it is.

REPLY
Profile picture for ewalkercece @ewalkercece

I have GERD diagnosed by the ER
Since the 7th of December 2020.
1 month now that I know of.

However my swallowing issues started in August of 2020. With an inability to swallow completely or strongly rather. ( * That was around the same time I was perscribed Ativan for sleeping. )

Now January 2021 my swallowing has gotten worse. Now it also has clicking and popping sensations. My throat feels like it has a huge lump inside.

I also have a burning dry mouth & tounge.
Burning dry sinus.
Burning dry throat.

My sinuses are inflamed and my throat.
Which comes and goes.

I've lost some of my senses of smell but have gained incredible abilities with some smells especially sweet and floral.
I have also gained incredible taste buds. I'm tasting wayyyyyy too much.

It hurts so much when I breathe.
My lungs hurt resting, breathing in or out.

I'm talking omeprazole, sucralfate, and pepsid compete. I am also still talking Ativan .50 ( down from 3mg a day.)

I cannot help but think Ativan is the cause of all my problems... idk

I have been to the ER AND DOCTOR in this small city about 16 times since December 7th.

I really need support and answers badly.
When will this go away? Is this all normal?
Has anyone had GERD this bad and they fully recovered?

*I also have an endoscopy scheduled on the 21st. ( I'm scared. )

*And a pulmonary testing tomorrow.

Jump to this post

Thinking of you at this time and sending you hugs. baz10

REPLY
Profile picture for wreath @wreath

When I read all the comments about gerd, I have flash backs to seven years ago when my husband was suffering from acid reflux. After some research, I discovered a new procedure they were doing at the Mayo Clinic in Jacksonville called the Linx system. We went down and he had the procedure done and it fixed his acid reflux/gerd issue perfectly. However, while he was there he was diagnosed with Idopathic Pulmonary Fibrosis. His pulmonary Dr there said that most likely he had aspirated the acid into his lungs which contributed to the fibrosis. So, we began our 7 year journey of ups and downs dealing with pulmonary fibrosis. Sadly, on Jan 2, 2021 our 56 years together ended as he quietly slipped away from me to meet his Lord. I share my story to say, please don't mess around if you have serious acid reflux. And the Linx procedure seems to be a much better option than the Nissan procedure. Also the Mayo Clinic in Jacksonville is an awesome place. Please keep me in your prayers, as I begin a new journey alone.

Jump to this post

🙏

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Profile picture for Buffy143 @buffy143

Hi there. Does anyone else out there experience acid reflux to the point where your reflux , when lying down/sleeping, enters into your lungs and/ or your sinuses? If so, have you been treated successfully? I have had GERD since high school. I have tried all the PPIs under the sun and I finally found a PPI that successfully treats the burning sensations and pain experienced from GERD. However, I have noticed that over time, my LES (lower esophageal sphincter), the sphincter muscle that prevents back up of stomach contents into the esophagus, is gone. It doesn't do what it's suppose to do anymore. So I fight gravity everyday and when I lay down at all, I get back up to my throat and when in a deep sleep and lying flat it goes into my lungs and sinuses and inner ear cannal. I sleep propped up with a million pillows but it seems to just be band-aide. So some side effects are: coughing/productive coughing, pneumonias, yellow sputum, post nasal drip, inner ear pain, dizziness from inner ear pain, vertigo, and the most serious, spontaneous pneumomediastinum. Anyone have any inspring stories of treatments, excercises, natural treatments, special doctors they've encountered concerning this? Anything? Thank you so much 🙂

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Hi I was wondering if drinking Rabeprasole 20Mg is the right choice for me? I experience gassy which is due to acid.
I heard some people who drinks rabeprasole will get their stomach big after eating, does that mean the medicine is not right?

Any recommendation for which PPI should I take?

REPLY
Profile picture for purnamaboss @purnamaboss

Hi I was wondering if drinking Rabeprasole 20Mg is the right choice for me? I experience gassy which is due to acid.
I heard some people who drinks rabeprasole will get their stomach big after eating, does that mean the medicine is not right?

Any recommendation for which PPI should I take?

Jump to this post

Hi @purnamaboss and welcome to Mayo Clinic Connect. Although we can't offer specific medical advice like that of your physician, members here on connect can let you know what has worked for them. PPI's or Proton Pump Inhibitors are pretty particular to the individual taking them and how your body reacts. Usually your doctor will start you on something as a trial to see if it helps and then adjust as needed. The medicine that you are talking about is the Over the Counter pill commonly known as Prilosec OTC. Sometimes taking PPI's without a doctor's guidance can cause further gastrointestinal problems. I would recommend seeking physician supervision first, but they do sell it at your local drug store.

Have you been officially diagnosed with GERD?

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Profile picture for purnamaboss @purnamaboss

Hi I was wondering if drinking Rabeprasole 20Mg is the right choice for me? I experience gassy which is due to acid.
I heard some people who drinks rabeprasole will get their stomach big after eating, does that mean the medicine is not right?

Any recommendation for which PPI should I take?

Jump to this post

I remember when I had gas and took OTC medicines.... tums, ect.... then when I finally went to a gastrologist they found a four inch segment of Barrett's Esophagus (a condition caused when acid reflux, GERD, starts destroying the natural lining of your esophagus so it starts replacing it with a lining similar to the lining of your intestine to protect itself against the acid). The treatment then went to RFA, radio frequency ablation, where 3 microns of the lining is burnt off. Then you keep the acid off and the natural lining will regrow. This requires multiple endoscopies and biopsies of your esophagus. I still have a follow-up endoscopies every year.

REPLY
Profile picture for Bill @waterboy

I remember when I had gas and took OTC medicines.... tums, ect.... then when I finally went to a gastrologist they found a four inch segment of Barrett's Esophagus (a condition caused when acid reflux, GERD, starts destroying the natural lining of your esophagus so it starts replacing it with a lining similar to the lining of your intestine to protect itself against the acid). The treatment then went to RFA, radio frequency ablation, where 3 microns of the lining is burnt off. Then you keep the acid off and the natural lining will regrow. This requires multiple endoscopies and biopsies of your esophagus. I still have a follow-up endoscopies every year.

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I have been diagnosed with GERD a number of years ago. I also have intestinal metaplasia, (similar to Barrets but in the stomach lining). I am unresponsive to PPI's and the only option presented to me was a scope every two years to make sure it hasn't spread. I am going for one next week. I suffer with terrible stomach pain which also affects my throat in the form of burning pain. No doctor has been able to help with the pain. It can last for months.

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Profile picture for purnamaboss @purnamaboss

Hi I was wondering if drinking Rabeprasole 20Mg is the right choice for me? I experience gassy which is due to acid.
I heard some people who drinks rabeprasole will get their stomach big after eating, does that mean the medicine is not right?

Any recommendation for which PPI should I take?

Jump to this post

All you can do is a very strict low acid diet for this. No soda and no booze. No fried or fatty foods.

REPLY
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