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Genetic Testing
Greetings,
My grandson Michael, age 17, was diagnosed with pleomorphic liposarcoma 3 weeks ago. After doing some research, I learned that this type of cancer can be inherited and it would be wize to know if the person carriers the gene for this. Not only for the benefit to other family members, but for chosing the best treatment options.
Michael's doctors are not on board with doing the genetic testing.
Any comments are very welcome.
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Hello....I would think genetic testing would be very important for a number of different reasons, especially in choosing treatments. Don't hestitate to ask his doctors why they're against it. If you, or his parents, aren't satisfied with their answer, a second opinion may be beneficial.
Thank you so much for your comment.
My daughter and I have realized that we are in a medical maze and if Michael is to get the care he needs, it will be up to us to ensure that.
I believe that my daughter has asked the doctors her questions, but she feels they dismiss her. Perhaps she isn't asking the right questions in the right way.
We will continue to act in my grandson's best interest, while accepting the fact that we do not have final say on the outcome.
Connecting with others, is and will continue to be, a resource of strength and hope.