Anyone on Gemcitabine with Abraxane? How long? Effective?

Ok, actionable? - that’s a new term for me - I’ll have to look it up!

I've been on it since July 2022 (gemcitabine & Abraxane). I had a four-month break from Jan to July of this year.
Last treatment made it 57 in all! This time my CA 19-9 just got within normal limits after 12 treatments: 29.4 🙂

Does anyone know of any in person meetings , activities or events in the Mayo area today or this week that we could attend?

I am my sisters caregiver. She was also diagnosed February, March. She started the same treatment in May and finished first round in October. It helped shrink her tumor and is very stable. We are now at Mayo for 3 weeks while she is doing radiation. She is very active and doing things that she enjoys.
Without treatment the prediction was 2 months.

My husband was stage 4 metastasis to liver when he started.

He has an ATM, KRAS G12V and a BRACA 2 that may or may not be actionable.
They are considering a KRAS study when tumor starts to grow.

Great news! Doctors are now being able to predict which standard of care recipe will work best . I believe it’s based on mutations. Wouldn’t it be great if they all knew this and implemented this strategy to save the wear and tear on our bodies! So glad GA is stabilizing and and working. I’ve never heard of anyone tolerating it for two years!
I was on it for awhile but they removed the abraxane and shortly after my marker was on the rise and a liver tumor appeared.
All good now

so happy to hear of the long time positive effects of GA for marienewland and gracect! My husband is just starting this journey after nearly a year on various forms of 5FU. Yesterday he felt fine. Today, tired and achy. We'll see what tomorrow brings. Thanks for the hope and help.

That’s wonderful news gracect! That’s the longest time I’ve heard anyone being on GA. I was on 5FU in early 2023, and then when it metastasized when I came off it, I was switched to GAC chemo early this year so going on 11 months now. May I ask which mutations you have? Mutations type can drive the treatment response. Mine are KRASD12, TP53, and ATM. Thank you for your post as it will help others.

I am in the same situation as you are to a tee! 5FU did not shrink my tumor. Cancer did not spread either! Tumor marker continued to rise too. After 6 rounds of 5FU, my oncologist switched me to gemcitabine/abraxane. After several treatments, my CA19-9 has dropped significantly! I hope it means my tumor is shrinking! My very best to you!