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Gastroparesis with severe symptoms!
Does anyone have gastroparesis (low stomach emptying) and what are you doing to manage the problem. I was finally diagnoised with this condition this year after at least 3plus years of unexplained illness. Most of my symtoms were related to pain in the chest; deep back shoulder pain; lightheaded/dizzyness; I always felt like I was having a heart attack. But each time I went to the ER all the heart test came back fine and was told it was just acid reflux. I have been to cardiology; neuralogy; gastrology. I have had heart test; stress test;;thryrod; diabectic test; all kinds of blood test (only showed low vit D) MRI of brain; spinal tap. Finally had stomach emptying test in March - which showed 85% food still in stomach after 3 hours. I have had to switch to a no fat; low fiber diet - pretty much all liquid; soft (babyfood like) foods. If I do experiment and eat something that doesn't move through - then I end up with the deep shoulder pain; lighthed/dizziness;; numbness in the arms/fingers and over all wekness. In order to overcome this feeling - It seems to work by drinking just water /gator aid for at least a day. I just don't know if this all started by a nerve damage issue or if it is reverserble. I have done a lot of internet reading and there doesn't seem to be anything to do except eating habit changes. And no one else seems to associate the pain I have with the stomach - I never seem to have stomach pain - Only fullness; nausea; bloating/gas. I also am not diabetic. Which my understanding is a reason for this condition. If you have this condition - what are your symtoms and how are you managing? Thanks
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I have had all the symptoms you and everyone else is writing about for the last 5 years. It is a struggle each day with no answers. Some days are better than others. All I can say is we all are different and act differently to the food we eat. Still searching for answers here. Good luck.
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3 ReactionsYes. I was diagnosed with gastroparesis a few months ago. Had bloating, horrible nausea, loss of 9 pounds I didn’t intend nor needed to lose, and acid reflux. Took tests noting I too have slow movt of food . My GI specialist
told me to cook my fruits and vegetables. Eat small portions . Eat slowly. Pepcid OTC helps. Felt much better but have a flare up now. Found that drinking hot Turmeric tea and ginger ( comes in a tea bag) is great, soothing, and love it mid day or after a meal. It’s herbal. There are no “ cureall” for this condition. Walking regularly ( try walking after a meal) has been helpful as well.
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4 ReactionsManuka Honey
I am an RN and have been trying to self diagnose and treat my abdominal bloating, nausea and discomfort for months. Eating small, low fiber meals frequently and Zofran as needed. I recently failed a gastric emptying study which indicated gastroparesis. Colonoscopy yesterday was clean. I am still uncomfortable after eating small amounts of food but gaining weight as my activity level has decreased due to fatigue. Iam not diabetic. I have a SIBO test to complete this week but Iam getting so frustrated and feeling like I’m pregnant every day due to distention. I am 61 years old and my kids are grown.
I did have a serious event with Solanine/nightshade poisoning from a Chinese Lantern plant and ended up unconscious and awakened while in a CT scanner after paramedics brought
Me to local ED. Could there be some correlation between this ? I did see a naturopath after the poisoning event and she said the poison could remain in intestines for years to come… I did have a colonic or washing of the colon after the event but what about my small intestinal tract ?
Just working on trying to feel like myself again as I am a busy RN and want to continue working.
Any and all thoughts are appreciated.
I also failed the gastric emptying scan. I am not diabetic. Been dealing with it since 2020.
I’ve tried to nail it down with types of food but doesn’t seem to matter what I eat etc. I don’t bother trying to eat anything until noon.
Sometimes Zofran helps.
Definitely effects your quality of life.
I have no answers.
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1 ReactionWow that’s interesting as I have been craving honey and it actually settles my stomach. Starting to eat it right out of the jar lately hahaha
I had nausea for 5 years. Searched for answers but the doctors had none for me. The answer is simple........see what works for you. Me? I cut out caffeine and instead of taking separate B-6, B-12 and folic acid I take a one a day vitamin. No nausea. Yes, it is hit or miss. Keep trying. What works for you doesn't work for all.
Mike
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1 ReactionI had a Neuclear medicine test about five years ago, it showed I had significant gastro paresis. My gastro consultant died and I was never recalled to see anyone else, so didn't get any advice. I live with daily spewing and feeling bloated. I have a few auto immune conditions so the dizziness, and light-headedness, tiredness pain in chest, back pain etc. that others mention, can also tie in with them. I regulate my diet, not a lot of fibre, red meats aren't good, drink plenty of water, found that white sourdough bread works better for me than any other bread.
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1 ReactionAs of this moment replying to your frustrations.
I am on 3 days fasting. And total cleanse my gut.
I have been diagnosed with EGJOO and Mild Gastroparesis, Hashimoto disease, Neuropathy of feet. I have been on 1 stool softener, Gabapentin- 300 mg - 1 in morning and 2 at night to sleep. I have 5 pieces of black licorice and it helps to empty out. Gas-x 2 after every meal. Small meals are helpful. I had an esophagus dilation and Botox in pylorus valve. Dilation helped but Botox didn’t. Hope you find a good gastroenterologist.