Gastroparesis with severe symptoms!
Does anyone have gastroparesis (low stomach emptying) and what are you doing to manage the problem. I was finally diagnoised with this condition this year after at least 3plus years of unexplained illness. Most of my symtoms were related to pain in the chest; deep back shoulder pain; lightheaded/dizzyness; I always felt like I was having a heart attack. But each time I went to the ER all the heart test came back fine and was told it was just acid reflux. I have been to cardiology; neuralogy; gastrology. I have had heart test; stress test;;thryrod; diabectic test; all kinds of blood test (only showed low vit D) MRI of brain; spinal tap. Finally had stomach emptying test in March - which showed 85% food still in stomach after 3 hours. I have had to switch to a no fat; low fiber diet - pretty much all liquid; soft (babyfood like) foods. If I do experiment and eat something that doesn't move through - then I end up with the deep shoulder pain; lighthed/dizziness;; numbness in the arms/fingers and over all wekness. In order to overcome this feeling - It seems to work by drinking just water /gator aid for at least a day. I just don't know if this all started by a nerve damage issue or if it is reverserble. I have done a lot of internet reading and there doesn't seem to be anything to do except eating habit changes. And no one else seems to associate the pain I have with the stomach - I never seem to have stomach pain - Only fullness; nausea; bloating/gas. I also am not diabetic. Which my understanding is a reason for this condition. If you have this condition - what are your symtoms and how are you managing? Thanks
Interested in more discussions like this? Go to the Digestive Health Support Group.
i share your pain. i truly have given up trying to figure out what causes times of increased nausea. i do take reglan 3 times a day. i try to stick to a very basic diet. sometimes no issues, sometimes i wish i could just throw up. so i treasure the days when i feel ok and am gentle with myself on those other times.
4mg Ondansetron works instantaneously on nausea for me but it caused severe constipation. Took me 20 minutes to have a BM. I only use it when traveling on plane and can't risk vomiting while in my seat. Maybe a lower dose would be better. I am trying oral spray Herb Pharm's Not Now Nausea. I also sniff peppermint oil for nausea. I am not a medical professional and am not saying you will have a similar experience but am just sharing my personal experience. Hope you feel better!
Which meds did you cut back on?
Zofran and ginger candy helps.
Thanks
taking a multivitamin instead of separate b-12, b-5, folic acid, iron.
Stopped regular use of Ondansetron.
oral medications may not work for patients with gastroparesis because of the delay in stomach emptying. other routes of administration (patch, nasal, suppositories) may have better chance
Searching for some info about Gastroparesis, found this site and discussions, and it is informative. My gastroparesis was diagnosed upon visit to ER, and got a follow up for Endoscopy and colonoscopy. My symptoms cascaded from the Covid Virus, then added to the injury is the Covid jabbed, I am taking multiple medications to have a life, then when my stomach holding and stuck in my stomach, I am non-functional human being! turned into Zombie!!! On a liquid diet as of now. thank you all for the informations shared
I was diagnosed with gastroparesis in Nov 2022. I have stomach pain in the center under my breast bone that is always there somedays are better then others. Bloating and nausea come and go depending on what I put in my mouth. I don't know what mine came from but I believe it was either the mental health meds I was on or covid. My symptoms started 3 weeks after I had covid the 2nd time. I am now on no meds except my blood pressure and cholesterol and thyroid medications. I pray for a miracle for us all.