Gastroparesis with severe symptoms!

Posted by paarak @paarak, Jul 17, 2011

Does anyone have gastroparesis (low stomach emptying) and what are you doing to manage the problem. I was finally diagnoised with this condition this year after at least 3plus years of unexplained illness. Most of my symtoms were related to pain in the chest; deep back shoulder pain; lightheaded/dizzyness; I always felt like I was having a heart attack. But each time I went to the ER all the heart test came back fine and was told it was just acid reflux. I have been to cardiology; neuralogy; gastrology. I have had heart test; stress test;;thryrod; diabectic test; all kinds of blood test (only showed low vit D) MRI of brain; spinal tap. Finally had stomach emptying test in March - which showed 85% food still in stomach after 3 hours. I have had to switch to a no fat; low fiber diet - pretty much all liquid; soft (babyfood like) foods. If I do experiment and eat something that doesn't move through - then I end up with the deep shoulder pain; lighthed/dizziness;; numbness in the arms/fingers and over all wekness. In order to overcome this feeling - It seems to work by drinking just water /gator aid for at least a day. I just don't know if this all started by a nerve damage issue or if it is reverserble. I have done a lot of internet reading and there doesn't seem to be anything to do except eating habit changes. And no one else seems to associate the pain I have with the stomach - I never seem to have stomach pain - Only fullness; nausea; bloating/gas. I also am not diabetic. Which my understanding is a reason for this condition. If you have this condition - what are your symtoms and how are you managing? Thanks

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@peggyjean

I met with a nutritionist at Mayo Clinic & I knew more than she did.. Actually I found out more online & focused groups than anything the nutritionist told me… Trial & error is very helpful…. I don’t eat anything fresh….everything is cooked…. I’m lactose intolerant per tests from Mayo…. I eat small frequent meals & walk after eating even when I’m miserable, because that’s when I need it the most…. Even 5 minutes of walking around the house can help….. I take gasx when needed & Zofran helps with bloating also…. I can eat eggs, fish, & ground meats are usually tolerated….. it seems to be the amount that’s the trigger for me…. I keep educating myself & that helps & a loving family that understands because of my eating habits. I eat ice cream or a wanna be for me like cashew ice cream…. But my biggest find for me was the walking….. I could not tolerate any meds except the Zofran that the gastroenterologist offered….God’s Best For You…..

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Mine is better, but some things sneak up on me. Like corn on the cob.

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@lindamks

Mine is better, but some things sneak up on me. Like corn on the cob.

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Remember to think about fiber…. Fiber is not your friend…. Makes the stomach work too hard….

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I have had it for over 20 years. You eat six small meals a day. That's what my
Gastroenterologist told me to do. As far as a nutritionist that sent me to a distance at a hospital. I have had stomach ulcers and nodules for the whole time. I get my stomach scoped at least once a year for stomach cancer. It gets worse as the neuropathy progresses. If you eat three meals a day you will have a lot of problems with Gerd and reflex plus nausea along with vomiting. Don't eat things that take a long time to digest. Don't stuff your plate you will be miserable. I keep an apple to eat about 10 am. Light lunch, dragonfruit about 3 then chicked or fish its not as heavy as red meat. I normally throw up red meat it's way too heavy on my stomach. Don't eat spicy foods not good to reflux. It burns the esophagus. If my stomach starts hurting I normally use a heating pad at its lowest setting.

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