Gastroparesis with severe symptoms!

I had a telehealth visit with the surgeon yesterday. He said I should continue to improve over the next 2 months.
Then he had me make an appointment with a Gastroenterologist to guide me through the adding of new foods. I have that appointment in February.
I am just so happy to not be in pain all the time with cramping. The surgery was well worth it!
I will update as I begin to add more foods.
He said it takes about 3 months to get the full recovery from the pyloric valve opening. He said it hasn’t had time to fully open yet.

thank you for the update, Brenda. I am so pleased you are doing better. No nausea ?? you can eat whenever you want I.e. you can eat at dinner time and then lay down and not feel nauseous? if you recall - right now I stop eating solids at 2 p.m - full 8 hours before I go to sleep. I still don't feel "comfortable" 8 hours later - but I am able to fall asleep laying on my stomach. Semi-reclined, on either side or on my back I get aching and nausea - laying on right side is THE WORST... I wake up during the night and its only after about 2 a.m. that I can lay in any position - so 12 hours post last meal - and its a small soft meal - around 1 cup of food.... I do have liquids and purees (usually stewed apples or pears pureed) later than 2 a.m. - up until about 6 p.m. - but very small amounts .... Anxious to hear if you get back to 'normal" Prior to your procedure - what were you eating??

I am still eating as I was beforehand. Until the 3 months are over and I see the Gastroenterologist, I will stay on soft foods.
I eat canned baby carrots, potatoes and French style green beans (no bean), sweet potatoes, beets, tuna, rainbow trout, any flakey fish grilled;
Nothing fried. I eat a lot of creamy peanut butter and Nutella, canned apples (no sins)
White bread. Cooked chicken - no fried! I am not having pain or nausea.
After I see what happens next, I will post again!
I hope you feel better.
This cleaning out and opening my Pyloric valve has definitely helped. He said it will continue to open more over the next 2 months.

well that diet is not too bad .. i was under the impression that in order to undergo that procedure you have to be pretty much down to only being able to tolerate liquids or something like that! It is a lot more than i can eat right now!! So the only thing that changed pre and post the procedure is no pain and nausea but you are eating the same foods essentially? you can eat, for example, chicken or fish for dinner and then go to sleep a few hours later????? and you could to this PRIOR to the procedure??? do you sleep on a wedge pillow or you can sleep in any position at all??

I don’t sleep on a wedge pillow.
The foods I have listed I have eaten the last 4 years other than the first 3 weeks after surgery when I was on all liquids.
I should be able to add more foods during the next 2 months when the pyloric valve opens more and I am all healed.
The biggest change is that I am not in bed cramping all day as I was almost every day prior to the surgery.

those canned drinks like ensure, albeit kinda pricey. a friend who had a nissen fundo hiatal hernia, she said that, tapioca was her go to, she ate it by the shovel fulls! dunno, but might be worth a try, maybe me to. I can't eat wheat now, supposedly, so I think tapioca is gluten free.

maybe increase the electrolytes, potassium and magnesium, may not be diabetic, but pre-diabetic? the tingling and numbness, lack of circulation, for some reason, pain in the shoulder? old enough to have cold hands? increase exercise...vital.

THANKS for your reply Brenda.... perhaps if you "move around" more the cramping will subside - or maybe you need some potassium - bananas are good for that and i eat those - easy to digest and soft 🙂 honestly - i was under the impression they only did that surgery as a "last resort" if the person was down to not being able to eat AT ALL - but seems like you were eating some foods before - even so they are restricted....

Oh no! This surgery is done routinely here. I am very active.
My den where the TV sits is down 9 steps from the kitchen.
I vacuum it almost every day because I have 3 cats who sleep down here in the winter.
My daughter lives here too and she is sick. I cook and clean the kitchen most all the time since I have relief from so much pain. I see my local doctor every 3 month and have blood work done. I really do take care of myself. I have always taken care of everybody until I got this Gastroparesis! Now that I am recovering from the surgery I will do all again!!

The thought that an operation.... surgery... can reverse a botched Nissen surgery is wishful...but the GI doctors at Mayo MN said, NO... (I have post-operative gastroparesis caused by nerve damage done during the Nissen...).. Once those nerves are damaged... they do not regenerate... by undoing any surgery... I have lived with the Gastroparesis for 7 years.. Every meal is a challenge to eat.. cut things very small .. eat very slow.. learn to put down your fork for minutes between bites.. .. never lay down flat.. Gravity works, use it.. I drink only Pedilyte (an electrolyte)... coffee.. a small glass of orange juice, a small glass of Kefir (a fermented dairy product).. Get that foam wedge to put under your pillows when you sleep... I lost 50 pounds..(down to just under 150) during the local clinic's stumbling around... have gained 25 back ...(I was never "fat") but keeping weight on is a chore you must dedicate your efforts toward... some days I eat ice cream with strawberries twice.. Ken