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Gastroparesis with severe symptoms!
Does anyone have gastroparesis (low stomach emptying) and what are you doing to manage the problem. I was finally diagnoised with this condition this year after at least 3plus years of unexplained illness. Most of my symtoms were related to pain in the chest; deep back shoulder pain; lightheaded/dizzyness; I always felt like I was having a heart attack. But each time I went to the ER all the heart test came back fine and was told it was just acid reflux. I have been to cardiology; neuralogy; gastrology. I have had heart test; stress test;;thryrod; diabectic test; all kinds of blood test (only showed low vit D) MRI of brain; spinal tap. Finally had stomach emptying test in March - which showed 85% food still in stomach after 3 hours. I have had to switch to a no fat; low fiber diet - pretty much all liquid; soft (babyfood like) foods. If I do experiment and eat something that doesn't move through - then I end up with the deep shoulder pain; lighthed/dizziness;; numbness in the arms/fingers and over all wekness. In order to overcome this feeling - It seems to work by drinking just water /gator aid for at least a day. I just don't know if this all started by a nerve damage issue or if it is reverserble. I have done a lot of internet reading and there doesn't seem to be anything to do except eating habit changes. And no one else seems to associate the pain I have with the stomach - I never seem to have stomach pain - Only fullness; nausea; bloating/gas. I also am not diabetic. Which my understanding is a reason for this condition. If you have this condition - what are your symtoms and how are you managing? Thanks
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Do you take this all at once or thru the day? My daughter is taking 40 mg also, but dose is 10 mg 4 times a day. She has gotten it from Canada and also from her doc in US.
I take the Domperidone twice a day, 20 mg each time. I make sure to wait 30 minutes after taking it before eating a meal.
I'm not diabetic. Mine was caused by complications from surgery. Sometimes they just don't know the cause. Take care of yourself.
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1 ReactionSince I haven’t had any surgery for over 50 years, that was pretty much ruled out.
And not being diabetic, we suspect that I may have injured my Vegas nerve in a fall around 5 years ago. I don’t think there is any “ iron clad” definition.
I also need to know if I should be lactose free as part of the Gastroparesis diet.
Prior to my diagnosis of Gastroparesis I was thought to have IBS C. My diet was both sugar free and dairy free.
Sugar no longer bothers me.
I really need to gain about 25-30 pounds.
I'm having the same issues it is worse than anything I have ever dealt with I'm a 20 year diabetic have had health issues my hole life also a 20 year heroin and meth addict with almost 2 years sober now and Ill just say id rather deal with being a drug addict any day of the week than dealing with this. IV been told I'm mentally ill or I'm having panic attacks for the last 6 months been to the ER countless times an had more blood tests and EKGs CT's thyroid tests testosterone tests adrenal tests more tests an bullshit than I thought I could ever handle and it's just not getting any better. I'm just breaking down I have no idea what to do my PC won't do anything anymore because she has done everything she can think of an I'm at my Witt's end they said I was crazy an I want to choke a person when they tell me that buy Its starting to drive me in that direction Iv ever contemplated suicide I just can't get any relief an its just horrible someone please help me!!!!!!
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1 Reaction@benleroy0322 When I say hang in there, it's not just blowing smoke. As a 30-yr diabetic and with 29 yrs clean and sober but with lifelong major clinical depression and very serious new diagnoses, I certainly can relate. I use distraction, music, insulin, diet, counseling, meditation and other strategies to cope, including participating in Mayo support groups. I also try to stay in today. Fortunately, my PCP referred me to specialists who have helped some and therapist has said some of my anxieties and sadness are realistic and appropriate and is helping me come to terms with the realities of my diagnoses and is helping me reach a certain level of acceptance of what I cannot change.
If all this sounds like the Serenity Prayer, it is.
Don't give up yet. You may not be able to see it right now but there IS hope! And please keep us posted! People do care about you.
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1 ReactionGastroparesis is a terrible thing to deal with. I am 4 years into it. I found that had to strictly follow a diet. No raw veggies or fruits for sure. I also went dairy and gluten free. I had severe constipation. I went to physical therapist who taught me massage to help move my food through. Also a mixture to make and take at night. I still had a lot of bad days.
Then I found a surgeon who treats Gastroparesis. He preformed a Pyloroplasty on me on November 1. I am better than I have been in 4 years.
I did lose 32 pounds right away and have only gained back a few pounds. I am trying to eat more because I am far too thin.
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1 ReactionI had a Pyloroplasty surgery done.
My pain is almost non-existent.
I am still eating soft foods and liquids.
Brenda:
when do you plan on "advancing" your diet a little - to see if you can eat more normally? The pyloroplasty is a procedure I have been considering - I am not quite ready for it yet - but if things get any worse I will definitely consider it. I am anxious to hear if you can eat normally after it (or close to normal).