Gastroparesis with severe symptoms!

I have Gastroparesis and doctor told me to use a wedge pillow and take my dexilant at night before bedtime. Been doing this about a month and I now have nausea for about 3 hours or so when I wake up in the morning. Try to quit eating by 8 pm ( a small snack usually) and not fresh fruit with skins. Any ideas to bring the nausea further under control? Seeing a nutritionist in a couple weeks. Thanks.

I have Gastroparesis and doctor told me to use a wedge pillow and take my dexilant at night before bedtime. Been doing this about a month and I now have nausea for about 3 hours or so when I wake up in the morning. Try to quit eating by 8 pm ( a small snack usually) and not fresh fruit with skins. Any ideas to bring the nausea further under control? Seeing a nutritionist in a couple weeks. Thanks.

I have Gastroparesis and doctor told me to use a wedge pillow and take my dexilant at night before bedtime. Been doing this about a month and I now have nausea for about 3 hours or so when I wake up in the morning. Try to quit eating by 8 pm ( a small snack usually) and not fresh fruit with skins. Any ideas to bring the nausea further under control? Seeing a nutritionist in a couple weeks. Thanks.

I was diagnosed with gastropariesis in 2010 after enduring many scans, scopes etc. My MD suggested I purchase domperidome via Canada as it was not acceptable by FDA. He also suggested I’d likely need to purée my meals, not eat after 5pm. I was resigned. Researched domperidome and opted to avoid it.
While having a deep muscle massage for back pain (which seemed to accompany bad episodes of stomach challenge) the massage therapist asked if I was having digestive issues,”because my psoas muscle was in firm spasm”, I affirmed I’d struggled with serious digestive issues but as I’d been told I was not curable, I was resigned.
The therapist assured me she understood as she had previously struggled with It. She told me she planned to work to release my psoas spasm, though it would be very uncomfortable and may take more than one massage.
She was right. It was very uncomfortable. But, after the second massage, I realized my sick stomach wasn’t knawing at me and within days, I realized I wasn’t waking around midnight throwing up with nausea. I could eat! I could eat salad!!
For some years, if I felt my stomach was tightening, I’d schedule psoas massage.
It’s been years since I’ve suffered with inability to digest food.
I do have scoliosis, which contributed, but I have learned ways to stretch my psoas anytime I feel it tightening.
Not all massage therapists are knowledgeable enough to release psoas spam. But, for me, it has been remarkable!!

I was diagnosed with gastropariesis in 2010 after enduring many scans, scopes etc. My MD suggested I purchase domperidome via Canada as it was not acceptable by FDA. He also suggested I’d likely need to purée my meals, not eat after 5pm. I was resigned. Researched domperidome and opted to avoid it.
While having a deep muscle massage for back pain (which seemed to accompany bad episodes of stomach challenge) the massage therapist asked if I was having digestive issues,”because my psoas muscle was in firm spasm”, I affirmed I’d struggled with serious digestive issues but as I’d been told I was not curable, I was resigned.
The therapist assured me she understood as she had previously struggled with It. She told me she planned to work to release my psoas spasm, though it would be very uncomfortable and may take more than one massage.
She was right. It was very uncomfortable. But, after the second massage, I realized my sick stomach wasn’t knawing at me and within days, I realized I wasn’t waking around midnight throwing up with nausea. I could eat! I could eat salad!!
For some years, if I felt my stomach was tightening, I’d schedule psoas massage.
It’s been years since I’ve suffered with inability to digest food.
I do have scoliosis, which contributed, but I have learned ways to stretch my psoas anytime I feel it tightening.
Not all massage therapists are knowledgeable enough to release psoas spam. But, for me, it has been remarkable!!

I was in desperate need of help since my stomach would not do it’s job. I live in Canada where I have been on Domperidone for over 15 years. It is approved by Health Canada. It has been a real life saver for me. I did have some heart tests prior to being prescribed it. They turned out fine so I got the go ahead. Initially I was on a heavy dose and then was able to taper off to a half dose which I am on today.

I have Gastroparesis and doctor told me to use a wedge pillow and take my dexilant at night before bedtime. Been doing this about a month and I now have nausea for about 3 hours or so when I wake up in the morning. Try to quit eating by 8 pm ( a small snack usually) and not fresh fruit with skins. Any ideas to bring the nausea further under control? Seeing a nutritionist in a couple weeks. Thanks.

I have Gastroparesis and am not diabetic. Mine is rare.
Almost everyone who has this is diabetic. Don’t know how I was unlucky enough to have this monster of a condition!!

Hi,

I've had gastroparesis for a number of years, dating back to at least 2012. But I remember symptoms long before then (2012 was, I think my first hospitalization. I gravitate to foods that made me feel better-smoothies, etc.

As for meds, I'm running out of options. There's motegrity, which the insurance doesn't want to cover, or domperidone which none of the providers want to write for (they don't do out of the country). Many of the meds cause extrapyramidal side effects and I had to stop taking them. After a traumatic brain injury, weed began causing seizures, time to stop'!

Due to scar tissue the gastric stimulator isn't really an option either. The botox is an option. My GI here at home is putting in an expedtited referral back to Mayo in Rochester.

Not sure what to think, just trying to keep it positive.

I have Gastroparesis and doctor told me to use a wedge pillow and take my dexilant at night before bedtime. Been doing this about a month and I now have nausea for about 3 hours or so when I wake up in the morning. Try to quit eating by 8 pm ( a small snack usually) and not fresh fruit with skins. Any ideas to bring the nausea further under control? Seeing a nutritionist in a couple weeks. Thanks.