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Gastroparesis with severe symptoms!
Does anyone have gastroparesis (low stomach emptying) and what are you doing to manage the problem. I was finally diagnoised with this condition this year after at least 3plus years of unexplained illness. Most of my symtoms were related to pain in the chest; deep back shoulder pain; lightheaded/dizzyness; I always felt like I was having a heart attack. But each time I went to the ER all the heart test came back fine and was told it was just acid reflux. I have been to cardiology; neuralogy; gastrology. I have had heart test; stress test;;thryrod; diabectic test; all kinds of blood test (only showed low vit D) MRI of brain; spinal tap. Finally had stomach emptying test in March - which showed 85% food still in stomach after 3 hours. I have had to switch to a no fat; low fiber diet - pretty much all liquid; soft (babyfood like) foods. If I do experiment and eat something that doesn't move through - then I end up with the deep shoulder pain; lighthed/dizziness;; numbness in the arms/fingers and over all wekness. In order to overcome this feeling - It seems to work by drinking just water /gator aid for at least a day. I just don't know if this all started by a nerve damage issue or if it is reverserble. I have done a lot of internet reading and there doesn't seem to be anything to do except eating habit changes. And no one else seems to associate the pain I have with the stomach - I never seem to have stomach pain - Only fullness; nausea; bloating/gas. I also am not diabetic. Which my understanding is a reason for this condition. If you have this condition - what are your symtoms and how are you managing? Thanks
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Do muscle relaxers make Gastroparesis pain worse???
Will having endoscopy procedure Pyloriplasty help relieve pain of Gastroparesis?
My gastropanesis was caused by damage to the hairnet nerve system that controls the pushing of food
out of the stomach.. so making the stomach outlet larger wouldn't help me..
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1 ReactionThe emptying test I took did not indicate a problem, but the gastroenterologist said she did not diagnose by test; she treated the symptoms.
My symptoms then (several years ago) and still today (if I eat the wrong food) are nausea and vomiting.
At first I did not want to follow the food plan she gave me (What? I can’t eat salad? I LOVE salad!)
Only after I gave in fully to the food plan did I no longer experience the vomiting. I still occasionally experience nausea, but only briefly.
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2 ReactionsThis diagnosis is a new one for me. Have not been to a dietician yet, but I cannot see myself not eating salads or raw fruits or nuts. What is left?
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1 ReactionI had to learn what I could and couldn't eat over many years. for about 30 years I woke up with nausea and vomiting almost every day. I slept in a recliner because I couldn't lay down without reflux. I have learned what I can tolerate and what time of day I can chance it with some foods. mostly now I don't miss the old "favorites" but occasionally I will still indulge though I know I will pay the price. Sometimes just a mouthful of something to get the taste but then I spit it out without swallowing can end the craving.
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1 ReactionI have Gastroparesis and doctor told me to use a wedge pillow and take my dexilant at night before bedtime. Been doing this about a month and I now have nausea for about 3 hours or so when I wake up in the morning. Try to quit eating by 8 pm ( a small snack usually) and not fresh fruit with skins. Any ideas to bring the nausea further under control? Seeing a nutritionist in a couple weeks. Thanks.
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1 ReactionI just heard something very interesting, that diabetes can trigger gastroparesis. Do you have any symptoms of diabetes?
Do you know what some of the symptoms would be ? thanks again
Seems to me if you are having nausea in the morning you might have slipped down off your wedge pillow or too low on it to prevent esophagus reflux. This happened to me. The other problem I had was that I was continuing to suffer from slow stomach emptying so last night’s food was still in my stomach not digested so that gave me nausea in the morning. I tried raising the head of my bed by putting books under it and that helped a lot, as well as a change in prescriptions. I now take domperidone (the biggest help) as well as Previcid and sucrafat.