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Gastroparesis with severe symptoms!
Does anyone have gastroparesis (low stomach emptying) and what are you doing to manage the problem. I was finally diagnoised with this condition this year after at least 3plus years of unexplained illness. Most of my symtoms were related to pain in the chest; deep back shoulder pain; lightheaded/dizzyness; I always felt like I was having a heart attack. But each time I went to the ER all the heart test came back fine and was told it was just acid reflux. I have been to cardiology; neuralogy; gastrology. I have had heart test; stress test;;thryrod; diabectic test; all kinds of blood test (only showed low vit D) MRI of brain; spinal tap. Finally had stomach emptying test in March - which showed 85% food still in stomach after 3 hours. I have had to switch to a no fat; low fiber diet - pretty much all liquid; soft (babyfood like) foods. If I do experiment and eat something that doesn't move through - then I end up with the deep shoulder pain; lighthed/dizziness;; numbness in the arms/fingers and over all wekness. In order to overcome this feeling - It seems to work by drinking just water /gator aid for at least a day. I just don't know if this all started by a nerve damage issue or if it is reverserble. I have done a lot of internet reading and there doesn't seem to be anything to do except eating habit changes. And no one else seems to associate the pain I have with the stomach - I never seem to have stomach pain - Only fullness; nausea; bloating/gas. I also am not diabetic. Which my understanding is a reason for this condition. If you have this condition - what are your symtoms and how are you managing? Thanks
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Enterra therapy is a device that is implanted under your skin to help with the nausea and vomiting caused by gastroparesis. I have tried most of the medications and alternate therapies, fodmap diet, vitamin and mineral supplements, acupuncture for my gastroparesis, and none of them seem to help. Most made me sicker. Finding a doctor to treat has seemed nearly impossible. I have an appointment set up for Mayo in Jacksonville, but it's not until Oct. I have been dealing with this for over 2 years. You can find out more about Enterra at their website. They are having a webinar of Aug. 5 to get more information.
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3 Reactions@fradashe
My wife is under the care of gastronology at Mayo Jacksonville. We just has an appointment in which he expalin the role of the implant and it has shown to help with and what it has shown to not help with.
Gastrolnology has specific doctors for exams and specific doctors who perform speicalty surgeries.
Good Luck. FYI: Come early if your appointment is in morning to find a parking space. If full you can use the parking garage but you have to pay 5.00 where the outside parking is free.
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2 ReactionsI was diagnosed with gastroparesis about 2.5 years ago and boy does it suck, the nausea and vomiting with the abdominal pain is horrible, I've lost about 50 lbs, the raglan and other nausea meds don't work but ive heard about a stomach stimulator that helps move the digestive trave to help get things moving and empty. It's a surgical implant that they place in your abdomen and helps stimulate the digestive track
I was diagnosed with gastroparesis about 2.5 years ago, since then I've had a few flareups and end up in the hospital anywhere from a few days to a few weeks and ill be on NPO and ive fluids and nutrition. I also have lupus which doesn't help at all. Im currently dealing with a gastroparesis flareup and I go to er and they send me home, it's going on 3 weeks now and I still can't seem to keep food/fluids down so ill go to er again and hopefully they will admit me this time around. But ive read about a stimulator that they surgically implant in your abdomen and it's supposed to stimulate the digestive tract to get things moving to empty the stomach and ive read that it really helps especially with the nausea and vomiting, the stomach pain is horrible with the gastroparesis but this time ive been having severe back pain and im not sure why. Does anyone have any tips on how to deal with this
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1 ReactionMy daughter has the gastric pacemaker. It has helped her tremendously with the nausea and vomiting. However, the other issues are not cleared. She is looking at the option for bariatric surgery as it show promise in resolving the gastroparesis.