Gastroparesis with severe symptoms!

Posted by paarak @paarak, Jul 17, 2011

Does anyone have gastroparesis (low stomach emptying) and what are you doing to manage the problem. I was finally diagnoised with this condition this year after at least 3plus years of unexplained illness. Most of my symtoms were related to pain in the chest; deep back shoulder pain; lightheaded/dizzyness; I always felt like I was having a heart attack. But each time I went to the ER all the heart test came back fine and was told it was just acid reflux. I have been to cardiology; neuralogy; gastrology. I have had heart test; stress test;;thryrod; diabectic test; all kinds of blood test (only showed low vit D) MRI of brain; spinal tap. Finally had stomach emptying test in March - which showed 85% food still in stomach after 3 hours. I have had to switch to a no fat; low fiber diet - pretty much all liquid; soft (babyfood like) foods. If I do experiment and eat something that doesn't move through - then I end up with the deep shoulder pain; lighthed/dizziness;; numbness in the arms/fingers and over all wekness. In order to overcome this feeling - It seems to work by drinking just water /gator aid for at least a day. I just don't know if this all started by a nerve damage issue or if it is reverserble. I have done a lot of internet reading and there doesn't seem to be anything to do except eating habit changes. And no one else seems to associate the pain I have with the stomach - I never seem to have stomach pain - Only fullness; nausea; bloating/gas. I also am not diabetic. Which my understanding is a reason for this condition. If you have this condition - what are your symtoms and how are you managing? Thanks

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Profile picture for mikejjb123 @mikejjb123

So I consulted a nutritionist and made some changes in diet to avoid trigger foods. Also started taking a multivitamin in the morning to cut down on all the meds I had been taking (B6, B12, Folic Acid, Iron, and several others). For 2 weeks no nausea. Felt a lot better. All of a sudden (yes I had caffine) have nausea for the last 4 days. Worse than before lifestyle changes. Ideas? Thoughts?

Thanks and Happy New Year.

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i share your pain. i truly have given up trying to figure out what causes times of increased nausea. i do take reglan 3 times a day. i try to stick to a very basic diet. sometimes no issues, sometimes i wish i could just throw up. so i treasure the days when i feel ok and am gentle with myself on those other times.

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Profile picture for rozy288 @rozy288

Here are some RX’s ( a list from internet ). I feel your pain !

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4mg Ondansetron works instantaneously on nausea for me but it caused severe constipation. Took me 20 minutes to have a BM. I only use it when traveling on plane and can't risk vomiting while in my seat. Maybe a lower dose would be better. I am trying oral spray Herb Pharm's Not Now Nausea. I also sniff peppermint oil for nausea. I am not a medical professional and am not saying you will have a similar experience but am just sharing my personal experience. Hope you feel better!

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Profile picture for mikejjb123 @mikejjb123

So I consulted a nutritionist and made some changes in diet to avoid trigger foods. Also started taking a multivitamin in the morning to cut down on all the meds I had been taking (B6, B12, Folic Acid, Iron, and several others). For 2 weeks no nausea. Felt a lot better. All of a sudden (yes I had caffine) have nausea for the last 4 days. Worse than before lifestyle changes. Ideas? Thoughts?

Thanks and Happy New Year.

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Which meds did you cut back on?

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Profile picture for mikejjb123 @mikejjb123

So I consulted a nutritionist and made some changes in diet to avoid trigger foods. Also started taking a multivitamin in the morning to cut down on all the meds I had been taking (B6, B12, Folic Acid, Iron, and several others). For 2 weeks no nausea. Felt a lot better. All of a sudden (yes I had caffine) have nausea for the last 4 days. Worse than before lifestyle changes. Ideas? Thoughts?

Thanks and Happy New Year.

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Zofran and ginger candy helps.

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Profile picture for kayjay209 @kayjay209

i share your pain. i truly have given up trying to figure out what causes times of increased nausea. i do take reglan 3 times a day. i try to stick to a very basic diet. sometimes no issues, sometimes i wish i could just throw up. so i treasure the days when i feel ok and am gentle with myself on those other times.

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Thanks

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Profile picture for debkl @debkl

Which meds did you cut back on?

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taking a multivitamin instead of separate b-12, b-5, folic acid, iron.

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Profile picture for debkl @debkl

Which meds did you cut back on?

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Stopped regular use of Ondansetron.

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Profile picture for mikejjb123 @mikejjb123

So I consulted a nutritionist and made some changes in diet to avoid trigger foods. Also started taking a multivitamin in the morning to cut down on all the meds I had been taking (B6, B12, Folic Acid, Iron, and several others). For 2 weeks no nausea. Felt a lot better. All of a sudden (yes I had caffine) have nausea for the last 4 days. Worse than before lifestyle changes. Ideas? Thoughts?

Thanks and Happy New Year.

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oral medications may not work for patients with gastroparesis because of the delay in stomach emptying. other routes of administration (patch, nasal, suppositories) may have better chance

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Searching for some info about Gastroparesis, found this site and discussions, and it is informative. My gastroparesis was diagnosed upon visit to ER, and got a follow up for Endoscopy and colonoscopy. My symptoms cascaded from the Covid Virus, then added to the injury is the Covid jabbed, I am taking multiple medications to have a life, then when my stomach holding and stuck in my stomach, I am non-functional human being! turned into Zombie!!! On a liquid diet as of now. thank you all for the informations shared

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Profile picture for vholtzapple @vholtzapple

Searching for some info about Gastroparesis, found this site and discussions, and it is informative. My gastroparesis was diagnosed upon visit to ER, and got a follow up for Endoscopy and colonoscopy. My symptoms cascaded from the Covid Virus, then added to the injury is the Covid jabbed, I am taking multiple medications to have a life, then when my stomach holding and stuck in my stomach, I am non-functional human being! turned into Zombie!!! On a liquid diet as of now. thank you all for the informations shared

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I was diagnosed with gastroparesis in Nov 2022. I have stomach pain in the center under my breast bone that is always there somedays are better then others. Bloating and nausea come and go depending on what I put in my mouth. I don't know what mine came from but I believe it was either the mental health meds I was on or covid. My symptoms started 3 weeks after I had covid the 2nd time. I am now on no meds except my blood pressure and cholesterol and thyroid medications. I pray for a miracle for us all.

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