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Gastroparesis with severe symptoms!
Does anyone have gastroparesis (low stomach emptying) and what are you doing to manage the problem. I was finally diagnoised with this condition this year after at least 3plus years of unexplained illness. Most of my symtoms were related to pain in the chest; deep back shoulder pain; lightheaded/dizzyness; I always felt like I was having a heart attack. But each time I went to the ER all the heart test came back fine and was told it was just acid reflux. I have been to cardiology; neuralogy; gastrology. I have had heart test; stress test;;thryrod; diabectic test; all kinds of blood test (only showed low vit D) MRI of brain; spinal tap. Finally had stomach emptying test in March - which showed 85% food still in stomach after 3 hours. I have had to switch to a no fat; low fiber diet - pretty much all liquid; soft (babyfood like) foods. If I do experiment and eat something that doesn't move through - then I end up with the deep shoulder pain; lighthed/dizziness;; numbness in the arms/fingers and over all wekness. In order to overcome this feeling - It seems to work by drinking just water /gator aid for at least a day. I just don't know if this all started by a nerve damage issue or if it is reverserble. I have done a lot of internet reading and there doesn't seem to be anything to do except eating habit changes. And no one else seems to associate the pain I have with the stomach - I never seem to have stomach pain - Only fullness; nausea; bloating/gas. I also am not diabetic. Which my understanding is a reason for this condition. If you have this condition - what are your symtoms and how are you managing? Thanks
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What types of symptoms do you have when laying flat Ken ?
@paulr58 when lying flat... which I try not to do.. the food in the stomach tries to come up... when at the dentist even.. I tell them, "not flat".. "I'll tell when. "..
An when it tries to come up do you suffer from acid reflux or gurd ? I have been struggling with gastro for a few years now and this is one of my symptoms. doesn't matter if I take PPI"s. I have to stop eating about 3 pm if going to bed about 10pm. Tried the wedge pillow doesn't work sleep in a chair now. The acid reflux got so bad my throat was bleeding.
@paulr58 sorry for your severe symptoms.. I try to eat the more nutritional foods for breakfast and lunch.. I live alone so I can choose.. I can eat nuts so they are common frequent snacks.. pile several pillows on that wedge to elevate your body more.
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1 ReactionDef vagus nerve is involved for sure. But no drs have helped me. It causes PVC'S
So I consulted a nutritionist and made some changes in diet to avoid trigger foods. Also started taking a multivitamin in the morning to cut down on all the meds I had been taking (B6, B12, Folic Acid, Iron, and several others). For 2 weeks no nausea. Felt a lot better. All of a sudden (yes I had caffine) have nausea for the last 4 days. Worse than before lifestyle changes. Ideas? Thoughts?
Thanks and Happy New Year.
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2 ReactionsHere are some RX’s ( a list from internet ). I feel your pain !
Thanks for information. Tried em all! good luck!
My solution is to Drink pedilyte.. instead of water, some Kefir...every morning.. mayo MN prescribed Nexium generic.. and Mirtazapine to make me want to eat.. keep body trunk mostly vertical wait an hour or two after vomiting before eating again.. you must eat to live.. good luck..ken
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1 ReactionThanks!