What can I do when in a gastroparesis flare?

Posted by lily21 @lily21, Mar 8, 2021

What can I do when in a gastroparesis flare? Even water is painful to drink. I am waiting for a call from Mayo GI clinic. Waiting is hard. I do take an acid reflux med, and Tums though the day. I also take zofran as needed, but thats not working either. Ive had a flare for 3 days.

Interested in more discussions like this? Go to the Digestive Health group.

Hello @brandywine8875 and welcome to Mayo Clinic Connect. Great to hear that you are being referred to Mayo Clinic in Jacksonville after what sounds like a trying last couple of years.

Can I ask when your appointment is scheduled for?

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I do not have an appointment scheduled yet, but my GI sent over my referral Thursday and I got a call Friday to set up an appointment. I will be making my appointment this week.

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@astaingegerdm

@brandywine8875 – I’m referring to your question about your visit To Mayo.
I have been a patient at Mayo, Jacksonville. Before appointment you will get a schedule for your testing and Dr visit. You may have to stay an extra day or more, depending on the amount of testing done. There are several hotels close by with special Mayo rates. The visit is very well planned.

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You have to stay in a hotel? I assumed I would be in the hospital.

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Is there anyone familiar with this condition who can answer a few questions for me?

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@mcott

Is there anyone familiar with this condition who can answer a few questions for me?

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@mcott, there are many members in the Digestive Health group who live with gastroparesis. Can you tell me what you main questions are? I can connect you with others who can share their experiences and help answer your questions.

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@mcott

Is there anyone familiar with this condition who can answer a few questions for me?

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I have this. Physical Therapy in Louisville,Ky.. helps me more than anything. It is a very bad thing to deal with.
Wish I could get more help.

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@mcott

Is there anyone familiar with this condition who can answer a few questions for me?

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My husband has gastroparesis and is suffering with nausea, an inability to gain weight, and feeling full all the time. Doctors want to place a GJ feeding tube but he is not on board with that. He is otherwise healthy and seems to have developed gastroparesis after esophageal surgery. Is there anyone in this group living with a gj tube who would be willing to share their experience?

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@colleenyoung

@mcott, there are many members in the Digestive Health group who live with gastroparesis. Can you tell me what you main questions are? I can connect you with others who can share their experiences and help answer your questions.

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Is there any one thing that helps; best diet; medications

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My gastroparesis is getting worse. Any other suggestions on things to do or procedures to use.

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@fatz52

My gastroparesis is getting worse. Any other suggestions on things to do or procedures to use.

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Hi @fatz52 and welcome to Mayo Clinic Connect. Sorry to hear your gastroparesis is getting worse. I moved your post to a current discussion about gastroparesis so that I could introduce you to members like @mcott, @mgeller604, and @brendaharvey who have had experiences with this illness.

How long have you been diagnosed and what symptoms are worsening?

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@amandaa

Hi @fatz52 and welcome to Mayo Clinic Connect. Sorry to hear your gastroparesis is getting worse. I moved your post to a current discussion about gastroparesis so that I could introduce you to members like @mcott, @mgeller604, and @brendaharvey who have had experiences with this illness.

How long have you been diagnosed and what symptoms are worsening?

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Since 2014 and in pain Everytime I eat

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@amandaa

Hi @fatz52 and welcome to Mayo Clinic Connect. Sorry to hear your gastroparesis is getting worse. I moved your post to a current discussion about gastroparesis so that I could introduce you to members like @mcott, @mgeller604, and @brendaharvey who have had experiences with this illness.

How long have you been diagnosed and what symptoms are worsening?

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I was diagnosed 7yrs ago. Ive been in an episode since noon yesterday. I take hot baths with a cup to continuously over belly. I took a muscle relaxer and a nerve pill. Ive used icy hot on belly. Currently using heating pad. I hope u feel better soon.

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