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Gastro Issues with strange mouthfeel like burning mouth
I had tremendous chronic stress dealing with an aging parent. I began having a mouth sensation similar to burning mouth type which then led me to have a endoscopy which showed all clear except for esophagitis present. Provider immediately prescribed PPIs, which worsened all symptoms gastro wise, finally stopped all of those after 90 days and went to ENT who led me to an alkaline diet which seemed to help. Had another patient endoscopy 1 yr later with a BRAVO monitor which revealed zero GERD incidents and possible low stomach acid. While much has improved, the mouth feel issue still remains often enough 4 days a week, tolerable but aware. I am a dental hygienist so the oral cavity is well known by me. My question is does anyone out there experience this same type of mouthfeel? It has been hard to describe and it occurs within 1.5 hours of a meal, subsides at night. Lots of flossing, brushing and sf-gum to aid in digestion. I had extensive bloodwork panels with all being very good.
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I know you mentioned you were a dental hygienist but have you noticed in bumps or line on the inside cheeks or lacy patches?
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2 ReactionsThe anatomy of the “midline” is present and normal, I have no lacy patches. If you haven’t been to your dentist, please see them to check the patches if you haven’t that.
What I do notice is when I have the sensation mouthfeel, the midline feels slightly puffy, kind of like an allergic reaction response.
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2 ReactionsI have had burning tongue for years. I don’t have it in the morning but it’s terrible by late afternoon. No one is really interested enough to search for the cause. Occasionally, I’ll have the “ magic mouthwash “ mixed up for me, but the relief is only temporary.
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1 ReactionI was curious about the patches because you mentioned your chronic stress. I was diagnosed years ago with oral lichen planus when under a tremendous amount of stress. The symptoms sound very similar, ie. Stress, swollen/ puffy, metallic taste etc. My dentist wasn’t familiar enough to diagnose the condition so I was sent to a specialist as it sometimes takes a biopsy to diagnose.
Thanks for the info. Did you see an oral surgeon for the diagnosis? And how are your symptoms now?
I was referred to an oral pathologist through my family dentist. Unfortunately, the main drug for keeping it under control is prednisone.
In my case it was with me for almost 5 years but I was on a maintenance dose of 5 to 10mg of prednisone during that timeframe. If I stop the prednisone, it would come back. It’s unbelievable what stress will do to your body. Surprisingly, it went away as fast as it came? The specialist that I saw told me that they first started noticing this disease in young men going to war in WW1.
@duncan78 may I ask if you have any digestive issues? It has been 1.5 yrs for me and I’ve had every test imaginable. The Bravo pH test revealed low stomach acid for me after the gastro put me on PPIs and Blockers and it was so much worse for 90 days until I stopped them and had the Bravo test so those acid blockers were such a bad thing to be on since I didn’t have high stomach acid. Stress is such a killer! Did your primary doctor manage your prednisone or did you continue to see oral surgeon or pathologist? Thanks again for some insight.
I do have GI issues. After years of being diagnosed with IBS ( doctor’s way of saying they don’t know what it is) I was diagnosed with Microscopic Colitis, specifically Collagenous colitis in 2023. The majority of people with this condition have chronic diarrhea, having a BM 6+ times daily. People also have debilitating stomach pain which is/was me. I’m currently taking Budesonide, another steroid, which focuses on the GI tract. My GI doctor had me on Pantoprazole ( a PPI) until I did research and discovered it was a trigger for MC. Hope that helps.
I continued to see the specialist for the lichen planus every 6 months. He would check the condition and also monitor for cancer risk. I was hesitant to mention that word but there is a slight chance.
Did you actually have the weblike appearance? Were your symptoms all day everyday for the 5 years? Do you still see the specialist now? Or how long ago has this been now? And did the major stress subside in life which is most likely why it went away? Thanks again for all the information.