Thank you for responding and for thinking of me. Yes, let’s remain positive!! Mind over mater! I used to work for the American Cancer Society and never heard of gallbladder cance bcz the estimate only 2 people out of 100,000 people get it.. Hopefully there are those few survivors out there that lived to tell about it and what treatment they had to kill it Al. Please share if you have had this aggressive cancer.
I have been diagnosed with Gallbladder cancer. Already had surgery to remove the T4- Stage 4a tumor that invaded half my liver, a portion of my intestines and bile ducts which were all removed. I’ve never even heard of Gallbladder cancer before I was diagnosed. They want me to start on Xeloda and then after 4 months on chemo they want me to start on both Xeloda nd radiation. I feel very ALONE with this diagnosis as only 2 in 100,000 people get it and very AFRAID bcz of the poor prognosis. Can ANYONE relate???
I hope you find a sense of community here and can start to feel less alone. Your situation sounds complex and challenging. One day at a time, as they say. While the prognosis in general may be poor, that doesn't mean YOUR prognosis is poor. Try to not let your fear rule the situation. Expect answers from your health care providers, gather information, and make decisions based on the reality of your situation. I have to have my gallbladder removed on April 2, and I, too, am worried about gallbladder cancer since it is a higher risk because of my genetic mutation (Lynch Syndrome). Let's both hope for the best and face whatever we have to face. I hope others will join the discussion and offer you some support. You will be in my thoughts.
I have been diagnosed with Gallbladder cancer. Already had surgery to remove the T4- Stage 4a tumor that invaded half my liver, a portion of my intestines and bile ducts which were all removed. I’ve never even heard of Gallbladder cancer before I was diagnosed. They want me to start on Xeloda and then after 4 months on chemo they want me to start on both Xeloda nd radiation. I feel very ALONE with this diagnosis as only 2 in 100,000 people get it and very AFRAID bcz of the poor prognosis. Can ANYONE relate???
Hello Teresa. Yes, the 1.5 cm tumor was incidentally found after a routine cholycystectomy since she had gallstones for 20 years. The tumor was staged as pT2 borderline pT3. No perotineal invasion and All margings negative for invasive carcinoma. The contrast CT scan only showed a 1cm indeterminate hypodense Liver lesion in segment 5. An MRI with contrast was ordered to better asses the lesion. She will be having a billiary duct resection eventually. Hopefully soon
Hello @maortiz1987 and welcome to Mayo Connect. I appreciate you sharing about your wife's experience with gall bladder cancer. From your post, this looks like a recent diagnosis. Is that correct?
How long ago was your wife's surgery? Was "1.5" the size of the tumor. Was her gall bladder tumor staged?
Hello Teresa. Yes, the 1.5 cm tumor was incidentally found after a routine cholycystectomy since she had gallstones for 20 years. The tumor was staged as pT2 borderline pT3. No perotineal invasion and All margings negative for invasive carcinoma. The contrast CT scan only showed a 1cm indeterminate hypodense Liver lesion in segment 5. An MRI with contrast was ordered to better asses the lesion. She will be having a billiary duct resection eventually. Hopefully soon
Hello, my wife is going through a very similar case like yours. She had a 1.5 gallbladder cancer tumour and possibly a 1cm liver tumour (still waiting on an MRI result) in segment V. How are you doing?
Hello @maortiz1987 and welcome to Mayo Connect. I appreciate you sharing about your wife's experience with gall bladder cancer. From your post, this looks like a recent diagnosis. Is that correct?
How long ago was your wife's surgery? Was "1.5" the size of the tumor. Was her gall bladder tumor staged?
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Thank you for responding and for thinking of me. Yes, let’s remain positive!! Mind over mater! I used to work for the American Cancer Society and never heard of gallbladder cance bcz the estimate only 2 people out of 100,000 people get it.. Hopefully there are those few survivors out there that lived to tell about it and what treatment they had to kill it Al. Please share if you have had this aggressive cancer.
I hope you find a sense of community here and can start to feel less alone. Your situation sounds complex and challenging. One day at a time, as they say. While the prognosis in general may be poor, that doesn't mean YOUR prognosis is poor. Try to not let your fear rule the situation. Expect answers from your health care providers, gather information, and make decisions based on the reality of your situation. I have to have my gallbladder removed on April 2, and I, too, am worried about gallbladder cancer since it is a higher risk because of my genetic mutation (Lynch Syndrome). Let's both hope for the best and face whatever we have to face. I hope others will join the discussion and offer you some support. You will be in my thoughts.
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5 ReactionsYes
I have been diagnosed with Gallbladder cancer. Already had surgery to remove the T4- Stage 4a tumor that invaded half my liver, a portion of my intestines and bile ducts which were all removed. I’ve never even heard of Gallbladder cancer before I was diagnosed. They want me to start on Xeloda and then after 4 months on chemo they want me to start on both Xeloda nd radiation. I feel very ALONE with this diagnosis as only 2 in 100,000 people get it and very AFRAID bcz of the poor prognosis. Can ANYONE relate???
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2 ReactionsYes, thank you for asking. She is eating basically everything with no digestive issues
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3 ReactionsThis all sounds good, @maortiz1987. It sounds like she is getting good follow up, as well.
How is she feeling since her surgery? Is her appetite OK and does she have any problems with digestion?
CA 19.9 levels is in 14. CEA normal range as well
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1 ReactionShe had the gallbladder removal surgery on june 14th
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1 ReactionHello Teresa. Yes, the 1.5 cm tumor was incidentally found after a routine cholycystectomy since she had gallstones for 20 years. The tumor was staged as pT2 borderline pT3. No perotineal invasion and All margings negative for invasive carcinoma. The contrast CT scan only showed a 1cm indeterminate hypodense Liver lesion in segment 5. An MRI with contrast was ordered to better asses the lesion. She will be having a billiary duct resection eventually. Hopefully soon
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1 ReactionHello @maortiz1987 and welcome to Mayo Connect. I appreciate you sharing about your wife's experience with gall bladder cancer. From your post, this looks like a recent diagnosis. Is that correct?
How long ago was your wife's surgery? Was "1.5" the size of the tumor. Was her gall bladder tumor staged?