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Flushing after NET surgery
Hi! I had pancreatic NET surgery on Feb.1. Recovering nicely at home. Never had flushing before surgery. Now I experience flushing almost every day. Should I be worried? I have the tumor removed as well as part of the pancreas, gallbladder and spleen, multiple liver metastasies, plus total histerectomy.
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Hello @pavlina60
Flushing can be a sign of carcinoid syndrome. Here is a video explaining some of the symptoms of Carcinoid Syndrome, as well as some of the treatments. When you meet with your oncologist next month, it would be good to mention the flushing. Many members on Connect have had these symptoms and they have been treated successfully with meds.
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3 ReactionsI had surgery on Feb 7 to remove LLL endocrine carcinoid. I had some flushing but since the surgery my flushing seems to have increased. Any help would be appreciated on why this could be happening or what I should do.
Thank you
Cindy
Cindy,
I had surgery of pancreatic NET on Feb.1. No flushung before, but have a lot after surgery. If someone knows more about it, please share!
Thank you for sharing.
Hello @cindyarq23 and welcome to the NETs discussion on Mayo Clinic Connect. You mentioned in your first post that you had, "LLL endocrine carcinoid." I'm not familiar with the "LLL" could you please explain what that means?
I have had three surgeries for carcinoids in the upper digestive tract and while I've not personally had flushing, I know that it is common and is often part of what is referred to as "carcinoid syndrome."
Here is a video regarding carcinoid syndrome.
--Carcinoid Syndrome
https://www.youtube.com/watch?v=0tgGFis5Uz4
Has your doctor offered you any meds to help with the flushing?
LLL is left lower lobe. That’s where my endocrine tumor was located.
Cindy
No neither surgeon has offered me any type of meds for this.
Cindy
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Hi Cindy,
If you watch the video the doctors speak of meds that help control the flushing. You might inquire of your oncologist about one of these meds and see if you can give it a try. It might be helpful.
Are you seeing a NET specialist?
@cindyarq23 and @pavlina60, you might also find this related discussion in the NETs support group helpful:
- Neck and face red flushing https://connect.mayoclinic.org/discussion/neck-and-face-red-flushing/
Thank you. Very helpful information
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