Flu Shot
My neuropathy began after Covid Vaccine . I have not gotten flu shots since then but this year's flu is really bad so I am thinking I should. Honestly, I am fearful of my neuropathy worsening if I do get shot. I also have auto immune disease (very vague diagnosis since I have no symptoms; just a high ANA)..
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I have had flu and covid shots every year.
But then, I don't associate my PN with shots.
If I link it to anything, it might be the Nitrofurantoin that I was on for a UTI, as the PN started around 4 months later.
However, that could just be a coincidence. My sister has it to a degree, so could be inherited athough my parents did not have it afaik.
The way I look at it, at the moment I regard my PN as just a nuisance as it has not progressed above the knee (yet) and is not painful, but covid and flu could kill you.
So I get the shots.
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1 ReactionThanks...yes a good point. Flu is a shot not vaccine. I have had Covid 2x but relatively mild. I won't get any boosters because there is definitely association between vaccine and neuropathy.
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1 ReactionI too got PN from the 2nd Phizer Covid shot. I was told not to get any more flue or Covid shots. My PN has been increasing; now up from toes to my lower butt. But, nothing in my hands, arms or upper body. I’ve tried everything to lessen pain. I’m now considering opioids.
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2 Reactions@sue4 wow..similar to my situation. who told you not to get flu shots? I would never get another covid ..I too had Phizer Vaccine and then my neuropathy started from toes to lower butt. I do not have pain but I do have severe numbness, heaviness and stiffness. Also if you touch my butt I have vibrations. Terrible. You might consider Low Dosage Naltrexone. I got presription from my neurologist. Many people take for pain. It is compounded, reasonably priced (about $40 per month. If your doc won't prescribe, you can get online. It stimulates your body's endorphins. GOod luck and let me know which doc said no on flu shots.
@moorethrpy my neurologist told me not to get flu shots because he suspected the MRNA vaccine activated my immune system too strongly & the flu shots might do the same.
I’ll ask my pain doc re LDN; is that an opioid?
@sue4 No Low Dosage Naltrexone is not an opioid. It is actually used to get people off of opiiods. Also it is a much lower dosage than the one used for opioid addiction. The Western Neuropathy Association in Auburn , CA, did a webinar on this drug. Maybe if you contact them, they can connect you to this webinar. I think it doesn't get much attention because it is not a drug big Pharma make any money from as it a compounded generic drug. Good luck. I have o side effects at all...you start on a two week very low dose and then it is a little higher..I take 3.5 mg
@moorethrpy thanks so much. You mentioned buying it over the internet. Is there a particular site you like, where the drug can be trusted to be pure?
Again, thanks, very helpful!
@sue4 I really can't recommend a website since the purity can't be varified.. google and then research but better yet, see if you can get a Doc to write the prescription. Remember it has to be filled at a compounding pharmacy. The online website I looked at was AgelessRX. They ask questions first. But again, I can't verify purity. Good luck.
You might want to pass on the flu vaccine--I am. Multiple reports say that the vaccine does not line up with the dominant flu strain that is afflicting people. Instead, I am making sure to take vitamin D, zinc and extra vitamin c.
@arcuri24 YES...AGREE. Ihe risk of my neuropathy progressing is too scary. My podiatrist who sees many diabetic neuropathy patients was very frank. "In good conscience I don't think anyone can assure you that the flu shot is safe especially since you also have autoimmune disease. SO yes..lots of disinfectant wipes, handwashing and avoiding large groups. thank you for your response.