First trip + Seeking others with similar experiences + Helpful tips

Hi! 30 year old female here and preparing for my trip to Mayo Rochester on January 28th. I was referred by my Neuro after a battery of tests and persistent neurological and nervous system issues with little to no solid answers. I do have a loose dx of POTS/Dysautonomia (only had orthostatic vitals and cardiac tilt table test to confirm as that's what was available near me). Many of my issues seem to be more than POTS though. I have abnormal EEGs, white matter hyperintensities located in the frontal, periventricular, and subcortical areas of my brain, chronic headaches and migraines, mobility issues, major disproportionate fatigue, cognitive problems, chronic pain, muscle weakness & atrophy, stroke-like episodes, seizure-like episodes, and awful GI symptoms too. My quality of life is basically null at this point so I'm hoping for a good experience at the end of the month! Fingers crossed! I'm seeing Dr. Milone and looking at her profile, she seems very accomplished in her area of expertise and research. Does anyone have any personal experience with anything I've listed? Has anyone seen Dr. Milone? I'm also open to any and all tips and advice for my visit!