First Lanreotide Injection: Any tips about diet and side effects?
Good morning, I am an 81 yr old female & was diagnosed with stage 4 NETS in my liver metastasized from my lung in Dec 2022. Like so many of us it was discovered by accident during a GI test. I received my first lanreotide injection July 6, 2023 with minimal instruction, only that I might have intestinal upset (I did) and that I would not be able to eat spicy food for the foreseeable future. I am to a have one injection every 28 days for the next 10 months. I stumbled on this site while trying to find some information about diet information and would appreciate any direction or experience the group can share.
Interested in more discussions like this? Go to the Neuroendocrine Tumors (NETs) Support Group.
I use a heating pad on the injection site after lanreotide and it dissipates the lump. I may even use it for a few days if it doesn’t go away the day of the injection
what is the difference between Lanreotide and prrt?
I had my first bland embolization on August 6th. It didn't go as planned - my vessels collapsed, and I had to have a steroid and Benadryl before they could try the medicine again. They were only able to treat 1 of the 3 tumors and I will need to go back in for another one on September 30th. I was extremely sick after and ended up staying in the hospital overnight. I hope your experience is much better.
I am also one of the lucky ones with carcinoid syndrome.. started with Lanreotide which didn’t help had ab 15-20 episodes a day, Dr. switched me to ocreotide over a year ago, within hours the hot flashes subsided, and have been under control since then.. I pretty much can eat anything, I do try and stay away from carbs, and sugar but that is to prevent me from going on diabetes meds.. have a wonderful weekend!
I’m realizing that I should have changed the title of my post rather than just adding to an older one! I’m still hoping to hear from those willing to share experiences with bland embolization procedures for liver NET tumors.
I appreciate you sharing your eating plan, @stevestenberg31. While I have not needed the monthly injections, after my digestive tract surgery, I too have found that Greek yogurt is a great comfort food that is easily digested and good for the gut!
I just had my 20th Somatuline depot aka Lanreotide injection last week. I too eat dairy and try to avoid red meat as it gives me diarrhea. I also try to eat Greek vanilla yogurt w/ 1/4 cup organic blueberries and 1/4 cup granola almost every day. I'm convinced the yogurt helps with my digestive system. 🙏
I realize this is an older post, but wanted to comment for future readers that dairy has not given me any problems. In fact I try to drink a glass of low fat milk most days. My breakfast most days is plain fat free Greek yogurt and 1/3 C blueberries. I also almost always have some kind of cheese with lunch.
In general too much fat will cause diarrhea for me and high carb or sugary foods will trigger flushing and blood pressure drops which has led to fainting twice, (plus nearly fainting a half dozen times).
(I know not everyone with NETs has carcinoid syndrome but I'm one of the lucky zebras. Lol.)
Blessings to each one of you!
Well I think my first injection was not done correctly. I have had 13 since that first one and none of those have caused a lump like I still have from the first one, been over a year and still there.
I have found that a heating pad at the site of the injection reduces the lump caused by the injection