Feeling a Fertility Timeline Crunch

Hello @doslovesdogs21. I can certainly understand your mix of feelings given your plans for your education and those of your wife as well. I think it is great that you have as much information as you do on this so you can ruminate on what is best for you given your wishes to carry your own child.

In my search to find current members on Connect who may understand what you are going through, I found @mariannj who has shared in the past about also having HLRCC. I don't know if she also faced fertility challenges such as you are, but it is worth seeing if she will join the discussion to see what she might have for experience on this topic.

Have you and your wife discussed this window of time between now and August and what that might look like if you were to take advantage of it and move forward, albeit earlier that you had imagined given your mom's timeline?

Hello @amandajro and thanks for the reply! The fertility doc I'm seeing recommended another ultrasound in July/Aug to see how things are progressing, and I just went for the ultrasound yesterday with a follow-up clinic visit with the doctor. Unfortunately, my fibroid has grown quite a bit (2cm) and I now have a few more fibroids in there. It seems there is a promising treatment with an oral GnRH combination like Myfembree -- it could manage my bulk related symptoms and decrease the volume of my fibroids. This could buy me more time -- my doctor said I would still need to pursue pregnancy in the next two years because this treatment is only approved for 2 years' use. I feel comfortable working with that timeline, but I have to see whether my insurance will cover it. However, I also saw in my clinical notes from this most recent ultrasound that there may be evidence of a uterine septum. I have reached out to the doctor for confirmation, because going through this treatment in the hope of preserving a capacity to bear a child might not matter if I have a septate uterus as well as fibroids that are impacting the shape of my uterine cavity. Although I know people still carry pregnancies with a septate uterus, I know typically they set you up for a high-risk pregnancy. With the size and location of my larger fibroid, I would already be at higher risk for pregnancy complications...I suppose I just feel a bit betrayed by my body at the moment.

@doslovesdogs21 feeling betrayed by your body is an understandable emotion given the news you've received. How is your spouse with the news you received and recommended timeline?

Just an update since you were kind enough to reply, @amandajro. My spouse and I decided to go with the Myfembree option, but then my insurance would not cover it and denied my provider's appeal on my behalf. I have had to go on a hormonal birth control in the meantime, and I am coming up on the timeline set by the insurance to show it has not helped (which it has not) and move over to the Myfembree. However, in that time, all of my fibroids have grown, and my bulk symptoms are worse. The specialist I've been seeing is now on the side of the sooner, the better when it comes to pursuing a pregnancy. Originally, we had planned for starting to try in 2025. However, my fibroids are large enough and located in such a way as to require surgical intervention prior to carrying anyway. My spouse and I are trying to process everything, but we are also making the effort to pursue the next steps for our educational/career goals, and it is a lot at once. Luckily, my AMH is robust, so I do not seem to have any other underlying issues with my fertility like a low egg supply.