Failed colonoscopy, don't understand what Dr. was telling me

Posted by meningone @meningone, Wed, Oct 30 7:32pm

Hi. I'm 52 and had my 1st colonoscopy a couple wks ago due to 4 months of diarrhea and significant weight loss. Over the years I have normally had a lot of problems with terrible constipation, so having diarrhea was/is definately a new thing for me. When i went for my consult regarding the results he told me he couldn't finish the procedure without the risk of perforating my colon. He said I had the colon of an 80 year old. He didn't use any specific terms/conditions. He said something about it being stretched and loose and that it didn't get that way overnight. That I have had some type of IBS for a long time and I need to have a barium enema. I don't know what any of this means. I do know for the barium enema I have to go on a clear liquid diet for 2 days and that will be hard because I'm already down to 87 lbs and get weak and dizzy easy and also haave other chronic pain problems that flare with not enough rest and not eating right. But mostly I'd like to understand what he was telling me about my colon. Thanks.

Too bad you did not say to him « sorry but I do not really understand what you are telling me would you mind to elaborate » may be next time you see him.. I can only assume that through years if being constipated you had to strain which damaged your colon which is why you are having problems especially if you have IBS on top. The diarrhea could be un-related caused by a bacterial infection.
Sometimes a barium enema helps but if you have a bug you might need antibiotics. Make sure they do not give you a dose to kill a horse which they often do.. at your weight it could damage you further plus you are already weak & the antibiotics side effects can be devastating! Stay away from Cipro & Amox. You do not need C-diff on top of your problems. May be you should see a Nutritionist who might help you to re-balance your intestinal flora. Good luck I truly sympathise with you having similar problems.

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Please see another gastroenterologist at a highly rated facility ASAP for another opinion. Tell them this is urgent and you need an appointment promptly. Have complete results if your previous tests and procedures sent to them before your appointment. Your condition sounds much too serious and complex to be waiting for input (even well meaning) from this forum or another round with your current doctor. Best of luck to you.

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@oceanone

Too bad you did not say to him « sorry but I do not really understand what you are telling me would you mind to elaborate » may be next time you see him.. I can only assume that through years if being constipated you had to strain which damaged your colon which is why you are having problems especially if you have IBS on top. The diarrhea could be un-related caused by a bacterial infection.
Sometimes a barium enema helps but if you have a bug you might need antibiotics. Make sure they do not give you a dose to kill a horse which they often do.. at your weight it could damage you further plus you are already weak & the antibiotics side effects can be devastating! Stay away from Cipro & Amox. You do not need C-diff on top of your problems. May be you should see a Nutritionist who might help you to re-balance your intestinal flora. Good luck I truly sympathise with you having similar problems.

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I know. I wish I woud have asked him to explain better. Usually they send a detaied summary in my online MyChart that I can read and understand better. But there is no notes or after visit summary for my colonostomy nor after the consult. I've had bowel issues since I was a little girl and we've done diet changes, pills, powders, on & on. It's just something I have learned to live with. But by never having a colonostomy or seeing a gastroentologist, the things he is telling me I don't understand. Up to now, I've just been told, your bloodwork is fine, there's nothing to be concerned about. Take Miralax and Colace when constipated and a probiotic may help, you'll just have to try and see. Take anti-diarrheaheal when you have diarrhea. Soooo, that's what I've been doing.Til now.

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We live in a very small rural area that doesn't really have any high rated facilities. I don't know if my insurance would let me switch Dr.s/facilities or not? I could check. But he didn't say anything about this being an urgent or serious matter. He just said he could only get the scope a tiny way into my colon because it was "like a colon of an 80 yr old". I just don't know what he means by that. I know he wants to see all my colon to make sure there's no cancer but a barium enema only shows the very lower portion of the colon anyway from what I have read. I'm not even sure any of this is necessary? I realize colonostomys are important, but I don't want to go through 2 days w/o eating at my unhealthy weight loss and go through being awake through a very uncomfortable procedure if there is no reason for it. I don't know what to think or do.

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@oceanone

Too bad you did not say to him « sorry but I do not really understand what you are telling me would you mind to elaborate » may be next time you see him.. I can only assume that through years if being constipated you had to strain which damaged your colon which is why you are having problems especially if you have IBS on top. The diarrhea could be un-related caused by a bacterial infection.
Sometimes a barium enema helps but if you have a bug you might need antibiotics. Make sure they do not give you a dose to kill a horse which they often do.. at your weight it could damage you further plus you are already weak & the antibiotics side effects can be devastating! Stay away from Cipro & Amox. You do not need C-diff on top of your problems. May be you should see a Nutritionist who might help you to re-balance your intestinal flora. Good luck I truly sympathise with you having similar problems.

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Oh, by the way. The barium enema is in the hospital. I have to go on a liquid diet for 2 days. They then put barium into my colon through my rectum and take a bunch of xrays to try to see my colon better. I think they also try to insert a smaller, thinner scope to see as far as they can.

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@meningone – I agree with @jackiem95 You should see a gastroenterologist at a major hospital or university hospital where they see many more patients with complicated intestinal illness than in a smaller town. I understand it will be difficult to get to such a hospital, but this might be the time you have to do that. Most insurances cover second opinions. There are other ways to examine your colon, such as capsule colonoscopy. I had that once. You swallow a capsule with a tiny camera that can see inside the colon. However, doctors at these major hospitals also have more experience performing difficult colonoscopies. You need a diagnosis now.

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@astaingegerdm

@meningone – I agree with @jackiem95 You should see a gastroenterologist at a major hospital or university hospital where they see many more patients with complicated intestinal illness than in a smaller town. I understand it will be difficult to get to such a hospital, but this might be the time you have to do that. Most insurances cover second opinions. There are other ways to examine your colon, such as capsule colonoscopy. I had that once. You swallow a capsule with a tiny camera that can see inside the colon. However, doctors at these major hospitals also have more experience performing difficult colonoscopies. You need a diagnosis now.

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Please understand that I'm not trying to be negative towards any of your responses. I'm just still having a hard time understanding why this is suddenly important. I've lived with stomache issues and pain most all my life and I don't know why it's suddenly turned to something "serious". Well, the Dr. didn't say it was anything serious.He just wants a complete colonostomy.I think? I'm just trying to figure out what a "colon of an 80 yr old" means to help me mke a decision if I should even go through with this barium procedure, seek another procedure, or just wait and try to get my bowels moving normally and maybe try for another colonoscopy in a few months. If I could understand what he was saying about my bowels, I could make a more informed decision. I honestly appreciate your responses soooooo much. Please continue to respond as you feel led, but I'm still just as confused as before. LOL! I'm so sorry. I guess it's because I've never been to a gastro Dr. and know nothing about any of this. I've always been told there was nothing wrong with me when I sought help for my bowel issues and pain.

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@meningone – I understand that this new GI problem is overwhelming. I don’t mean to push you to make decisions- I just get passionate! All of us here in this group have gone through many different ordeals with our GI tract and like you have not always understood what’s happening.
I think I can try to explain what the doctor means by saying you have a colon of an 80 year old. You say that you have had severe constipation most of your life. When that happens the colon stretches more and more- like a pantyhose. It will also affect the ability to contract and move the stool forward. That is probably why the doctor talks about doing a colostomy- you would have a colostomy bag where the stool from small intestine empties. The colon would not have any function.
It would be good for you to have him or a nurse explain your problem in detail.
We are always here to listen!

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Thank you all for your replies. I had to go to the town today where my colonoscopy ws performed. (An hour away & it's a small hospital, we don't have a hospital in my county). Anyway, I stopped by the Dr.'s office hoping he might be available. He wasn't but his nurse was. She said he was able to get part way up my colon but couldn't get around the loop at the top because it was so stretched. She explained I had severe diverticulosis. That it's a common condition but the advancement of mine is usually only seen in the elderly, typically around 80 yrs old. There were lots of inflammed protruding pockets. He just wants to be able to see my whole colon to be sure there are no other problems. So, that's the better explination I received. And I spelled colonoscopy wrong in an earlier paragraph. I said colostomy and didn't mean to. No, he doesn't want o do that. As far as we know there's nothing serious wrong with me. Just can't complete the procedure and I couldn't understand why. As for the pain, I've always had it and as far as I know there's nothing that can be done for it. I've just learned to live with it. It comes and goes to a certain extent.

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@meningone is it possible that the recent diarrhea could be from something you are eating? I suddenly started having diarrhea almost daily after I started a new medication. I thought the diarrhea was strictly from the medication but after quite a while I started to notice that it was worse when I had foods containing lactose – it took me about two years to add this up! I stopped eating those foods and the constipation went away! I still think the medication had some involvement in my case, that it triggered the lactose intolerance but I have read that as people age many, maybe even most, develop lactose intolerance. It’s just a thought, but could be worth eliminating those foods to check on that. I had been having yogurt most mornings, goat cheese on a salad for lunch, plus lactose in other foods.
JK

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@meningone

Thank you all for your replies. I had to go to the town today where my colonoscopy ws performed. (An hour away & it's a small hospital, we don't have a hospital in my county). Anyway, I stopped by the Dr.'s office hoping he might be available. He wasn't but his nurse was. She said he was able to get part way up my colon but couldn't get around the loop at the top because it was so stretched. She explained I had severe diverticulosis. That it's a common condition but the advancement of mine is usually only seen in the elderly, typically around 80 yrs old. There were lots of inflammed protruding pockets. He just wants to be able to see my whole colon to be sure there are no other problems. So, that's the better explination I received. And I spelled colonoscopy wrong in an earlier paragraph. I said colostomy and didn't mean to. No, he doesn't want o do that. As far as we know there's nothing serious wrong with me. Just can't complete the procedure and I couldn't understand why. As for the pain, I've always had it and as far as I know there's nothing that can be done for it. I've just learned to live with it. It comes and goes to a certain extent.

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@meningone – That’s great that you got some answers. It makes more sense now. Get well wishes!

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@astaingegerdm

@meningone – I understand that this new GI problem is overwhelming. I don’t mean to push you to make decisions- I just get passionate! All of us here in this group have gone through many different ordeals with our GI tract and like you have not always understood what’s happening.
I think I can try to explain what the doctor means by saying you have a colon of an 80 year old. You say that you have had severe constipation most of your life. When that happens the colon stretches more and more- like a pantyhose. It will also affect the ability to contract and move the stool forward. That is probably why the doctor talks about doing a colostomy- you would have a colostomy bag where the stool from small intestine empties. The colon would not have any function.
It would be good for you to have him or a nurse explain your problem in detail.
We are always here to listen!

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Since the 80 year old colon is difficult (I'm 82) and you are on My Chart that usually means your clinic hospital is using Epic for medical records..Ayo is on Epic.. you should be able to go to Mayo Emergency to get help.. I t is always better to get a referral from your local doc, but at your weight, you are walking a fine edge with little room for error.. good luck

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I have all your problems & I totally understand your situation. I had serious issues with diverticulitis Every time I had an attack I had to have a scan & go on antibiotics which almost killed me. i lost 25 pounds. So I had a colon resection. They removed the part of my colon which was the most diseased & re-attached it. I do not have a bag & I am doing quite well with the right diet which is why I suggested to you to see a Nutritionniste. You need fiber in your diet but just the right amount
When our colon gets inflamed can be because we react to certain food or even because of stress it causes scar tissue which means your colon can be narrowed in certain places; it is called a stricture or stenosis. Which is why your doctor cannot pass with a scope even a small pediatric scope (child scope) By the way my gastro wanted me to do a short colonoscopy (rectal only) to assess my situation & because my colon is narrowed like yours I got in trouble with the prep…it could not go down.. so I started to vomit it ended up with a partial blockage in agony at the ER! They had to in-tube me to get the prep out! A barium enema or hydro soluble enema where the put a contrast in your rectum & take pictures has helped me.
Try to avoid a full colonoscopy prep just eat very lightly 3 days prior the procedure & use 2 fleet enemas the 2 days prior your barium enema.
1 at night & 1 in the morning. Best of luck 🍀🍀🍀 keep us posted.

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@oceanone

I have all your problems & I totally understand your situation. I had serious issues with diverticulitis Every time I had an attack I had to have a scan & go on antibiotics which almost killed me. i lost 25 pounds. So I had a colon resection. They removed the part of my colon which was the most diseased & re-attached it. I do not have a bag & I am doing quite well with the right diet which is why I suggested to you to see a Nutritionniste. You need fiber in your diet but just the right amount
When our colon gets inflamed can be because we react to certain food or even because of stress it causes scar tissue which means your colon can be narrowed in certain places; it is called a stricture or stenosis. Which is why your doctor cannot pass with a scope even a small pediatric scope (child scope) By the way my gastro wanted me to do a short colonoscopy (rectal only) to assess my situation & because my colon is narrowed like yours I got in trouble with the prep…it could not go down.. so I started to vomit it ended up with a partial blockage in agony at the ER! They had to in-tube me to get the prep out! A barium enema or hydro soluble enema where the put a contrast in your rectum & take pictures has helped me.
Try to avoid a full colonoscopy prep just eat very lightly 3 days prior the procedure & use 2 fleet enemas the 2 days prior your barium enema.
1 at night & 1 in the morning. Best of luck 🍀🍀🍀 keep us posted.

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I have Diverticulosis not Diverculitis is what the nurse said. Diverculitis is when you have infection, and I don't, just inflammation. I had no problem with the prep for my initial colonoscopy except it was unpleasant. My colon isn't narrowed, it is very stretched out from having previous episodes of constipation building up in my colon expanding my colon. It stretched it like filling a water balloon then when you let it out it's stretched out of shape and floppy. That's how she explained it. And it's also been left with many irritated pouches which should hopefully be ok, but is at a higher risk of peforating my bowel because of the number of them and the severity of the inflammation. She said the damage is already done, and there's probably not much that can be done now to undo it, but they still need to see all my colon because everyone needs a screening for colon cancer, and he also wants to see what if any damage is in the loop and on the other side of my bowelthat he couldn't get to. I didn't understand ANY of this before yesterday, and it's still very new to me, but at least I know it's nothing serious and nothing to worry about.

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