Facing Cancer Recurrence, PTSD & Acknowledging Mental Health

I am on my last chemo treatment but husband was killed via a stupid kid nave been in treatment for over a year SO want to talk about downer husband killed have to do a funeral all funds are locked up because of the death on the road last chemo treatment had to cancel and to top it all of got stun by a hornet So life is certainly a bowl of cherries

@jbspiro I have now had a total of 4 bone marrow biopsies. My legs have not felt numb after any of them. What experiences are you having?
Ginger

I'm tagging @gingerw to make she sees your question.

@jbspiro, did your legs feel numb after the biopsies? If yes, did it resolve over time?

Yes, see very few Doctors, except PCP.
Oncologist met with only 3 times.
Dermatologist, Urologist, EN,T, GI never even met Dr.
Pulmonologist comes in to review RN visit findings.
I wonder what they do during office hours???

Hi Ginger,
I have had 3 of these biopsies done, do your legs feel numb from those procedures? Wishing you the best🙏✝️♥️

I’m so sorry to hear that after 20 years of being successfully on the combo, you have been left high and dry with no coverage for your depression. (Understand you’re still on Adderall for ADHD).

I’m on different anti-anxiety medication that I too have taken for 20 years under medical supervision (2 successive GPs) and I feel totally normal while on it with no side effects. Periodically we try weaning me off just to test but go back on as I do badly otherwise.

I have just read that experts generally agree that your 2 drugs should not be given together due to possible safety concerns, but in cases they may be under medical supervision. It’s shocking that the NP has made that call and I hope you can escalate it to a Doctor.

the new generation of "health care professionals" have very different ideas...and you rarely get to see a DOCTOR. It's usually an25 yr. Old P.A. or N.P. fresh out of school and ALL textbook. WHOA is us. Lol

Hello, I was diagnosed with cancer in June after a colonoscopy. Still waiting for final treatment plan which is getting more difficult everyday, as I want to get treated because I have bloody bum problems. I had to find a new doctor for my ADHD and depression because my new insurance did not cover the old doctor. Florida is still under Covid telehealth rules for now so finding a doctor who accepted my insurance and new patients was challenging to say the least. Finally got an appointment and the Nurse Practioner I saw does not believe in bupropion with Adderall so she would not prescribe the bupropion or any other antidepressant. I have been on the regiment for probably 20 years and it was chosen specifically because I did not tolerate other drugs, at the very least she should have weaned me off. I find myself getting quite anxious but it may just be the waiting for the treatments. I cannot go through the process of finding another psychiatrist. This sucks.

our oncologists teams are amazing just when we said to ourselves my husband should not endure more chemo, his oncologist had consulted with the g. i. oncologist and found that immunotherapy would be more helpful. Indeed it was for hom. Metastasis stopped and disappeared . now for 2.5 years and now no therapy for 1.5 years. Si good there is progres in cancer treatment. Journaling has helped me as the caregiver to move forward. But I hear you, I did have difficulty with medical teams accepting the fact his bo was not running high. At home it is even liw in double digets bit will go up 30 or more points at the office. I found first that he used a child cuff for a while , then a small again finally. Of course using too large of a cuff makes it lower and making sure the right size cuff was used was a first step. but the technique of getting the bp within a minute or so after setting down in the office showed the high BP. Home health insists on no talking and the patient in a sitting position with legs uncrossed for 5 minutes then the assessment. The question of how have you been doing brings up memory distant as well recent past. All can be reflected in the BP. He was the. worst in his Pcp of 24 years office. so asking the cna to let him relax after getting there has helped so much. Old memories and the issues faced were creating immediate changes and BP meds brought thr general BP down way too low at home. The body remembers so much. CBT therapy helps so much.

I had a 6 hour non-nerve sparing RARP ten days ago for my Gleason 4+4=8 PC. Mayo Urologist said it was one of his most difficult of the more than 500 he has done because the prostate had grown into the rectum and there was a great deal of inflamation making visualization difficult. This required disection, sutures in rectum, and colorectal Dr. performing endoscopy. Feared cancer spread to rectum but pathology showed clear margins, and no seminal vessel or lymph node (13 right & 8 left) tumors. There was an extraprostatic extension and cancer was upgraded to Gleason 4+5=9 and identified as adenocarcinoma with ductal features and with cribriform pattern 4 present. My right thigh is numb and burns but told this was due to lymph node removal and will likely resolve within a year. Potency is not possible naturally due to non-nerve sparing and contenence is poor now, but I'm doing Kegels and praying. Hope I'm done with this thing, though using the Sloan Kettering MSK nomogram, reoccurance is statistically pretty likely! In the meantime (once I stop peeing on everything), I want to get back to living my life! I'm wondering if those who have had reoccurance following RARP, did your pathology show clear margins?