Exocrine Pancreatic Insufficiency and Gastroparesis

Posted by susanh824 @susanh824, Jun 3, 2023

Unintentionally lost about 80 lbs without trying. No real symptoms except lack of hunger. Now, within the past few months, I have been diagnosed with EPI, then with gastroparesis. Is it considered common to have both of these, or do I just have bad luck? I should note that I had gastric bypass over 20 yrs ago, and do not vomit with gastroparesis.

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grannydee | @grannydee | Jun 4, 2023

EPI has so many different symptoms…
I have never had the gastroparesis symptoms but each person that has it can be very different.
The weight loss is the most common symptom in my opinion. Hopefully someone here can help. Don’t give up!
It’s a frustrating disorder, but I would encourage you to see a registered dietician that is familiar with EPI. Many insurance companies will cover a RD consult if your Gastro Dr prescribes it!
You CAN get better!

susanh824 | @susanh824 | Jun 4, 2023

Thanks Grannydee!

I am on a Creon assistance program for the EPI. And I think my former RNY bypass may be the reason I do not vomit from gastroparesis, even though I have a severe case. I have consulted with a registered dietician. The recommended diets for the two diseases are very different, so she has been very helpful as far as navigating that. I just can’t figure out how I came down with them both!

Susan

phillybomber | @phillybomber | Jun 5, 2023

In reply to @susanh824 "Thanks Grannydee! I am on a Creon assistance program for the EPI. And I think my..." + (show)

Susan I’m finally seeing my GI professor today I need prayers that he will admit me, I seen him last in January and he’s so busy my appointment he wanted to see me in April and I was on priority waiting list but 150 ahead of me. He has written books and is appear of Mayo Clinic but he is in Philadelphia Temple Hospital Digestive Disease and I sent him 3 messages through MyChart his name is Dr Henry Parkman, affiliated with Mayo in Fla. I need prayers I’m extremely distended I can’t breathe and In my message I was begging for help
It’s one year and I’m still not diagnosed he wants me to get Gastroparisis test SIBO test but I’m so weak I am filled with fluid my entire body and I’m in such a bad mental state that I just want to know what is wrong with me, I seen every specialist for every organ and no one knows what is wrong and bc they see Parkman name on my reports they say he’s the best and I can’t help you but to get an appointment with him is not easy but I’m asking please 🙏 pray today that I asked him let’s do these testing I don’t have the strength to go back and forth I’m absolutely physically mentally emotionally drained besides haven’t had solid food since Nov 2022 only bone broth but I did tell him I was considering going to Mayo b4 I met him in Jan, look him up plus he wrote bout 10 book on Gastroparisis and motility he’s brilliant I will say that very essentric but they usually are. Stay well my friend. I’ll be praying for you

susanh824 | @susanh824 | Jun 5, 2023

In reply to @phillybomber "Susan I’m finally seeing my GI professor today I need prayers that he will admit me,..." + (show)

Grannydee,
I am so sorry that things have gotten so much worse for you. I pray the specialist will see, and help, you. You most likely have gastroparesis, but I don’t see how they can do the test unless you are able to hold down some scrambled eggs for four hours Has anyone prescribed Reglan? I couldn’t take it due to an adverse reaction, but it is the drug most commonly prescribed for gastroparesis. Just be sure you read the black box warning.

Hugs and prayers!

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