Esophagectomy: What is life like Afterwards?

I had t2 tumor between stomach and esophagus removed. I am doing great.
I can give you lots of tips and feedback and can speak if you wish. Just make sure surgeon is best in your area. Mine is in Miami if it helps.

@rselicmeister hang in there. you are a wonderful person

I have stage 4 which is considered inoperable and incurable. Much time was wasted in ruling out cardiac causes for my pain, and the swallowing difficulties did not manifest until early spring. By the time I saw my gastroenterologist i was unable to eat and sometimes unable to drink. I got my diagnosis- stage 4, spread to spine and that evening went to the ER due to extreme pain and dehydration. They admitted me and 2 Days later got a G tube so I could get nutrients. I’m 5 “ 7” My regular weight is around 135 and I bottomed out at 115 lbs about a week after being discharged. I had 10 radiation treatments ( to address the spinal pain) and while it had no effect on the pain, it caused esophagitis that was quite miserable and is only now really improving. I just finished my 3rd round of chemo
( 3 to go) which now included 2 mutation -targeting immunotherapy's drugs that might have life-saving effects.
Thus, the past few weeks have been the worst because of the esophagitis, continued severe pain, and chemo side effects. I’ve started to gain weight again albeit slowly, and am now able to slowly drink fluids. There are a few days following each chemo cycle where the side effects really wipe me out, but I’m now able to work 4 hour days a few times a week. I’m hoping each day for signs of improvement which I would judge by a decrease in pain, and a possibility of swallowing
“ cream of “ soups and then sautéed foods ( such as wet mashed potatoes with gravy) Having not eaten by mouth since late May, I am building quite a food wish-list.
I want to experience an improvement that shows real tumor shrinking ,
considering the fact that chemo and immunotherapy are all I’ve got - surgery being off the table.

I don’t expect any new pet-scans or another endoscopy until the 6th and final chemo is done.

Best of luck to those on this thread who are suffering with EC . Keep strong in faith

6 chemo and 25 radiation, Christmas of 2024,surgery April of 25...small tumor stayed in esphogus, treatment, s took care of it but everything and everyone, said surgery, 65 years old,doing ok surgery is deff, life changing eating good no feeding tube,lost 20 lbs,non....I mean non stop stop GERD,acid reflux, sphinx valve gone its like non stop volcano down there,don't bend over very long...adenocarsonoma,elevated bed cost under $2000 is deff a nessisary, feel very fortunate, even tho its my private hell,after reading about so many on hear,love and prayers to everyone on hear....willing to answer any questions anyone may have.

6 chemo and 25 radiation, Christmas of 2024,surgery April of 25...small tumor stayed in esphogus, treatment, s took care of it but everything and everyone, said surgery, 65 years old,doing ok surgery is deff, life changing eating good no feeding tube,lost 20 lbs,non....I mean non stop stop GERD,acid reflux, sphinx valve gone its like non stop volcano down there,don't bend over very long...adenocarsonoma,elevated bed cost under $2000 is deff a nessisary, feel very fortunate, even tho its my private hell,after reading about so many on hear,love and prayers to everyone on hear....willing to answer any questions anyone may have.