Esophageal Cancer: Anyone else?

Posted by puprluvr @puprluvr, Jan 29, 2019

I’ve completed 15 chemo treatments and 1/25 proton radiation treatments for my stage 2 esophageal cancer. I’m jst looking for helpful advice from anyone going thru this past or present. I’m a bit frightened wondering how this treatment will affect me.

Interested in more discussions like this? Go to the Esophageal Cancer Support Group.

@armylife

My husband has adenocarcinoma and he starts chemo and radiation. 28 sep he sees the surgeon In Nashville 22 sep. Port in place. Findings 3 aug. Don't know until talks to surgeon as to surgery after 6wks radiation and chemo or when it will be. Lower mid esophageal junction of stomach. Seems it is not outside. Feedback and suggestions as we go through this. He has started to become more hoarse. We are ready to fight this.
Thanks everyone

Jump to this post

Welcome, @armylife. As you and your husband start this new (and unwanted) journey with esophageal cancer, I bet you have loads of questions. Well, we’ve got loads of members in the esophageal cancer group who have been there and can share their experiences and tips with you. To help get you connected, I moved your message to this existing discussion:
– Esophageal Cancer: Anyone else? https://connect.mayoclinic.org/discussion/esophageal-cancer-2/

You can read through past posts and connect with fellow members like cancer like @puprluvr @dtaylor75 @slisa729 @rexsan20 @survivorsuz @pellaw @patricia1952 @advocatepaul and another new member @miggy.

Armylife, as you prepare for the upcoming consult with the surgeon, what questions are you preparing to ask?

REPLY

My husband has adenocarcinoma and he starts chemo and radiation. 28 sep he sees the surgeon In Nashville 22 sep. Port in place. Findings 3 aug. Don't know until talks to surgeon as to surgery after 6wks radiation and chemo or when it will be. Lower mid esophageal junction of stomach. Seems it is not outside. Feedback and suggestions as we go through this. He has started to become more hoarse. We are ready to fight this.
Thanks everyone

REPLY
@kobzlee

My mum was diagnosed with stage 1 cancer of the throat yesterday. She is 87yrd and I am scared of her life if she is to go for the cancer treatment. Is there a possible way that she will make it through?

Jump to this post

Hello @kobzlee and welcome to Mayo Clinic Connect. I sure am sorry that your mother is going through this, and empathize with your feelings of being scared.

I have moved your post into an existing discussion on esophageal cancer to allow you to better connect with other members who have had experience going through their own journey, or supporting someone in their life life you are now with your mother. You can find your post here: https://connect.mayoclinic.org/discussion/esophageal-cancer-2/

Members such as @linda2007 and @lori57216 may be able to share more with you.

What is the diagnosis so far that she has received?

REPLY

My mum was diagnosed with stage 1 cancer of the throat yesterday. She is 87yrd and I am scared of her life if she is to go for the cancer treatment. Is there a possible way that she will make it through?

REPLY
@socalkelly

@linda2007 how did your surgery go? My husband had his esophagectomy on 7/29 and they couldn’t get clear margins after 3 resections. He still has microscopic cancer cells in his esophagus. They moved his G-Tube to a J-tube and he’s just now introducing clear liquids. He’s recovering fine but it’s a slow process for sure!
I’m hoping his next round of treatments are a little less impactful. Last round was pretty hard on him.

Jump to this post

My surgery is scheduled for September 13th. I finished my treatments (chemo and radiation). Had to wait 8 weeks for a PET scan and the results came back showing no cancer was detected. I have already done pre-ops. Now just waiting for surgery. Wishing your husband a speedy recovery.

REPLY

@linda2007 how did your surgery go? My husband had his esophagectomy on 7/29 and they couldn’t get clear margins after 3 resections. He still has microscopic cancer cells in his esophagus. They moved his G-Tube to a J-tube and he’s just now introducing clear liquids. He’s recovering fine but it’s a slow process for sure!
I’m hoping his next round of treatments are a little less impactful. Last round was pretty hard on him.

REPLY
@puprluvr

Hi Patricia,
My esophageal cancer was initially dognosed as stage 2 but my surgeon said if its in a lymph node-stage 3. I had one lymph node involved-my cancer was adenocarcinoma.
I had 5days a week for 5 weeks proton radiation and once a week for 5 weeks chemo.. the radiation shrunk the cancerous tumor so swallowing was better right away. The only side effects from the radiation was fatigue although it was gradual. I never got sick from the chemo as there were drugs to help with that.
I had surgery in April of 2019.
You're in the best Cancer treatment center in the world-don't give up-there is always hope. Hugs and prayers as you go through treatment. Barbara G

Jump to this post

Your story mirrors mine almost exactly!!!! Except the radiation, I had a terrible burn on my back which the Oncologist treated with Silver Salve. I am doing well except the acid reflux.
Be well,
Lori

REPLY
@dnrese99

My father is 68 and just last month had stomach pains we rushed him to hospital and they found blood clots in his lungs then saw the tumor at the bottom of his esophagus, they did the endo and said it was not a stage 4 they didn’t see any of the cancer through the linings , we then had the oncologist last week and she said it was stage 4 a and we are now waiting for pet scan on Friday , my father is NOT eating he says he is not hungry has lost so much weight , he’s not walking like they said he should , his stomach is just full he says . We can’t
Believe this is happening so fast but other then the acid reflux and weight loss he doesn’t have any other Signs yet but he’s not well . Please anyone can share their experience we are so scared to know what this pet scan will
Show this happened so fast

Jump to this post

Hi @dnrese99, you've come to right place to get support and tips from other patients and caregivers who have been there. This is happening so fast for you and your family. I bet you have plenty of questions. Ask away.

Let me introduce you to a few other members, like @puprluvr @patricia1952 @pellaw @socalkelly @advocatepaul @survivorsuz @linda2007, who either had esophageal cancer or are supporting a loved one with cancer.

To help you get to know the other members and ask them questions, I moved your message to this discussion.
– Esophageal Cancer: Anyone else? https://connect.mayoclinic.org/discussion/esophageal-cancer-2/

@dnrese99, I know you're frightened about what the PET scan will tell you. But of course you need to know what is going on so your dad can get the right treatments. Nutrition as you can see from the previous posts is often a concern with esophageal cancer. As others have mentioned, you may wish to discuss the feeding tube option. Has the care team talked about a feeding tube with your dad?

REPLY
@linda2007

Same here, except I have surgery next week.

Jump to this post

Thinking of you Linda as you prepare for surgery.

REPLY

My father is 68 and just last month had stomach pains we rushed him to hospital and they found blood clots in his lungs then saw the tumor at the bottom of his esophagus, they did the endo and said it was not a stage 4 they didn’t see any of the cancer through the linings , we then had the oncologist last week and she said it was stage 4 a and we are now waiting for pet scan on Friday , my father is NOT eating he says he is not hungry has lost so much weight , he’s not walking like they said he should , his stomach is just full he says . We can’t
Believe this is happening so fast but other then the acid reflux and weight loss he doesn’t have any other Signs yet but he’s not well . Please anyone can share their experience we are so scared to know what this pet scan will
Show this happened so fast

REPLY
Please sign in or register to post a reply.