Suspected Endometrial Cancer: Cervix won't open to do biopsy

Posted by debra54 @debra54, Feb 1, 2023

The lining of my uterus is thick so they tried to do a biopsy but my cervix would not open and they mentioned having a hysterocmy but I'm not sure about doing that without knowing if it's cancer or not.

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Uterus lining is thick and they can't get cervix open for a biopsy and want me to have a hysterocmy and I don't know if its cancer

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Before my endometrial biopsy they had me insert two pills into my vagina by my cervix and then insert a tampon to keep them in place. I can't remember what the pill was called but it was to dilate my cervix so the biopsy could be done.

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Hi Debra, I had one failed endometrial biopsy (very small, closed cervix), then another one at Mayo (same reason, valiant effort made by the provider), then a successful one done under anesthesia. In some cases the body relaxes enough with anesthesia that they can perform the biopsy in order to get a diagnosis. That was my case, and I was diagnosed with endometrial cancer. I proceeded with a total abdominal hysterectomy (including ovaries: I was 58 and post-menopausal) and also received both radiation and chemotherapy. So my long response means to ask: how many times have they tried? I understand your concern about having a hysterectomy when you don't have a complete and/or accurate diagnosis of cancer. Let us know how you're doing, okay?

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I also had stenosis of my cervix, and my doctor couldn't get a biopsy. I didn't want a D&C, so he prescribed mithepristone (sp?) -- one tablet placed vaginally, which did the trick, and I got an easy biopsy.

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Any info on serous stage. Understand very small,percentage is serous.

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@valentinaz

Hi Debra, I had one failed endometrial biopsy (very small, closed cervix), then another one at Mayo (same reason, valiant effort made by the provider), then a successful one done under anesthesia. In some cases the body relaxes enough with anesthesia that they can perform the biopsy in order to get a diagnosis. That was my case, and I was diagnosed with endometrial cancer. I proceeded with a total abdominal hysterectomy (including ovaries: I was 58 and post-menopausal) and also received both radiation and chemotherapy. So my long response means to ask: how many times have they tried? I understand your concern about having a hysterectomy when you don't have a complete and/or accurate diagnosis of cancer. Let us know how you're doing, okay?

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Can you tell me more about your radiation and chemo? We seem to have a similar story so I am curious how treatment went for you. I start my treatment on Monday.

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@tjperry

Can you tell me more about your radiation and chemo? We seem to have a similar story so I am curious how treatment went for you. I start my treatment on Monday.

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Goodness! Monday 😬 I had three pelvic radiation treatments about six weeks after my surgery (over a week's time). Then I had six treatments of carboplatin and paclitaxil every three weeks (about four and a half months). For me, the radiation was negligible in terms of side effects, but that was not the case with chemo. What is happening on Monday? Will you be at Mayo? Will someone be able to come with you?

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Wow, I wish I had known that there was a pill that would dilate your cervix last summer when my biopsy failed. Might have saved the month it took to schedule the hysteroscopic D&C. I wonder why my Dr. didn't suggest that. Grr.

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@valentinaz

Goodness! Monday 😬 I had three pelvic radiation treatments about six weeks after my surgery (over a week's time). Then I had six treatments of carboplatin and paclitaxil every three weeks (about four and a half months). For me, the radiation was negligible in terms of side effects, but that was not the case with chemo. What is happening on Monday? Will you be at Mayo? Will someone be able to come with you?

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I had my trial run for radiation this morning. Everything lined up well and now I just need to drink a bit more water. She said they would have done the therapy but my bladder was only 75% full.
On Monday I have my first radiation and then right after I have 3-5 hours of Cisplatin. My husband is coming with me but that will be the only time he is allowed due to COVID.

Are you willing to share more of your experience with chemo? And anything that helped you along the way. I know everyone has a different experience but I am interested.

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I'm happy to share a bit, with your caveat that everyone indeed has a different experience (not to mention that you'll be receiving Cisplatin, whereas I had Carboplatin). What I found most helpful were a few things: knowing about common side effects; the fact that little was expected of me at home except getting treatment, meaning I had lots of time to rest and recover; and allowing myself to follow my food preferences/cravings. I found myself wanting things that I hadn't really eaten since childhood: Raisin Bran, grilled cheese, tomato soup. It also took me awhile to understand that in my case, nausea showed up as the inability to tolerate many smells or odors; because of this, I didn't use the anti-nausea medication (because I didn't get see that was a sign of nausea!) as soon or as frequently as I could have. I'm glad your husband can be with you! Mine was, too, and I found his presence very reassuring. Good luck, and I'll be thinking of you Monday.

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