Emotional aftermath following breast cancer treatment

Posted by rhongirl @rhongirl, Aug 23, 2022

While I was diagnosed in Dec. 2019, chemo, cancer surgery, and four more surgeries took place over the next 2 1/2 years (one of which was a second cancer surgery). I'm 6 weeks out from my last surgery, feeling somewhat normal physically, but wading through the emotional aftermath. "What just happened to me?" I told my husband that I've spent the past 2 1/2 years trying to stay alive - and I'm exhausted. Exaggerated emotions with up-and-down mood swings. . . I find myself yearning for that sense of emotional equilibrium I had before this all began. I'm doing my best to give myself time for this part of the healing - but I find myself weary. Family and friends look at me like I'm fine now, and the trauma has passed - but the truth is, I am not fine on the inside. It's as if my body is trying to reboot emotionally, and its short-circuiting a bit. I am so goal-oriented. . . if I just had that "magic" date of when everything would be normal again, I could focus on that; but it doesn't work that way. I have to be patient with this portion of the healing - and I'm finding that hard. What are others' experiences with this? How long does it take for your emotions to settle from the trauma of breast cancer?

Interested in more discussions like this? Go to the Breast Cancer Support Group.

@lisman1408

Hoping you can read the article below that I posted, by just clicking on it. If not, try a copy and paste into your browser.

I’m glad you’ve joined us on this website message board. We’re all in this together and the support from everyone is wonderful!
https://www.refinery29.com/en-us/2017/10/176194/life-after-breast-cancer-survivor-story

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Thank you, this article is perfect. I am currently in the middle of chemo for my 2nd round of cancer (did not have to have it the first time, only (only!) a mastectomy and radiation) and I'm having a hard time with it. I'm saving it so I can pass it on when I feel up to it.
Thanks again.

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@clh71

I also had a huge hematoma. I felt horrible. It took a very long time for it to go away. I think depression and sadness goes along with it all. Your body goes through a huge change. Be kind to yourself. Honestly, I think the only way I got through it was because of my husband and friends. They were like my cheerleaders. My surgery was in 2023. My risk of getting breast cancer again is high. Do you have a very good friend to talk to?

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In addition to my husband, who has been very empathetic and encouraging, almost all of my friends at the gym are guys, but a couple I've shared my bad news with, including the owner of the gym, have been encouraging as well. Oddly, the few female friends I usually chat with are sympathetic to a degree but seem like they don't want to talk about it.

I'm wondering if anyone here can advise me on how to scout out a counselor who might be helpful. Where should I begin my search?

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My emotions have been all over also. I had so many shocks, or surprises as I went through the phases of diagnosis and finding it aggressive enough for chemo. Didn't start out that way. The AI drugs, I think, have an emotional effect on me too. I have very recently confided with a trusted friend and have talked with a psychologist. I plan to continue with that for a while. I felt better after the counselor visit. You aren't alone. Don't hesitate to reach out for some help.

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@lznielsen

I completely agree with the cancer PTSD. I had IDC in 2021. I was told it was caught very early and that my chance of recurrence was very, very low. I was told to be thankful, and I tried. Fast forward to 2024 and I was diagnosed with bone mets. Stage IV cancer is rough, its lonely and treatment has become a full time job. Although I grieve the life I no longer have, I am thankful for every additional day I am given.

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@lznielsen, fellow members have written about PTSD and cancer in these related discussions too:

- PTSD and learning to cope living with cancer https://connect.mayoclinic.org/discussion/ptsd-learning-to-cope/
- Facing Cancer Recurrence, PTSD & Acknowledging Mental Health https://connect.mayoclinic.org/discussion/facing-cancer-recurrence-ptsd-acknowledging-mental-health/
- Likely metastatic lobular cancer: How do you deal with fear, PTSD? https://connect.mayoclinic.org/discussion/most-likely-mbc-ilc/

I believe grief and gratitude can co-exist. I'm glad you're here to share your experience.

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@tonysmom

I'm the total opposite. I am over weight and don't exercise. I'm 77 and just went for my first mammo after lumpectomy and all is clear. I think the best thing to do is not stop your socializing and continue as though nothing has changed. You will come though this like hundreds of other women have. It's not a death sentence anymore. Best wishes to you.

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P.S. I went for my post op diognostic mammo and blood work. Had my surgery in Sept. Everything looks good. All clear. I'm going to believe it stays that way.

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Hi @rosa1935 - Similar to you, I have experienced a wide range of emotions during breast cancer diagnosis and treatment.

I definitely grieved. Also, I found it emotionally and mentally challenging to make such important medical decisions so quickly and also accept that my life and health had changed so profoundly.

Most helpful was an oncology social worker who was part of the hospital system where I was treated. We did telehealth almost every week.

And, I was inspired by the women on this site. Also my local Gilda’s Club offered helpful webinars.

Be kind to yourself. I also realized that accepting my feelings was easier than fighting against them. I journaled every day. I use the Waking Up app for meditation, which helped ground me.

(Antidepressants were also helpful!) All hands on deck for help!

Best wishes! You are not alone.

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There is no answer to your question, I’m afraid. I found my lump March 2021 and 4 years on I can still get emotional even when I see other people with cancer, never mind myself. I’m due , 12 May for my 4th mammogram after breast cancer and I feel sick just thinking about it. Like you, on the outside, I’m feeling and look ok so my family think I’m ok. But inside, I’m not ok. But I am better than I was. I had counselling from July 22 - oct 22 and this was a game changer for me. I was becoming isolated and was suffering badly from panic attacks. I still get these attacks but I can control them now. Xx

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I just reached out to a counselor I have known for many years. One hour long phone visit helped and I will continue on with him to find ways to cope better. I am weepy a lot, so tired, and don't have any family near. I got to the point that I felt my friends didn't particularly want to hear anything else about this journey of mine with breast cancer. I was given Anastrozole after chemo, with side effects. Switched to exesmestane. Yes, side effects but less so. I don't feel normal. Other health challenges have crept in too. Aging stuff. (I am grateful for so much though.) The drugs can affect mood so I suggest finding someone with whom you are comfortable to have a talk to pour out your feelings. Friend or counselor. I hope those of you checking into Bustedtank can find something that you like. I am almost 85, shrunk to 4'11" and have lost my waist. Therefore bras with a band just roll up and are uncomfortable. They also ride up too high under the front part of the armpit and rub and annoy terribly. There was a hint posted to sew down the armpit area. I had a single mastectomy. The search for bras in still on!

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Wow! I am SO glad I am on Mayo Connect and learning from all you women!
May 12, 2025 is my bilateral mastectomy. Because of many other health issues, including heart disease I will not be having implants done. Cancer caught early, Thank God, but in both breasts...& I am high risk for a reoccurrence so off with both breasts. Of course, I am mourning the loss of my breasts. I was shocked to learn I had BC...always so focused on my heart health. When I saw pictures of women who went "flat" I was initially shocked! I feel better now but I am wondering how I will feel emotionally post surgery & I look in the mirror. My goodness...how could you not feel hit by a ton of bricks?? Yes, the cancer is gone (pray so). My surgeon told me in 2-3 yrs. my stage 0-1 would metastasize...I was thinking a DMX was overkill but she set me straight. 4 lumpectomies were not reasonable & PLUS b/c of my heart disease I could not take the chance of scar tissue from radiation affecting my heart. My heart is already damaged. I am 70 years old, with total support from my husband, son and friends. I have so much to be grateful for. Thanks ssmab for that heads up re: prosthetics, I will look into bustedtank.com. Health & Peace to All!!

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@nakedreader

Thank you for sharing your experience. I'm only 3 weeks out from a lumpectomy (I was stage ZERO!) but am on an emotional roller coaster. I'll turn 78 in a few weeks, go to the gym every day, don't eat crappy food, and always considered myself to be in the best of health. Nonetheless, I was diagnosed with breast cancer by my last mammogram less than 2 months ago. It's common to hear the saying, "laughter is the best medicine", but on the 2nd night following my surgery, I watched a Woody Allen movie (Manhattan Murder Mystery) that was SO funny that I literally laughed until my sides split -- at least my stitches did, and I wound up with a big hematoma and my breast looked like I'd been to a body-painting booth at a street fair: every color in the rainbow, and it filled up with blood until it was a couple cup sizes larger than my other breast. And the pain, once I got up from watching the movie, was excruciating. I'm thankful that the cancer was caught so early, but in addition to the physical pain I'm still experiencing, at times I feel overwhelmed by a deep feeling of sadness and depression. This is totally unlike me. I've been having nightmares at night and have been combatting them with sleep meds and Tylenol. I feel like I've been walking around on under a dark cloud. I've started going back to the gym on a daily basis but, also unlike my normal self, feel like I want to withdraw from others and not socialize as I would normally do. I'm just wondering how common this depression & sadness hangs around and the best way to overcome it. Any helpful suggestions would be appreciated.

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I also had a huge hematoma. I felt horrible. It took a very long time for it to go away. I think depression and sadness goes along with it all. Your body goes through a huge change. Be kind to yourself. Honestly, I think the only way I got through it was because of my husband and friends. They were like my cheerleaders. My surgery was in 2023. My risk of getting breast cancer again is high. Do you have a very good friend to talk to?

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