Dysautonomia (Autonomic Dysfunction): What treatment helps?

Hi @flaherty2185, there are several discussions related to Dysautonomia (Autonomic Dysfunction) that you might wish to check out.

- Autonomic Dysfunction https://connect.mayoclinic.org/discussion/autonomic-dysfunction-1/
- - Dysautonomia: https://connect.mayoclinic.org/discussion/dysautonomia-1/

See more: https://connect.mayoclinic.org/search/discussions/?search=Autonomic%20Dysfunction%20

@flaherty2185, what symptoms are you dealing with?

Suggest taking a screening test questionnaire you can find online that
has a point system rating the degree of your problem.
It is the COMPASS-31 . If your score is elevated into the teens then your
autonomic dysfunction is significant and deserves further investigation.
Dysautonomia can occur with some types of malignancy. There are meds
for symptom relief.

Thank you. I did a tilt table and BP dropped to 60/40 after 30 minutes. My cardiologist has prescribed a med to help control BP.
I will do the COMPASS 31 test

@flaherty2185
Sorry to hear that you needed chemo and have this diagnosis now. It can be challenging to deal with.

Here is what I learned about Dysautonomia and treatment options:

Dysautonomia encompasses a range of disorders affecting the autonomic nervous system, leading to various symptoms. Treatment options can vary based on the specific type of dysautonomia and the symptoms experienced. Here are some common approaches:

Medications

Fludrocortisone: Helps increase blood volume and improve blood pressure.
Midodrine: A vasopressor that can help raise blood pressure in patients with orthostatic hypotension.
Beta-blockers: Can help manage heart rate and reduce symptoms of tachycardia.
Ivabradine: Specifically targets heart rate without affecting blood pressure.
Antidepressants: Certain types can help with symptoms like fatigue and anxiety.

Lifestyle Modifications

Increased Fluid and Salt Intake: Drinking more fluids and increasing salt consumption can help expand blood volume.
Compression Garments: Wearing compression stockings can improve blood flow and reduce pooling in the legs.
Exercise: A tailored exercise program can improve cardiovascular fitness and help manage symptoms.
Dietary Changes: Eating smaller, more frequent meals can help prevent postprandial hypotension.

Physical Therapies

Physical Therapy: Tailored exercises can help improve strength and endurance.
Occupational Therapy: Can assist in adapting daily activities to manage symptoms better.

Alternative Therapies

Cognitive Behavioral Therapy (CBT): Can help manage anxiety and depression associated with chronic illness.
Acupuncture: Some patients find relief from symptoms through acupuncture.
Monitoring and Support

Regular Follow-ups: Ongoing monitoring by a healthcare provider is essential to adjust treatment as needed.
Support Groups: Connecting with others who have dysautonomia can provide emotional support and practical advice.

Each treatment plan should be individualized, considering the specific symptoms and needs of the patient. It's essential to work closely with a healthcare provider to determine the most appropriate options.

Thank you so much for this information. At this point am under doctor's care and have been prescribed Fludrocorizone. I will follow up on your other advice.

I wish you well with your journey.

I was diagnosed with this audio a long time ago. They said I had pots postural tachycardia syndrome and then they said I had the one that were my blood pressure dropped and my heart rate dropped too. They put me on a blood pressure called coral no, they tried Florida enough, but I was allergic to it. They tried all the medication. I tried salt 🧂 pink salt is the best salt you can get. hard record a zone is a good medicine to help keep blood pressure up. I’m on out to help keep my blood pressure up cause I can’t take a lot of other stuff because I’m allergic to a lot of medication. I have a lot of other cardiac stuff around me and a lot of other issues, but this was the one Diagnosis they throw they threw at me a lot of times when doctors can’t figure out they are starting to throw the diagnosis out at people now.but I threw it up. Probably drink Gatorade or Powerade helps a compressive socks or compressive stockings or compressive tights her blood pressure get up slowly when you stand up try swimming if you can in the morning try to get one of those exercise bikes to exercise like do peddling like 10 minutes a day a couple maybe there is no magic trick to it. It takes time and effort it might take some time and effort. Hopefully I’ll go away but sometimes you just get used to it sometimes you just you’ll have ups and downs.

Thank you!

There is a book called a painting phenomenon. It is on Amazon. You might want to try to buy it. It is a good book. It helped me a lot to understand the different types of dish audio a different treatment. I have a different stuff from neurological to cardiology I’m sorry about your cancer. I hope this book will help you a lot.