Don’t want to lose anus
New member. Just received diagnosis with tumor 1cm from sphincter. Has anyone had a tumor shrunk and removed without losing their anus/sphincter and ability to poop normally? Any hope at all?
The idea of losing my body parts and changing my life forever, colostomy bag and whatnot as a single mom in her 40s is excruciatingly scary and depressing. Afraid of how I will manage chemo as a single mom but even more how to feel whole.
Desperate to hear hope that I might not lose ability to poop normally.
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Please do not let that %^&* even touch you. You are the patient and YOU make the decisions as to what you want to do with YOUR life. No body even doctors need to treat people that way Run from this jerky. I too am a anal cancer patient just starting chem & radiation with hopes to be done by Halloween. I started with a positive Cologuard to colonoscopy with an appointment with a rectal surgeon. But each test that they did they came back with the results a month later At the rectal surgeons appointment she asked if she could do a biopsy I said sure lets find out what this is Can back positive but then blamed me in her report that she went over her time allocation. But the cancer was contained at this point Surgery day set up get to the hospital & procedure was cancelled as time had been moved up. Never a call or nothing if such & such time would work. I left her hanging with this game of hers. And then they had the gall to call me & wanted to repeat all the tests I had just done. Hospital was just looking for money the heck with the patient After 5 months of being kept in the dark this poly now is cancer all because of the 1st hospital that kept dragging me along but never keep one informed
Then went to Milwaukee Wi oncologist & radiologist were great gave good % of beating this. Saw the surgeon there And she said go die or a bag. Tried to explain to her my life style would not work with a bag heavy equipment & large animals I work with Did talk to someone that had a bag & was just a piece of cake his life style was pretty quite to my work style And insisted once I had another MRI she could not tell me the results until 12 days later but her nurse could tell me the same results the next day. Boy that made sense
SO I said to heck with this group & went to Mayos What a difference in how a patient is treated. Their goal to help people to live not told to go die I know this is long but PLEASE get yourself to a real cancer center. Mayos in Minnesota ,Sloan Kettenring New York or MD Anderson in Houston
It's your life their can suggest but I made the decisions not some knife happy surgeon and you can do this too I was told I am cranky but I call it standing up for my rights. You are the patient you get to have the final say
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9 ReactionsHi Colleen ,
Sorry for the late feed back ,
see examples examples ,
I was worried that i will not be able to do cycling and thankfully i did .
I was also worried that i will not be able to take shower without carefully thinking about the stoma , it turns out it's totally ok .
Camping activities for longer hours , I doing as i was before .
Running , I am running with a belt on .
Hope this will help
thanks
Yousif
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3 ReactionsYes and stool softeners.
Did they suggest laxatives
It was a little rough starting a few days after the surgery. Some pain using the restroom and be sure to follow no lifting rules for even longer than they say. I’m not sure what happened with me, but I ended up with an ulceration that was probably due to the surgery and then chemo and radiation after that. The surgery recovery wasn’t as bad as the chemo/radiation recovery, as I did those at the same time.
Having surgery in your anus is not the most comfortable. I had some minor bleeding and very sore.
You’re swollen and sore and difficult to have a bowel movement. Ended up with a thrombosis hemorrhoid. Very painful and they could not lance because I had just had surgery. Took about 2 weeks to be able to go back to normal activities.
How was procedure and after you went home
Has was the transanal procedure? Why was recovering difficult
No. My surgery was just supposed to be to remove a nodule but when she got in there she realized it’s was attached to a tumor into the sphincter muscle and so she removed it and reconstructed. My tumor was small. Recovery was difficult, but she got it all with clean margins and I am so grateful. I have had my second scan and I’m clean.