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Does your Artificial Urinary Sphincter AUS800 leak?
I know there are a couple of guys that have helped me in the past, My AUS has been activated for only 2 months. It took a few months to heal before the doc would activate it. Do you leak when you sneeze or cough? Can you feel your cuff on your bottom? When I sit down on a hard surface, it seems to activate the cuff and I leak. Is your cuff activated by anything else? Doc used a larger cuff to start, and will probably have another surgery to install a smaller cuff? Has anyone had another surgery to change cuff sizes? Usually, I only need to pump it once before I start to pee. How many times do you need to pump your cuff? Thank you for your help. Very new at this .
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Thank you. Helps me alot. Some leakage will happen. Do you leak if you sit on a hard surface like a wood stool or bench? I volunteer 3 times per week at the clinic and can sit on a stool. I leak when I first sit down. I need to be careful when sitting.
Thanks, Colleen. I've had my AUS for almost four years. My experience is similar to scullrower. It took me several months to heal and become accustom to using the AUS. I did not need to have a second surgery to address the cuff size. Yes, the valve is sensitive, so I need to make sure I'm sitting on a flat surface. When I have caffeine or alcohol, my bladder is more sensitive and causes leaks. I always wear a light pad. I'm on a plane several times a month, and lifting my suitcase into the overhead bin can cause a leak. I have had to learn to Kegel before I lift or stand to help with the leaking. I did have my AUS during my radiation, which may have impacted the strength of it. Now for the good news: the AUS allows me to live my life normally. If you'd like to discuss in further detail, I'm happy to connect virtually or by phone, just private message me. I wish you all the best.
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4 ReactionsI have had a couple of urethroplasty surgeries to repair bad urethra. Last one to install aus doc had to wrap a piece of muscle from my lower penis around urethra. Muscle will atrophy and shrink causing loose cuff. Another surgery this summer to put in a smaller cuff and see how long it will last
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1 ReactionNot yet. But I think I will because I can't get cathetered. Probably good idea? I could not find the old posts. Thank you
I had confidence in my surgeon to determine the correct cuff size. After a while pumping comes natural. My AUS was very sensitive. Very little pressure does the job. I’ve gotten use to urinating sitting down. I’ve had the sphincter for eight years. I’ve had problems with overactive bladder which can sometimes force urine through the AUS. I still use light pads to catch leaks. The sphincter has helped me a lot.
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2 ReactionsGood questions, @budisnothome. I'm tagging fellow members like @seamayofan @jonbuuck @scullrower @alw @sam60, who have experience with an artificial urinary sphincter and can share their tips and experiences regarding leaking, cuff sizes and pumping.
I have a question for you too. Did you get a medical bracelet indicating that you have an AUS?