@moonshinecat6: All of us have looked, been advised, tried every cream & lotion, made others millionaires by buying everything in the marketplace that touts a Neuropathy Cure, seen many gurus with “the answer” to our painful condition, bought many exercise machine or procedure that insures relief; however, we will hope to our dying day that “something” will deliver us from the incessant pain, and weakness that drives us to inability to function or move as we once did.
To answer your question… well if we are taking a census I vote “NO”.
@moonshinecat6: All of us have looked, been advised, tried every cream & lotion, made others millionaires by buying everything in the marketplace that touts a Neuropathy Cure, seen many gurus with “the answer” to our painful condition, bought many exercise machine or procedure that insures relief; however, we will hope to our dying day that “something” will deliver us from the incessant pain, and weakness that drives us to inability to function or move as we once did.
To answer your question… well if we are taking a census I vote “NO”.
The neurologist told me no but it does get worse. It moves to anywhere there are nerves. I also have cardiac autonomic neuropathy, severe axonal sensorimotor peripheral polyneuropathy, small fiber neuropathy, and dysautonomia. Last year diagnosed with CIDP. It moved into my bladder and my body doesn’t regulate body temperature, my blood pressure goes up and down along with bradycardia/tachycardia. (Heart beats too slow or too fast.) I don’t feel my legs or arms. I do have tremors from the motor neuropathy. On the upside the IVIG has been working. I am on Panzyga and can finally write again. My hands shook so bad I couldn’t sign my name. I have been on it for a year. Mine is caused from autoimmune problems.
I started on the treadmill holding the sides, eventually I started biking and walking outside in addition to weight resistance training. After years I found that my coordination and balance have improved to near normal. ( no affect on the tightness or night pains) . This is at a level of averaging 9 miles and over 20k steps per day. The minute I take any time away from this routine , bam I go right back to where I was with bad coordination. No supplements or gabbapentin do anything for me. I have not focused on diet, but I mostly avoid junk and fast food. But nothing I have tried has completely masked the symptoms.
John, Volunteer Mentor | @johnbishop | Feb 12 8:15am
Hello @moonshinecat6, I would like to add my welcome along with the other members here and sadly I agree that there is no magic cure with a few exceptions based on what might be causing the neuropathy. If it's caused by nerve compression and there is a surgery fix, that may alleviate the neuropathy symptoms and be a cure. It pays to be your own advocate and learn as much as you can about your neuropathy condition/cause and what treatments are available that may provide some relief...which I'm pretty sure is what brought most of us to join Mayo Clinic Connect.
I am of the mind that a better answer to this question of neuropathy going away might be, "Not yet". There are always studies, trials, and such going on. A breakthrough may be just around the corner. Of course we who are older and afflicted may never get to see around the corner. But, we should never stop searching. What we do today may help the younger generation. Neuropathy is something I had never even heard of until about two years ago. Now I am struggling with severe pain, tingling, burning that has not been touched by meds or my pain pump. I truly hope that some treatment comes along soon that will give at least some relief from this terrible thing that robs of us of our joy.
I keep reading about this awful condition which I have with pain and burning in my legs, and nothing cures it. Resignation to it makes me feel like giving up but I won't. I walk, have changed my diet and take ALA and Magnesium glyconate. Use CBD on my feet at night and wear socks. Not a charming bedtime attire but its helping so far!
It did.
It started in my legs in 2011. Didn't know what it was. Then it went away completely for 11-12 years.
Now it's in my legs up to the knee. I have a suspicion that it's creeping upwards, seems to be about mid-kneecap.
I doubt it will go away again.
But then, I don't know what caused it in the first place.
Might have been ABs. Or not.
I would say that if it goes away, you're very very lucky.
Hello to all,
Unfortunately, the bottom line is that currently there is no cure especially for those of us whose condition is idiopathic. The idiopathic state is the least studied and the pharmaceutical focus is not on it. We just need to learn to live and cope the best we can with all the changes that keep occurring with the condition and hope for the remote best, hopefully during our lifetime.
My best to all.
Take care and have a serene day,
gus
The short answer is NO, it's permanent. I've had to deal with my idiopathic neuropathy diagnosis for over 10 years now, and have no hope for any kind of effective treatment in the years that I have left to live with this F'ed up disease.
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@moonshinecat6: All of us have looked, been advised, tried every cream & lotion, made others millionaires by buying everything in the marketplace that touts a Neuropathy Cure, seen many gurus with “the answer” to our painful condition, bought many exercise machine or procedure that insures relief; however, we will hope to our dying day that “something” will deliver us from the incessant pain, and weakness that drives us to inability to function or move as we once did.
To answer your question… well if we are taking a census I vote “NO”.
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10 Reactions@dbamos1945 @moonshinecat6 Unfortunately, I second this. 😕
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3 ReactionsThe neurologist told me no but it does get worse. It moves to anywhere there are nerves. I also have cardiac autonomic neuropathy, severe axonal sensorimotor peripheral polyneuropathy, small fiber neuropathy, and dysautonomia. Last year diagnosed with CIDP. It moved into my bladder and my body doesn’t regulate body temperature, my blood pressure goes up and down along with bradycardia/tachycardia. (Heart beats too slow or too fast.) I don’t feel my legs or arms. I do have tremors from the motor neuropathy. On the upside the IVIG has been working. I am on Panzyga and can finally write again. My hands shook so bad I couldn’t sign my name. I have been on it for a year. Mine is caused from autoimmune problems.
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Like -
Helpful -
Hug
7 ReactionsI started on the treadmill holding the sides, eventually I started biking and walking outside in addition to weight resistance training. After years I found that my coordination and balance have improved to near normal. ( no affect on the tightness or night pains) . This is at a level of averaging 9 miles and over 20k steps per day. The minute I take any time away from this routine , bam I go right back to where I was with bad coordination. No supplements or gabbapentin do anything for me. I have not focused on diet, but I mostly avoid junk and fast food. But nothing I have tried has completely masked the symptoms.
-
Like -
Helpful -
Hug
9 ReactionsHello @moonshinecat6, I would like to add my welcome along with the other members here and sadly I agree that there is no magic cure with a few exceptions based on what might be causing the neuropathy. If it's caused by nerve compression and there is a surgery fix, that may alleviate the neuropathy symptoms and be a cure. It pays to be your own advocate and learn as much as you can about your neuropathy condition/cause and what treatments are available that may provide some relief...which I'm pretty sure is what brought most of us to join Mayo Clinic Connect.
There are many discussions in the Neuropathy Support Group that you may want to scan through to learn what others have shared - https://connect.mayoclinic.org/group/neuropathy/.
Have you been diagnosed with neuropathy? What symptoms bother you the most?
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1 ReactionI am of the mind that a better answer to this question of neuropathy going away might be, "Not yet". There are always studies, trials, and such going on. A breakthrough may be just around the corner. Of course we who are older and afflicted may never get to see around the corner. But, we should never stop searching. What we do today may help the younger generation. Neuropathy is something I had never even heard of until about two years ago. Now I am struggling with severe pain, tingling, burning that has not been touched by meds or my pain pump. I truly hope that some treatment comes along soon that will give at least some relief from this terrible thing that robs of us of our joy.
-
Like -
Helpful -
Hug
9 ReactionsI keep reading about this awful condition which I have with pain and burning in my legs, and nothing cures it. Resignation to it makes me feel like giving up but I won't. I walk, have changed my diet and take ALA and Magnesium glyconate. Use CBD on my feet at night and wear socks. Not a charming bedtime attire but its helping so far!
-
Like -
Helpful -
Hug
4 ReactionsIt did.
It started in my legs in 2011. Didn't know what it was. Then it went away completely for 11-12 years.
Now it's in my legs up to the knee. I have a suspicion that it's creeping upwards, seems to be about mid-kneecap.
I doubt it will go away again.
But then, I don't know what caused it in the first place.
Might have been ABs. Or not.
I would say that if it goes away, you're very very lucky.
Hello to all,
Unfortunately, the bottom line is that currently there is no cure especially for those of us whose condition is idiopathic. The idiopathic state is the least studied and the pharmaceutical focus is not on it. We just need to learn to live and cope the best we can with all the changes that keep occurring with the condition and hope for the remote best, hopefully during our lifetime.
My best to all.
Take care and have a serene day,
gus
-
Like -
Helpful -
Hug
4 ReactionsThe short answer is NO, it's permanent. I've had to deal with my idiopathic neuropathy diagnosis for over 10 years now, and have no hope for any kind of effective treatment in the years that I have left to live with this F'ed up disease.
-
Like -
Helpful -
Hug
2 Reactions