Does anyone recognize these symptoms?

Posted by martinleah @martinleah, 8 hours ago

Hello I am a 30 year old female. I have been chasing down a chronic illness for 6 years, acutely for 2. I will have periods of intense flare ups where I will be symptomatic for a week or so straight and then periods of time where I will be relatively normal.
Symptoms are:
Nausea, tingling in hands/legs and/face, Occasional loss of use of hands and face, low BP, high BP, high heart rate that will wake me up at night, pounding heart rate I can visibly see in my abdomen, bloating, constipation, inability to eat, confusion about where I am, stomach cramps and grumbling, violent chills even when warm. At its worse I lose consciousness for a couple seconds. I have passed out a couple times.

I have been to my gp who did blood work, a cardiologist that did a full body vascular ultrasound and heart ct and heart monitor for a month, an immunologist who ran blood work to check hormones and autoimmune diseases, a neurologist who did a brain MRI and EEG, a gi specialist who has done an upper GI scope and an abdominal CT and colonoscopy and feces culture. The doctors except my gi doctor said nothing is wrong with me and told me to stop coming. I have no idea where to turn next. Does anyone have similar symptoms?

Interested in more discussions like this? Go to the Neuropathy Support Group.

Have you seen a rheumatologist? That would be my next stop start checking for autoimmune.

REPLY

Have you considered being evaluated by a functional medicine doctor?

REPLY

Hi @martinleah, I would like to add my welcome along with @mrsr1234, @celia16 and others. Not sure if you have tried the Mayo Clinic symptom checker but thought it might be worth looking at for some clues as to what may be going on - https://www.mayoclinic.org/symptom-checker/select-symptom/itt-20009075.

Some of your symptoms seem similar to autonomic neuropathy. Here's some information from Mayo Clinic - https://www.mayoclinic.org/diseases-conditions/autonomic-neuropathy/symptoms-causes/syc-20369829.

It sound's like you've seen a lot of specialists without much success in finding a diagnosis. Have you thought about seeking help at a teaching hospital or major health facility?

REPLY

Find another doctor. Who does that!!!??!?! Have you had nerve pot muscles biopsy, evaluation CIDP or AIDP? Lumbar puncture? Don't get frustrated Advocate for yourself. Be encouraged. Autoimmune issues take a lot of research and testing, history and patience. Some of us don't get a differential diagnosis but able to treat and get handle on our symptoms.

REPLY
Please sign in or register to post a reply.