Anyone know a doctor in Georgia/Florida who treats mold poisoning?
Does anyone know of a doctor in Georgia or Florida that treats toxic mold poisoning with confirmed mycotoxins identified? I have a toxic mold report from an environmental company and mycotoxin reports. Mycotoxins present are: Ochratoxin A and Aflatoxin.
Current symptoms and ailments between myself and 3 additional family members: nonalcoholic fatty liver disease and gallstones (18 year old with no liver gallbladder issue history), slow or stopped GI, requiring stimulation for bowel movement (18 year old), elevated bilirubin levels (17, 18 and 24 year old - no history of issue), acute ‘stacked’ kidney stones, kidney infection and blocked ureter requiring emergency surgery (47 year old - no history of issue), rare hemorrhagic bladder infection with noted growth requiring surgery for ablation and removal/biopsy of growth, brain fog, fatigue, general malaise, chronic headaches, exhaustion, joint pain, sporadic inflammation and neuropathy, echogenic liver, nodules in right and left lungs (less than 5mm) but confirmed not present with Ct scan, a month before they started showing up). It would be great if Mayo-Jax had a doctor that could manage treatment for toxic mold poisoning but a doctor anywhere that doesn’t want to simply administer ‘allergy shots would be incredible! Thanks for any information!!
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@rhutch03
I took a quick look for toxicologists in Florida and Georgia and found this resource:
https://med.emory.edu/departments/emergency-medicine/sections/toxicology/index.html
In addition, you can go to webmd.com, and search under "Find a Doctor" for "Medical toxicologist"
Have you seen a medical toxicologist?
@rhutch03 Welcome to Mayo Clinic Connect! You’ve definately come to the right place! Especially with Sue @sueinmn answering you! How long have you and your family had these symptoms? And where is it ? House? Yard? Have you had treatment at all? I’m sure lots of members will chime in!
what questions would you like to ask a doctor?
Thank you so much for your time! A medical toxicologist locally, no. We have had a couple of televits with a Dr in OK. He is an Otolaryngologist Environmental Medicine Dr.
I believe with the continued development we either need to make the trip to OK or find someone closer, if possible!
@becsbuddy - thanks for the support!! A very large double trunked oak tree fell through our home during Father’s Day weekend 2022. Such an incredible amount of water flowed inside our house. Symptoms and issues began in less than a month and progressively got worse. It’s been very difficult to find medical help and support in this area of mold, mycotoxins I know we need medical support to properly and completely detox so we can begin to heal and recover. Anyone I’ve found so far in GA has been from a homeopathic approach.
I searched ResearchGate for people/research on mycotoxins and found a few references. There is no charge for this research portal, but one needs to sign up. One paper was a generalized one on mycotoxins, a lot of papers on their presence in food, and others. Because the papers are posted by the scientists, you can also ask them questions. There doesn't seem to be a lot of research on mycotoxins in people and it is complex, inhaling the mold can impact the pulmonary, immune, and other symptoms. Hopefully others can give you options for doctors that specialize in mold toxicity.
https://www.researchgate.net/publication/225879541_The_Challenge_of_Mycotoxins
I think my original answer wasn't very clear. Emory University in Atlanta has a Toxicology department, and a clinic where they see patients. Check here:
https://med.emory.edu/departments/emergency-medicine/sections/toxicology/index.html
Now that I see your story, have you had complete mold remediation in your home, or have you moved? If you have continued exposure to the mold, no amount of treatment or detox will be effective long-term. A long time ago, my niece was suffering from many unexplained symptoms. After a few years, when her Dad went to replace a window, he found the wall in her room completely invaded with mold - so bad the studs were rotting. He fixed the leak, sealed off the room, removed all of the offending material and replaced it with new, they took out all carpet, curtains, toys, bedding that may have been contaminated, and she moved back in. Her medical problems eventually faded away. (And he diligently checked the rest of the house for mold.
I had to be treated for mold in 2022. The doctor that knew how to test and treat is a Functional Medicine doctor. You can search for one by city and state at the website ifm.org - Institute for Functional Medicine. You can read about their education and what health issues they specialize in.
Best to you and your family.
In addition, your home needs eradication of the mold. If you want help finding a reliable company, there is a specialist I spoke with recommended by my doctor and I highly recommend him. It is easy to be taken by a company that does not know how to properly perform eradication. His name is Michael Schrantz and he is located in Arizona. But he will meet with you via zoom. I live in California. His website is environmentalanalytics.net. He is a most empathetic and kind individual and will treat you like family. And I recommend also to get your home eradicated as soon as possible. You cannot continue to live in a home and be successfully treated and cured of mold toxicity.
Wishing you all the best!
ditto gigi's comments
triage medicine
step one is always removing yourself from the danger
mold exposure has to end first
Leave the property, get to somewhere else.
Have someone else go back to the property and completely eradicate every possible slight trace of mold...
Don't even think of doing less.
People do less and then return and return and return again, until they finally realize they have to bite the bullet and do the entire thing, lock, stock and barrel.
There used to be Yahoo groups about mold illness.
There probably are some Facebook groups or Google groups.
But you do have to understand the practical joking kids have infiltrated every single last one of these groups...so the person you could be relying on for information, could easily be a 15 year old looking to practical joke a sick person....
In other words, you are hanging around a teen sociopath.
But, if you get in those groups and they reference actual medical doctors and actual medical clinics...and you can verify that in the real world...then you can glean real information, even in the middle of the storm of nonsense and nasty behavior.
There is a highly regarded natural healing clinic in Florida:
https://hippocrateswellness.org/
I don't think they treat mold...but maybe. But some of the practitioners there might know of places in Florida that treat mold illness.
A friend of mine went there. I know she had some toxic exposure and I believe at least part of that was mold.
She was an artist who bought surplus parachute fabric from the military. Unfortunately, it had been contaminated with mold and when she worked with the material, she got quite ill.
Thank you for the clarification and additional details and of course your time! Our home was gutted completely in 2022. All floors, all walls, all cabinets and counter tops were torn out and disposed of. All that’s left are the basic bones, ie: subfloor, rafters, frame, roof. When the tree landed it penetrated the roof and internally came into two bedrooms and two bathrooms (through the ceiling). We had indoor water features basically. There are parts of the home that cannot be remediated or removed without deconstructing the outer brick layer. Unfortunately, this is where we were left stranded. We have not lived or spent any time in our home since October of 22. Remediation equipment, fans, ozone, chemical treatment application, etc were put in place in November for a number of days for the initial remediation but the final remediation and re-test has never been completed because of the damaged parts that are difficult to replace without tearing down and starting over. Most unfortunate, was that the toxic mold test confirmation, completed by an environmental company, of the top 3 toxic molds being found in 100% of the airspace was not shared with the textile/restoration company so our personal ‘emergency’ belongings weren’t treated with toxic mold protocol, but only treated with water damage, mold/mildew protocol. These items were brought back to us in November ‘22 and I didn’t uncover that they weren’t treated until the end of December of ‘22. So - we did bring some of these items back into our ‘clean/clear of toxic mold living space’. The headaches, brain fog, lethargy, gastric issues, kidney issues, bladder issues, blood pressure issues, constant upper respiratory infection issues and general aches and pains continued. It did take a little while to stitch all the issues together and understand the common denominator for the acute onset of these issues was our exposure. Now, to get the right medical doctor to be willing to recognize this and then have the experience to treat properly for the long road to recovery has been insanely difficult and so far impossible. I’m not giving up but this devastating experience has not only made us very sick, but destroyed us financially. It is not possible to pay the functional medicine membership fees to gain access to the support or treatment for a family of 5. Further, what guarantee do I have that I have picked the correct ‘membership’ for recovery detox treatment in exchange for $10k-$20k? If I make the wrong choice then I have no way to make sure I get my children treated and recovered/restored. It’s a consistent rock and a hard place nightmare. We moved out of the replacement RV we purchased to move out of the contaminated home because I believe the professionals that should have been ensuring proper protocols were followed, did not do their part and the new temporary home is now contaminated. When I walk into the RV, I begin experiencing sensitivity symptoms and adverse affects within 5-10 minutes. A terrible several chapters in my prescious family’s journey, for sure. Now that my two youngest have general blood tests pointing to organ injury and possible permanent damage, I simply must find the right medical resource to accept our exposure and be capable of devising a recovery treatment plan. That is a little deeper dive into what happened and how we have gotten to where we are today. Of course this is an incredibly abbreviated version, but I’m currently focusing on finding the right medical doctor to ensure my children don’t have to suffer with permanent damage to their bodies and get them back on the road to feeling better.