Does anyone have microscopic colitis?

Have you tried bismuth subsalicyate or colestipol.?

No, just budesonide.
Elaine

Hi @piemonte.

If you haven’t done so Mayo Clinic has a nice overview you can take a look at. The section on treatments addresses both diet and medications. https://www.mayoclinic.org/diseases-conditions/microscopic-colitis/diagnosis-treatment/drc-20351483

Which type of colitis do you have?

Budesonide works great for me, but when I taper off, the diarrhea starts again shortly after. Work with your doctor. They might try different dose management. For example now I am on 3 months-3 pills. 3 months- 2 pills, and 3 months 1 pill. If that doesn’t work better, I will have to stay on the lowest dose that works forever. If you Google this disease (mine is Collagenous colitis which is one type) you can see what is recommended for diet. Good luck. Hang in there. I know how frustrating and embarrassing this is.

Thank you! It is frustrating and embarrassing.

I’ve been on a 90 day course of budesonide. This month I’m down to 1 pill per day. As long as I eat a “clean” diet I have been fine.

Thankfully my GI PA is great and is willing to work with me.

I appreciate your reply.

1961deb
Do you ever have flu like symptoms, feeling feverish but no fever, and extreme fatigue?

I don’t know if this malaise is related to MC or side effects of budesonide.

I will discuss with my doctor. It would be interesting to know if others with MC have had similar symptoms.

I've had MC for 24 years and have been on and off Budesonide many times. I never had the symptoms you describe until I got C-diff in 2024 during a flare. Since then I've had intermittent fever, flu like symptoms, nausea and fatigue with each flare. Several times I thought I might have C-diff again, but tests were negative. My doc can't figure that one out. The symptoms mimic C-Diff.

I haven’t noticed, but I also have MS and Fibromyalgia so sometimes I don’t know what’s what.