Anyone else get bloating and abdominal pain from NETS or Lanreotide?

Posted by stevestenberg31 @stevestenberg31, Apr 20, 2023

I have primary NET in the small intestine, spread to stomach wall and liver. I just got my 3rd monthly Somatuline (Lanreotide) injection 4/12. About a week to 10days after i get extreme gut pains and bloating. I have had to vomit on 3 occasions now. Is from the NETs or the treatment? Does anyone else experience this? Do certain foods cause this reaction?

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pavlina60 | @pavlina60 | Apr 20, 2023

Dear stevestenberg31,
I have NET in pancreas( debulked) with liver metastases. Had 2 Lan injections with similar symptoms/side effects, but only on the day of inj and maybe 1-2 days after. Sharp pain( cramps), nausea, vomiting. Then all is well until next time.
But my ChG A went from 182 after surgery to 56 at the second injection!
take zofran (ondansetron) right before inj. Crackers and swiss cheese saved me.
Keep fighting! And may God help us all!