Do I need a pancreas specialist?
Four years ago I had major back surgery to prevent paralysis. Three years ago my back pain became unbearable regardless of what the doctors suggested. I was extremely fatigue, then the digestive issues began. For three years I’ve been told I had ibs, but nothing helped. This summer (2023) I was in the ED twice in a month. The doctor there told me to make an appt with a GI for a complete work up. July 4th my Elastase 1 came back at 57. Apparently my back pain was the result of pancreatitis. The FNP who ran all the tests prescribed Creon 36000, four times a day. That was the extent of my diagnosis, no follow up after receiving lab results, no counseling on nutrition, what to eat, what to avoid. The Creon info sheet has told me more than the FNP. The sheet mentions regular blood tests? Regardless of the lack of follow up I have found Creon has eliminated my bowel distress, my GERD has subside, my energy level has increased, my back pain has been reduced by 95%, but I still feel as if I’m floundering. Should I find a pancreas specialist? I’m fortunate my spouse says wherever we need to go, whatever we need to do. Should I see a doctor at Mayo? Mayo ran my elastase 1 lab work.