Diverticulitis

Hello @happyat76

I am glad that Ethan invited me to your discussion. Yes, I'm very familiar with diverticulitis and have had lots of experience with bouts of it. Diet and avoiding constipation are the most important factors. Also, exercise and drinking lots of liquids which helps minimize the constipation problem which leads to the diverticulitis. There are good products such as stool softeners that can be used as well. I would also like to invite @thull as she has also had diverticulitis.

I noticed that you have a NET in your pancreas. I have had three surgeries for NETs and I'd like to invite you to the Connect discussion on NETs. Here is the link, https://connect.mayoclinic.org/group/neuroendocrine-tumors-nets/?tab=discussions. If you are open to sharing more, how was your NET diagnosed? Do you have diabetes as a result of the NET in your pancreas?

I hope that you are able to share more. I look forward to hearing from you again. Those of us with NETs are a rare breed and we thrive on information from others who have it.

Hi @happyat76 you may have noticed I moved your post to this existing discussion on diverticulitis so that you can read what others have experienced with diverticulitis and diverticuloses.

That pain sounds absolutely awful and it must be frustrating to be unsure of the cause.

I wanted to introduce you to fellow Connect members @hopeful33250 @suez @retrebotic @akogut @allegro @bakb @lshell @gailfaith @dbwhitted @ann64 and @tallygirl have experience with diverticulitis and may be able to offer support from their experiences.

Back to you @happyat76 How long have you had this pain? Did you do anything different with your diet, besides having nuts, before the pain started?

I am wondering if anyone else has pain in their breastbone, stomach and sometimes the chest above breastbone? I had my gallbladder removed many years ago. I was diagnosed a couple of years ago with Diverticuloses. I was told at that time, to always chew nuts of any kind really well so as not to get partially disgusted nuts in the pockets of my intestines. I have been eating nuts like almonds lately and wondered if they would give me this pain. Would Diverticuloses cause pain like I am experiencing? I had a cat scan not too long ago and was told that my stomach looks good, but that my esophagus is a little inflamed. I am taking Lazaprasole for this, but it isn’t helping me. I am also taking CBD oil three times daily @ 0.5 mg. each dose. I think it is helping as this pain goes away for a few days, then comes back with a vengeance. No Doctor has told me yet what this pain is caused from. I do have an NET in my pancreas and saw a cancer specialist about it and she said it hasn’t grown for many years so don’t worry about it. She also told me my pain is not caused by this. I feel right now like someone is stabbing me in the chest and the pain goes right into my back. It is almost unbearable at times, because it also hurts to breathe. If anyone has any ideas or advice for me, I would love to hear from you. Thanks for reading the lengthy note.

@kitten92 I have dealt with diverticulitis for a while. the past year I have had 4 surgeries due to it. I am almost 4 weeks out from the last surgery. Ended up having to have Deloyers procedure, in which they took part of my rectum, the rest of my descending colon, part of the transverse and then turned the transverse back down along the ascending and attached to my rectum. It is now my new descending. When the diverticulitis is flaring, clear liquids are a must. I would also say being on antibiotics. They had me on Zocyn in Dec, and it worked. Not any side effects for me. Don't wait on calling the doctor if it doesn't clear up or you could end up with emergency surgery, which is not fun. Mine resulted in a temporary colostomy bag for 6 months while they waited for my colon to completely heal.

I was diagnosed back in October of 2017 and I'm now dealing with the same symptoms and discomfort less than 4 months later. I changed my diet right away back when I was first diagnosed but I must have missed something. I am on liquids ONLY right now hoping I don't have to do antibiotics again. The side effects of the two that were prescribed in October were awful-they worked, but my balance and vision were affected. I felt very sluggish and "off." I lost weight back in October and have not been able to maintain a decent weight since. I just need some input as to what I may be doing wrong to warrant the symptoms I'm experiencing. I thought I had this disease under control. Boy, was I WRONG.

I had surgery in 2005 for the removal of 3/4 of my large intestines because I had 29 polyps better to be safe than sorry. All results came back clear. Then in 2012 I had a blockage in the small intestines and had 12 inches removed. With all the surgery I have had my small and large bowls are not good and some days bed is the only place I can get any relief along with pain tablets. I am hoping someone can help me on how the handle day to day living. Thanks

Thank you for the update, @frane1939

I am so sorry that you are still in so much pain. I do hope that you begin to get some relief soon.

Keep updating and let me know how you are doing. Wishing you well and I'm looking forward to hearing from you again soon.

Teresa

Today, I am still suffering with the pain in the groin and lower left side. The CT scan is not clear, no abscess, actually nothing that they can pinpoint. Started on anti inflammatory med to be followed one hour before taking a pain pill. My first dosage seemed to help me walk a bit better. This morning, it is just as it was yesterday. I took the pills as directed this morning and still have the same pain. If not better by monday, the doctor is referring me to a surgeon. Will keep you posted.

@monicajones

Wishing you well with your new eating plan.

Please post again. I look forward to hearing from you.

Teresa

Thank you for this advice Teresa. I really appreciate it and will try the Paleo diet and water with lemon.