Statin discontinued due to neuropathy. What are some alternatives?

Posted by Nazir Khan @nukhan, Jan 19, 2020

I have been using Lipitor since 2007 for lowering my cholesterol which is on the list of those medicines that are suspected to cause neuropathy. I am thinking of discontinuing this menace but before doing so want to check with those members who have discontinued using statin and what is their experience. What alternative methods have they since adopted for lowering their cholesterol .. diet, alternative medication, exercise or anything else ?

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Profile picture for jedge54 @jedge54

I stopped taking statins long before I developed neuropathy because the statins were creating problems with my liver. My cardiologist started me on a new medicine called Praluent. It is a self injectable drug. It does not go through your liver and it improved all my cholesterol numbers immediately and my liver enzymes were back to normal. I highly recommend this.

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I find that so interesting.

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I stopped taking statins long before I developed neuropathy because the statins were creating problems with my liver. My cardiologist started me on a new medicine called Praluent. It is a self injectable drug. It does not go through your liver and it improved all my cholesterol numbers immediately and my liver enzymes were back to normal. I highly recommend this.

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I went off statin for three months and it made no change for me or my neuropathy. I have eliminated so many things over these past 20+ years. I do floor/stretching exercises, rub /massage my own feet, ibuprofen, and currently Vicks vapor rub at night along with an ambient to help me slip

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I just finished reading the book, "A Statin Free Life" by Dr. Aseem Malhotra, that was mentioned by someone in this group. I'm still confused whether statins affect small fiber peripheral neuropathy, but I'm now convinced to stay away from statins if at all possible, According to Dr Malhotra, low cholesterol is not related to heart disease, and will not lengthen your life. I'm going to try a healthier diet, starting with banning ultra-processed foods.

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Profile picture for SteveSH @steveny9

I developed small fiber neuropathy from taking simvastin over a period of 7 or more years. If I had know that my feet, toes, legs and finger tips would have developed numbness due to the statin I would have rethought the doctors recommendation. Statins seems to be a quick fix but I believe now I should have reduce my intake from 20 mg to 10 mg and then perhaps every other day. At the moment, I am taking 2000 mg of fish oil, 100 mg of Magnesium and CO Q-10 100 mg. I am testing my LDL monthly as I reduce statins to 3 to 4 times a week at 10 mg. In addition, I am talking to an alternative doctor for healing. Is it better to develop neuropathy or reduce the risk of a stroke/hear attack? My doctors decisions were to protect me from heart disease 20 plus years ago. At 65, I am rethinking if I want to let this neuropathy progress faster by taking statins and reducing the risk of heart disease. It is a tricky corner.

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Hi, SteveSH -- I recently joined this group as I am in a similar corner and wondering how you resolved your issue of 2022?

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Profile picture for bgadams @bgadams

Just curious..... did your neuropathy go away after you stopped taking the statin?

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I haven’t stopped taking it. I continue with symptoms….paresthesia in feet and hands go to sleep while I’m sleeping IF I lay a certain way. I’ve slept on the couch for a week, so it prevents me from laying on my arms…..and no waking up with numb hand! (Saw hand specialist last week.). Anyway, I had B12 deficiency and long covid….so, not sure what is the cause, but statin could also be causing it. I really must take a statin due to Type 1 diabetes. All my doctors say so. It’s a biggie for type 1. And, if you stop taking one it immediately increases your risk of cardiac event. My doctor told me this and I’ve read it too.

Not sure what I’m going to do.

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Profile picture for bigjohnscho @bigjohnscho

What is the safest alternative to statins. I have heart problems and was on Simvastatin for many years but I have stopped them due to peripheral neuropathy of the feet and ankles.My GP wants me to start again but I will only use the safest alternative with no side effects. Looking for advice

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I think you are making the right decision for yourself. If you already told your dr., about your problems and concerns about a drug, and the dr., is still insistent on you taking it.........just maybe, you might want to start a search for another dr. You need one who will listen to you. If the next dr., also doesn't listen, then keep searching. You will eventually find one who will work with you, not against you. Check out the internet and ask something like, how many yearly mistakes do Medical dr.s make.........and when you see it could be over many thousands, you will feel more confident in your decision to find a safer alternative. Just a thought..........

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Profile picture for celia16 @celia16

That's very interesting. I asked mine about it an he said he didn't think it was the cause of my symptoms. I do take a very small dose though...only 5 mg of Crestor.

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Just curious..... did your neuropathy go away after you stopped taking the statin?

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Profile picture for bigjohnscho @bigjohnscho

My GP made the decision without any evidence

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That's very interesting. I asked mine about it an he said he didn't think it was the cause of my symptoms. I do take a very small dose though...only 5 mg of Crestor.

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My GP made the decision without any evidence

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