Statin discontinued due to neuropathy. What are some alternatives?

Posted by Nazir Khan @nukhan, Jan 19, 2020

I have been using Lipitor since 2007 for lowering my cholesterol which is on the list of those medicines that are suspected to cause neuropathy. I am thinking of discontinuing this menace but before doing so want to check with those members who have discontinued using statin and what is their experience. What alternative methods have they since adopted for lowering their cholesterol .. diet, alternative medication, exercise or anything else ?

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@jacquespierre

I have been taking cholesterol medication for the last 20 odd years and a year ago I was diagnosed with PN... burning, numb, painful lower legs and feet... no doctor or neurologist seems able to help me so I have decided to make peace with the fact that my condition cannot be cured. Can anyone tell me if there is any natural cholesterol medication I can use in stead of the chemical one that contains the harmful statins? Will it improve my condition if I stopped taking the chemical cholesterol medicine?

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@jeffrapp - Nicely said. I was considered a renegade in my younger years when I taught childbirth classes without being a medical practitioner. Silly me - I figured that having 2 - 4 children of my own and doing a lot of reading equipped me to do a better job than my local health unit - where our class full of first time mothers was told that we would experience 'some discomfort' while in labour. Not only did I learn that labour hurts like Hell - I also learned that being a medical practitioner did NOT equal 'all knowing'. Based on my own birthing experience, a critical component of my teaching to new mothers was: Do your own research and be an active partner in your health care.

I don't know if apple cider will lower cholesterol, but I agree that it is a choice and we should talk to our doctors if that's the route we want to go. Interestingly enough - I have been summoned to my new doctor's office because my cholesterol has been creeping up steadily over time. The only time it dropped was when I was on the Keto diet! I achieve ketosis very quickly/easily and I guess I could try that route again, but I am not interested in going back on that diet because it's so restrictive - so - I assume my doctor will want to talk to me about meds.... *sigh* Time to do some research on the subject!!!

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@jacquespierre

I have been taking cholesterol medication for the last 20 odd years and a year ago I was diagnosed with PN... burning, numb, painful lower legs and feet... no doctor or neurologist seems able to help me so I have decided to make peace with the fact that my condition cannot be cured. Can anyone tell me if there is any natural cholesterol medication I can use in stead of the chemical one that contains the harmful statins? Will it improve my condition if I stopped taking the chemical cholesterol medicine?

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I have had severe case of PN June 9th that lasted for 5 months caused by taking Lipitor for more than 30 days. No doctors was able to help me so I resorted to self help. Based on what I've read through research, I took magnesium, Alpha Lipoic Acid, Zinc. My new primary doctor prescribed Ezetimibe and Vascepa for my cholesterol and I did treadmill at least 4 times a week 30-50 min. My LDL is now down from 146 to 111 and to this day 34 days now, I have not experience PN. I hope this help.

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@lorirenee1

You are right. You can only try to make it better. Nothing else. Damn, horrid illness. Lori Renee

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Amen this burning pain on my left side never stops! Numbness ,feels like elec.shock sometimes, and my headaches never go away! Good bless you I know how you feel I'll pray for all of us

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@dutchman09

I stopped Crestor 11 months ago and am using an Electronic Nerve Stimulator twice a day and have resolved myself to the fact (after much research and trials) that there is no cure for Neuropathy....period!

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You are right. You can only try to make it better. Nothing else. Damn, horrid illness. Lori Renee

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@wayno1234

my doctor wants me on crestor with a cholesterol of 215. I am recovering from base of tongue cancer and am still anemic and not normal as yet. I see no reason to drag my cho0lestrol down to below 150 just to make him happy with his prognosis. He also advised it would make my type 2 diabetes worse or give it to me if I didnt have it already.
I have a friend taking a statin and his blood glucose levels get to 200 and then he takes insulin to bring it down, and he was a mild type 2 with morning glucose about 120, which was then controlled by metformin. So I'd be cautious about taking this junk

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Don't take the statin! Not worth the risk. Not yet. Some countries have much higher cholesterol levels before the docs use the statins. Just not worth it to your health at this time. Lori Renee

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@lisalucier

How is the electronic nerve stimulator working for you, @dutchman09?

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I don't readily see an improvement but if I miss several days in a row my symptoms get worse.

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@dutchman09

I stopped Crestor 11 months ago and am using an Electronic Nerve Stimulator twice a day and have resolved myself to the fact (after much research and trials) that there is no cure for Neuropathy....period!

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How is the electronic nerve stimulator working for you, @dutchman09?

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@jacquespierre

I have been taking cholesterol medication for the last 20 odd years and a year ago I was diagnosed with PN... burning, numb, painful lower legs and feet... no doctor or neurologist seems able to help me so I have decided to make peace with the fact that my condition cannot be cured. Can anyone tell me if there is any natural cholesterol medication I can use in stead of the chemical one that contains the harmful statins? Will it improve my condition if I stopped taking the chemical cholesterol medicine?

Jump to this post

I stopped Crestor 11 months ago and am using an Electronic Nerve Stimulator twice a day and have resolved myself to the fact (after much research and trials) that there is no cure for Neuropathy....period!

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@jacquespierre

I have been taking cholesterol medication for the last 20 odd years and a year ago I was diagnosed with PN... burning, numb, painful lower legs and feet... no doctor or neurologist seems able to help me so I have decided to make peace with the fact that my condition cannot be cured. Can anyone tell me if there is any natural cholesterol medication I can use in stead of the chemical one that contains the harmful statins? Will it improve my condition if I stopped taking the chemical cholesterol medicine?

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I have heard that stopping statins can take the neuropathy away very fast. As far as natural ways to lower cholesterol, I have read to eat a red apple, carrots, and beets, several times a week, and they will lower your cholesterol. There is a doctor speaking of this on you tube. Perhaps try this, and see if it helps! Lori Renee

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@jeffrapp

I am both a sufferer and a doctor.
I have recently joined this forum, looking for an answer to this maddening disease. My diagnosis is idiopathic small fiber peripheral neuropathy.
With all due respect, I find posts such as the one by dutchman09 above to be unhelpful at best.
As far as I can tell, there is no definitive evidence that statins cause PN, although there is some evidence. I myself have taken statins for high lipids, but have stopped because of the possibility that they have contributed. When I discussed this with my MD, she was not dismissive, but pointed out that instead of suffering with PN, I may instead suffer from a stroke or heart attack. Chose your poison. It's complicated.
Almost all MD's I know do their best to provide validated information to their patients. They generally do not push medications, unless there is good scientific evidence of their effectiveness (as is true of statins). BTW, there is no good scientific evidence that apple cider vinegar works for PN. However, if it helps you, and doesn't hurt (which you may not realize for several years) go for it!
The doctor's do not "cop out" when there is no definitive cure. They simply do not know. They stopped being God a long time ago. My experience is that most MD's are quite open to trying new things (alternative medicine), when they do not have the cure.
Getting angry will only make you feel worse.

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Hello, Dr. Rapp, I am also a medical doctor, and during a fellowship in 1986, we performed EMG and nerve testing on test subjects taking either Mevacor (an early statin) or placebo, for eventual approval by the FDA. The eventual study demonstrated that 5% of patients on Mevacor (no longer in use, I believe) developed peripheral neuropathy, with none in the control group. I, too, am on Crestor and over the past few months I have started to develop symptoms of PN. Numbness over the toes and ball of the foot. Crestor was the first statin I have taken, and I do not have any other risk factors, to my knowledge. So I am going to ask my internist whether I might D/C this med, although it really did reduce my LDL cholesterol.

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