Statin discontinued due to neuropathy. What are some alternatives?
I have been using Lipitor since 2007 for lowering my cholesterol which is on the list of those medicines that are suspected to cause neuropathy. I am thinking of discontinuing this menace but before doing so want to check with those members who have discontinued using statin and what is their experience. What alternative methods have they since adopted for lowering their cholesterol .. diet, alternative medication, exercise or anything else ?
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Hello, can you give more information on the sources for the screen shot you posted?
thank you, roger
Thank you 🙏helpfull info.
Very insightful article. Thank you for the post!
Thank you so much for sharing and your helpful insights. I will keep this in mind as I’m talking with my primary care doctor. Thanks again!
There are other PCSK9 inhibitors besides Repatha. I'm on Incliseran (brand name: Leqvio) which is a semi annual injection. It appears that Merck is coming out with PCSK9 inhibitor pill. I still take a very small dose of rosuvastatin to get my LDL to where my PCP wants it.
Just for the record, I have been taking Livalo for the last 10 years, and have developed a painful PN. Although before that, I took Zocor, Livolo, and Crestor for a total of 30 years. I think my Neuropathy is about 15 years old starting with just mild symptoms.
Interesting about the minuscule amount of statin in RYR. I had read studies that showed how little of a stain is needed to reduce the cholesterol levels. One extreme example was a group of women in Japan that simply licked the tablet once a day! I'm sure that was an extreme. But, I did talk my doctor into letting me try less and less of a dosage. And I'll keep reducing it if the numbers stay at around 200. I'm a firm believer that we don't need our cholesterol any lower than that!
I've attach a screen shot from some of my previous "research" that may help. There are some statins that are less likely to exacerbate the neuropathy. The best is expensive, so I choose rosuvastatin.
Your doctor will possibly resist because he or she doesn't believe the relationship between statins and neuropathy. Or may just feel that it's a choice between two issues and one is more deadly than the other. I was able to convince mine and she was very "cooperative" with my efforts. I read that very low doses of a statin are as effective if not more so than the normally prescribed dose. I reduced my dosage from 20mg to 10, then 5 and eventually down to 5mg every other day. This low dosage was able to keep my total cholesterol level right at 200, which was fine by me and acceptable to my doctor.
Another thing to seriously consider is supplementing with CoQ10 (or it's better form, Ubiquinol.) The should help to protect the nerves as well.
Just my thoughts, but seems to work well for me.
I have been taking atorvastatin for a few years and my peripheral neuropathy (numbness in feet) has progressively gotten worse. Asking my primary care doctor what I should do.
I’ve tried all kinds of statins with severe myalgia and eventually neuropathy that was considered due to another drug. Went off all statins and tried supplements for the neuropathy which was only mildly effective. Trying to get docs to stop bullying for statins was the hardest thing. I finally said I would rather die younger than live with horrible pain—I’m 84 now