Statin discontinued due to neuropathy. What are some alternatives?
I have been using Lipitor since 2007 for lowering my cholesterol which is on the list of those medicines that are suspected to cause neuropathy. I am thinking of discontinuing this menace but before doing so want to check with those members who have discontinued using statin and what is their experience. What alternative methods have they since adopted for lowering their cholesterol .. diet, alternative medication, exercise or anything else ?
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Please, try a foot soak. Fill with water, a couple cups of vinegar, a couple cups of Epsom salt. After soaking pour some baking soda on. It's not a cure but a relief. Let me know if it does anything for you. I do it before bedtime. If the burning persists i roll a frozen water bottle under each foot. I feel your pain. Retired and 68 and have had idiopathic neuropathy for about two years now. No known reason. I've tried all of the buy one bottle for $79 or 6 for $39 ea. Don't work for me. I did find ground cayenne pepper and baking soda a half teaspoon each in a shot of water helps. Again, not a cure.
I was a perfectly healthy person when I retired. Three months after retirement one of the cervical discs in my neck moved to rest on a nerve that caused pain you cannot live with, thus the need for surgery. the neuropathy in my shins and feet started five months after my ACDF surgery to fuse three discs in my neck. It takes up to 6 months for those discs to fuse, oddly coincidental. My surgeon shrugs and puts me on gabapentin. I have tried many things for this neuropathy. Some creams and sprays give you relief for a short while. I sleep with flexible ice packs on top of my covers every night because the COLD from them deadens the burn some. I also use sleep aid occasionally when I need a good 6-hr sleep.
I've had all the neurology and circulation tests there are available. They were all negative, nothing shows up 'wrong'. But my 'ON-FIRE' legs and feet are very real every night when I lay down to sleep. I'm usually very active all day and wear all the correct shoes. The neurologist increased my gabapentin even though all my tests were negative. I took myself off of gabapentin shortly after. All it does is mask the burn a little and make me feel so drugged that it changes my lifestyle. It also adds so much cramping in my calves, feet, and toes all night long.
The timing of this neuropathy is odd, and somehow related to my surgery five months prior.
So.... next I have an appointment to start going to a clinic called "New Promise Neuropathy" for treatments that have shown results for some people. I'm only 70 years old, not diabetic, about 20 lbs overweight since my surgery, otherwise healthy my whole life. After several weeks of treatments, my next thing to try might be a low-does anxiety or antidepressant drug to see if stress is a factor or trigger. I can't imagine living with this for the rest of my life, so I am not willing to give up researching a way to make it better. I still feel so young.
Good luck to all of you with neuropathy, it's not fun! But also, by comparison to some others' issues, I don't like to complain much!
thanks for your input!
Praluent can also raise liver enzymes. That is a documented side effect. Luckily it worked out great for you.
Please. Malhotra is a clown who specializes in misinformation. Go read his Wikipedia page. He's a dangerous quack - period.
I find that so interesting.
I stopped taking statins long before I developed neuropathy because the statins were creating problems with my liver. My cardiologist started me on a new medicine called Praluent. It is a self injectable drug. It does not go through your liver and it improved all my cholesterol numbers immediately and my liver enzymes were back to normal. I highly recommend this.
I went off statin for three months and it made no change for me or my neuropathy. I have eliminated so many things over these past 20+ years. I do floor/stretching exercises, rub /massage my own feet, ibuprofen, and currently Vicks vapor rub at night along with an ambient to help me slip
I just finished reading the book, "A Statin Free Life" by Dr. Aseem Malhotra, that was mentioned by someone in this group. I'm still confused whether statins affect small fiber peripheral neuropathy, but I'm now convinced to stay away from statins if at all possible, According to Dr Malhotra, low cholesterol is not related to heart disease, and will not lengthen your life. I'm going to try a healthier diet, starting with banning ultra-processed foods.
Hi, SteveSH -- I recently joined this group as I am in a similar corner and wondering how you resolved your issue of 2022?