Statin discontinued due to neuropathy. What are some alternatives?

Posted by Nazir Khan @nukhan, Jan 19, 2020

I have been using Lipitor since 2007 for lowering my cholesterol which is on the list of those medicines that are suspected to cause neuropathy. I am thinking of discontinuing this menace but before doing so want to check with those members who have discontinued using statin and what is their experience. What alternative methods have they since adopted for lowering their cholesterol .. diet, alternative medication, exercise or anything else ?

Interested in more discussions like this? Go to the Neuropathy Support Group.

Profile picture for cgs @cgs

Do you know about ezetimibe
(ZETIA)???
MY DR. JUST GAVE ME A PRESCRIPTION TO GET IT FROM AMAZON???

Jump to this post

I have been taking Zetia daily for several years now. I was also taking (Pitavastatin) Livolo along with it. I have suffered leg cramps, leg twitching and pulsing while sleeping and never getting enough sleep even though I was taking 300 mgs. of Gabapentin and 400 mgs. of Magnesium Citrate nightly. I have known people who had muscle problems, sometimes life changing problems, from taking statins so I asked my doctor if I could cut back on mine (my cholesterol levels were never really high). He agreed for me to cut the Livolo down to 2 days/week. It has alleviated enough of my nightly problems so that most nights I can get 7 to 8 hours of sleep with only minor interruptions.
I wonder if eliminating statins altogether would alleviate my leg problems, but my doctor is hesitant to agree.

REPLY
Profile picture for cantab @cantab

According to the info, Nexlizet is taken with a statin. It has a lot of negative side effects.
https://www.peoplespharmacy.com/articles/what-do-you-know-about-the-new-cholesterol-drug

Jump to this post

Do you know about ezetimibe
(ZETIA)???
MY DR. JUST GAVE ME A PRESCRIPTION TO GET IT FROM AMAZON???

REPLY

I was diagnosed with cholesterol count of 380 in late eighties. Took every statin several different times with same result of muscle pain. Then my heart doctor was involved with a national test of Repatha, a new cholesterol medicine that was not in the statin family. Took a good fight with Medicare and TriCare, but he eventually got it approved for me. Three months later, his nurse sent me a note with a little heart on it and my new cholesterol count of 120 - total. I was being treated for Demyelinating Peripheral Neuropathy during this time.

REPLY
Profile picture for 09med02 @09med02

I read that cholesterol meds cause nerve damage causing neuropathy. This deems to be what caused my symptoms. Has anyone heard or read more on this. My doctor prescribed Gabapentin 300mg 3 times daily.

Jump to this post

09med02 - I also heard and read the same. In my opinion, it is something that can cause PN but I feel only a test can prove it and that is a problem in itself. As we know, other things can also cause PN, other meds such as antibiotics and exposure to toxins, some supplements and who knows what else that has not yet been discovered. For me, the age factor has to be a clue. What percentage of people get PN in their 30's or 40's and how many over 50 or 60 years of age develop PN without any known cause. Meds? For me, I think you have a solid point and I'll agree with you. I doubt the drug companies will ever come forward.

REPLY

A Gerd diet has worked wonders for me post triple bypass. KEPT the acid away, lowered cholesterol, exercise pain free.

REPLY

Diet can be huge,my Dr. And stomach,GI tract tells me that deep fried foods,Spicy and other unhealthy fats are bad for me. Adding vegatables,spinach,avacadoes ect help me. Diabetic and mediteranian diet help
Excercise is big fast way to bring down sugar spikes I have learned,even cleaning the bathroom or kitchen when weather is severe outside.

REPLY

I read that cholesterol meds cause nerve damage causing neuropathy. This deems to be what caused my symptoms. Has anyone heard or read more on this. My doctor prescribed Gabapentin 300mg 3 times daily.

REPLY
Profile picture for alces @alces

Very disturbing to see this discussion. I have taken Simvastatim for many years and have been suffering from peripheral neuropathy, and I am a pianist, so this is a serious problem to my playing, since I can't feel the pedal! I don't expect to be cured, but I'm pissed that no doctor ever mentioned it.

Jump to this post

@alces. I am so sorry this happened to you. I would be angry as well.

REPLY

Very disturbing to see this discussion. I have taken Simvastatim for many years and have been suffering from peripheral neuropathy, and I am a pianist, so this is a serious problem to my playing, since I can't feel the pedal! I don't expect to be cured, but I'm pissed that no doctor ever mentioned it.

REPLY
Profile picture for cantab @cantab

According to the info, Nexlizet is taken with a statin. It has a lot of negative side effects.
https://www.peoplespharmacy.com/articles/what-do-you-know-about-the-new-cholesterol-drug

Jump to this post

Thanks I just take it alone and it has lowered cholestoral Was very negative about trying but did and so far ok I am going to show article to my dr Thsnks

REPLY
Please sign in or register to post a reply.