Statin discontinued due to neuropathy. What are some alternatives?

Posted by Nazir Khan @nukhan, Jan 19, 2020

I have been using Lipitor since 2007 for lowering my cholesterol which is on the list of those medicines that are suspected to cause neuropathy. I am thinking of discontinuing this menace but before doing so want to check with those members who have discontinued using statin and what is their experience. What alternative methods have they since adopted for lowering their cholesterol .. diet, alternative medication, exercise or anything else ?

Interested in more discussions like this? Go to the Neuropathy Support Group.

I had several complications with statins before my PN diagnosis. My cardiologist put my on an injectable drug called Praluent. It works much better than statins and no side effects that I am aware of. All of my lipid panel numbers are very good

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Hi,
After 30+ years in the 8 to 10 range for cholesterol and having reacted to all meds I was feed I stopped worrying about it and no longer medicate it. A cholesterol specialist checked me over and confirms my eating habits were good 30 years ago, so I can only assume the man made rubbish is just that, rubbish. Regardless of my physical state the cholesterol level never differed for me, from extremely fit to couch patatoe always around the 9's.
I suffered kidney damage through accident 12 years ago and went onto a "kidney friendly" diet. Suddenly my cholesterol levels started dropping to the mid 6's. Now my Dr's complain about my high choleterol level until they are told to read my history! Essentially I'm no salt, little red meat and absolutely no man made or adulterated foods including no sodas, especially the sugar free. I prefer natural, fresh and home made food where I know it's parentage.
There are groups of people around the world living successfully with either high or low cholesterol levels.
Cheers

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There are alternatives; discuss with physician and/ or pharmacist. I made dietary changes 2 + yrs ago but genetics has caught up with me. So statins it is. I don't have neuropathy at this time

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Profile picture for celia16 @celia16

How long after you stopped med did symptoms leave?

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a day and a half

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Profile picture for mdamiani57 @mdamiani57

I have been on atorvastatin for 12 years and been dealing with numbness in my feet and sinus issues and a scratchy throat and weakness and tired all the time and breathing issues they said it was COPD Neurology doctors couldn't find anything wrong allergy doctors said i had a allergy to mixed weeds and trees. sleep half the day no energy so i finally decided to test myself and withdraw medications to find out if it was a side effect and low and behold stopped statin and everything stopped energy is back breathing is like a received a lung transplant I can walk better without having to sit down I don't know which is worse the side effects or risking a heart attack???? or the doctors never considering things were side effects!

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How long after you stopped med did symptoms leave?

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I have been on atorvastatin for 12 years and been dealing with numbness in my feet and sinus issues and a scratchy throat and weakness and tired all the time and breathing issues they said it was COPD Neurology doctors couldn't find anything wrong allergy doctors said i had a allergy to mixed weeds and trees. sleep half the day no energy so i finally decided to test myself and withdraw medications to find out if it was a side effect and low and behold stopped statin and everything stopped energy is back breathing is like a received a lung transplant I can walk better without having to sit down I don't know which is worse the side effects or risking a heart attack???? or the doctors never considering things were side effects!

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I am on Nexletol (bempedoic acid without the Zetia). It is working, and I have not experienced any side effects. If you go on it, do not go on Cipro or similar anti-biotics. It can cause tendon issues.

My only problem with Nexletol is the cost and my insurance company. Requires prior authorization…and the cost is still high after insurance pays for it.

All the best…🙏🙏🙏

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My cardiologist talked with me about the possibility of changing to Nexlizet if I have problems with the statins.
This may be something to discuss with your doctor if statins are causing a problem.
https://www.nexlizet.com/
Mike

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Diet is huge. I would eat more whole foods as much as possible. We have become a society of fast food and tv dinners. Hardly anybody cooks at home anymore.

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Profile picture for ruthofanne @ruthofanne

what statin are you on now i am trying to get off statins but my doctor is not coming up with any alternatives

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Many years ago my doctor prescribed a couple of different statins and everything caused severe muscle pain. I tried a very low fat diet and my cholesterol levels actually went up! Apparently, my liver produces more if I don't eat it. More research...took red yeast rice. It actually worked with no pain. But the longer you take it, the less effective it is. Stopped RYR for a while, and went back several times. All this time my old doc and now the new one is asking me to take statins. Not going to do it. Now, I'm reading that RYR "may" be the same as a statin. I developed neuropathy in my feet about 2.5 years ago. They are blaming it on my diabetes, although my A1c has never been out of control. About 6. But the last 2 tests have been 5.8.
Now, I'm going to stop RYR. More research. Found policosanol. There are actually NIH studies on this supplement. Google policosanol. I haven't started it yet, but from what I've found, looks promising for lowering cholesterol.
I've also heard, garlic, psyllium fiber and citrus bergamont might be helpful. I don't have any illusions any of this will get rid of the pain in my feet, but I am hoping it won't get worse.
Sorry this is so long and this is only my experience.

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