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Statin discontinued due to neuropathy. What are some alternatives?

Posted by Nazir Khan @nukhan, Jan 19, 2020

I have been using Lipitor since 2007 for lowering my cholesterol which is on the list of those medicines that are suspected to cause neuropathy. I am thinking of discontinuing this menace but before doing so want to check with those members who have discontinued using statin and what is their experience. What alternative methods have they since adopted for lowering their cholesterol .. diet, alternative medication, exercise or anything else ?

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cheyne | @cheyne | Aug 18, 2024

Hi,
Certified medical laboratory.
Cheers

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celia16 | @celia16 | Aug 18, 2024
In reply to @cheyne "Hi, Through medical blood testing. Consantly over 30 years to keep a check on it. Never..." + (show)
Profile picture for cheyne @cheyne

Hi,
Through medical blood testing. Consantly over 30 years to keep a check on it. Never managed a perfect 10 but topped out at 9.8. Very fit and active in those years, not so much anymore with ANS.
Cheers

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Who determines those numbers…is it a test from doctor or lab?

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cheyne | @cheyne | Aug 18, 2024
In reply to @celia16 "How do you get the numbers like 8 or 9?" + (show)
Profile picture for celia16 @celia16

How do you get the numbers like 8 or 9?

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Hi,
Through medical blood testing. Consantly over 30 years to keep a check on it. Never managed a perfect 10 but topped out at 9.8. Very fit and active in those years, not so much anymore with ANS.
Cheers

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1 reply
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dlmdinia | @dlmdinia | Aug 18, 2024
In reply to @timely "What she orders contains no statins…." + (show)
Profile picture for timely @timely

What she orders contains no statins….

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If it's Red Yeast Rice (which you can find on Amazon), it contains the very same active ingredient as statins.

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celia16 | @celia16 | Aug 18, 2024
In reply to @cheyne "Hi, After 30+ years in the 8 to 10 range for cholesterol and having reacted to..." + (show)
Profile picture for cheyne @cheyne

Hi,
After 30+ years in the 8 to 10 range for cholesterol and having reacted to all meds I was feed I stopped worrying about it and no longer medicate it. A cholesterol specialist checked me over and confirms my eating habits were good 30 years ago, so I can only assume the man made rubbish is just that, rubbish. Regardless of my physical state the cholesterol level never differed for me, from extremely fit to couch patatoe always around the 9's.
I suffered kidney damage through accident 12 years ago and went onto a "kidney friendly" diet. Suddenly my cholesterol levels started dropping to the mid 6's. Now my Dr's complain about my high choleterol level until they are told to read my history! Essentially I'm no salt, little red meat and absolutely no man made or adulterated foods including no sodas, especially the sugar free. I prefer natural, fresh and home made food where I know it's parentage.
There are groups of people around the world living successfully with either high or low cholesterol levels.
Cheers

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How do you get the numbers like 8 or 9?

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debbiehirsch | @debbiehirsch | Aug 18, 2024

Has anyone tried IV infusions for peripheral neuropathy?
If so, did they work.

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timely | @timely | Aug 17, 2024

What she orders contains no statins….

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timely | @timely | Aug 17, 2024

I have not checked this out yet.
Someone on another site mentioned CHOL-support
from Life Extension.

She herself is using something from Europe that she orders that had red yeast, etc.

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jedge54 | @jedge54 | Aug 16, 2024

Originally, I was getting probably it free due to our household income but later I had my plan D administrator move me to a drug plan that would pay for a considerable portion of the Praluent otherwise it would’ve been very very expensive. I don’t know how it compares Repatha.

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MamaMarch | @mamamarch | Aug 16, 2024
In reply to @jedge54 "I had several complications with statins before my PN diagnosis. My cardiologist put my on an..." + (show)
Profile picture for jedge54 @jedge54

I had several complications with statins before my PN diagnosis. My cardiologist put my on an injectable drug called Praluent. It works much better than statins and no side effects that I am aware of. All of my lipid panel numbers are very good

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Is your health insurance covering the cost of Praluent? If not, is the cost considerably less than Repatha?

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