Digestion Pain After Total Colectomy

Posted by future2025 @future2025, 2 days ago

I had a total colectomy with ileorectal anastomosis to treat colon cancer 7 weeks ago. Fortunately, no chemo or other treatments are needed besides the surgery. As of now, all the direct surgery issues (incisions, etc) are healed just fine. But, I'm struggling with resuming a normal-ish diet, which causes a lot of pain and discomfort. I'm still on 1000mg tylenol 3x a day and I've started a muscle relaxer at night, which has helped a lot. Also Gasx and Pantoprazole.

But even with all that, I still range from uncomfortable on good days/moments to significant intestinal pain. One day was so bad I couldn't do anything all day but lie on one side of my body without moving. So much as turning over or sitting up was intolerable. That's when my Dr added the muscle relaxer, which helped, and nothing has been that extreme since. And I've tried to go even slower about adding fiber back into my diet. But my abdomen is still quite sensitive- to the point that I still can't wear my normal pants for more than a few hours (even after losing 15lbs in this process). Pajama bottoms and loose gym pants that don't apply pressure on my abdomen only.

This last week, the Dr recommended I try slowly adding metamucil for fiber, starting with just 1/4tsp. I tried but only drank half of it before getting sharp, painful cramps. I haven't touched it since. I'm currently getting ~10-15g of fiber/day.

Is this normal? What have others' experiences been diet-wise after total colectomy?

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