Anyone have diffuse pancreatic parenchymal atrophy (DPA)?

Posted by gcorina2710 @gcorina2710, Dec 31, 2024

Anybody been diagnosed with this and has it progressed to pancreatic cancer. If so, how long did it take to turn to cancer. Or what if any meds were given

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I’m following this topic with great interest as I’ve been diagnosed with this as well. My gastro doctor said it can and does happen as we age (I’m 71). I’ve also got several small cysts on my pancreas that communicate with the duct with no ductal dialation. I’ve had 4 MRIs in the past year and there’s been no change in the cysts or pancreas. My gastro doctor says we will just test every 6 months and keep a watchful eye. I feel like I am a walking time bomb!

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I had an MRCP that showed diffuse parenchymal atrophy of pancreas about 1-1/2 years ago. However, due to other causes, I had an ultrasound guided endoscopy (EUS) and that degree of atrophy was not found. In your shoes, I would take that news with a grain of salt. Both the scan and EUS was done at a top teaching university. I've also had things found in EUS that hasn't shown on imaging so it's like a two way street.

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@eljay

I’m following this topic with great interest as I’ve been diagnosed with this as well. My gastro doctor said it can and does happen as we age (I’m 71). I’ve also got several small cysts on my pancreas that communicate with the duct with no ductal dialation. I’ve had 4 MRIs in the past year and there’s been no change in the cysts or pancreas. My gastro doctor says we will just test every 6 months and keep a watchful eye. I feel like I am a walking time bomb!

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I'm 52, and I feel the same way

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@eljay

I’m following this topic with great interest as I’ve been diagnosed with this as well. My gastro doctor said it can and does happen as we age (I’m 71). I’ve also got several small cysts on my pancreas that communicate with the duct with no ductal dialation. I’ve had 4 MRIs in the past year and there’s been no change in the cysts or pancreas. My gastro doctor says we will just test every 6 months and keep a watchful eye. I feel like I am a walking time bomb!

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Just in terms of these cysts, the rate of these turning into cancer are exceeding slim. In fact, experts are now saying that having an IPMN without worrisome features gives no greater risk of cancer than those without IPMN's. Here's a quote with the article following (associated with Mayo clinic)
“The real take-home message is that in the absence of worrisome features people [with an IPMN] should feel comfortable that their risk is no higher than the general population for developing pancreatic cancer,” Dr. Frankel said in an interview." I hope that news will make you feel less of a target. I have 3 IPMN's myself. https://www.mdedge.com/gihepnews/article/266799/gi-oncology/pancreatic-cystic-neoplasms-rarely-turn-cancerous-study-shows

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@sb4ca

I had an MRCP that showed diffuse parenchymal atrophy of pancreas about 1-1/2 years ago. However, due to other causes, I had an ultrasound guided endoscopy (EUS) and that degree of atrophy was not found. In your shoes, I would take that news with a grain of salt. Both the scan and EUS was done at a top teaching university. I've also had things found in EUS that hasn't shown on imaging so it's like a two way street.

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Thank you so much. I'll be asking for a 2nd opinion

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