Did anyone ever get a surprise primary lung cancer finding?

Posted by phylrose1taubezin @phylrose1taubezin, Jun 8, 2023

CT scan because of high 27 29 marker revealed a mass with associated right hilar/mediastinal adenopathy which may reflect a primary lung carcinoma rather than metastatic disease. Possible tissue diagnosis. Freaking out as to the possibility. Thought I was dealing with breast cancer. Can’t seem to get control of the situation.

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Zebra | @californiazebra | Jul 14, 2023

In reply to @phylrose1taubezin "Pet scan next week and then the biopsy. I'm trying to keep busy but my mind..." + (show)

Hi @phylrose1taubezin

Hope you are doing okay. What did the PET scan and biopsy indicate?

phylrose1taubezin | @phylrose1taubezin | Jun 20, 2023

In reply to @lls8000 "Hello @phylrose1taubezin, Has your biopsy been scheduled? How are you holding up?" + (show)

Pet scan next week and then the biopsy. I'm trying to keep busy but my mind keeps racing to how I'll react to bad news as well as how my family will take it. Thank you for reaching out to me. I wish you well.💕

Lisa, Volunteer Mentor | @lls8000 | Jun 19, 2023

In reply to @mycancer "I got a suprise one morning when my lung area was hurting thought it was a..." + (show)

Hi @mycancer, Lung cancer is such a shock for many of us. I wouldn't have been surprised to hear I had a different cancer, but lung cancer was a surprise. Some of that comes from an outdated narrative and the stigma associated with lung cancer. I now know, "Anyone with lungs can get lung cancer".
I'm glad you continue to do well. I'm assuming that you were taking Tagrisso? Did that stop working for you?

Lisa, Volunteer Mentor | @lls8000 | Jun 19, 2023

In reply to @phylrose1taubezin "No symptoms. They refer to it as a mass not a nodule. Under 3 cm in..." + (show)

Hello @phylrose1taubezin, Has your biopsy been scheduled? How are you holding up?

mycancer | @mycancer | Jun 18, 2023

I got a suprise one morning when my lung area was hurting thought it was a baseball injury. I had stage 4 lung cancer. EGFR .Had 2yrs. chemo pillis /2years chemo drip .I have no simytons'' Getting ready for spot radiation trial Iam taking 180 mg of melatonin a day to stop it from spreading IT WORKS. lots of luck

franciekid | @franciekid | Jun 11, 2023

Yes. CT scan of head/neck turned up a malignant nodule in my upper right lung. Primary site. No mets.

phylrose1taubezin | @phylrose1taubezin | Jun 10, 2023

No symptoms. They refer to it as a mass not a nodule. Under 3 cm in size. Think that biopsy is needed
Somehow expecting the worse. Thank you for reaching out to me. 💕💕

Lisa, Volunteer Mentor | @lls8000 | Jun 10, 2023

In reply to @phylrose1taubezin "Oncologist sending me to a thoracic surgeon, next week. The findings were on my first ct..." + (show)

@phylrose1taubezin, I’m glad that they are getting you into your next appointment next week already. Keep us posted on what the surgeon has to say. Depending on the nodule size they may want to watch it, with another scan in a few months. Also, depending on the exact location, a biopsy may be easy or difficult.
I’m assuming that you aren’t experiencing symptoms; no lingering cough, or pressure in your chest or throat?

phylrose1taubezin | @phylrose1taubezin | Jun 9, 2023

In reply to @lls8000 "@phylrose1taubezin, reading the radiologist reports can be alarming. They want to make sure the doctors take..." + (show)

Oncologist sending me to a thoracic surgeon, next week. The findings were on my first ct scan. Appreciate hearing from you and wish you well.💕💕

analeemayes | @analeemayes | Jun 9, 2023

Yes, I had elevated C27-29, and it turned out the primary was lung cancer. I had a CT scan looking for a cause for stomach issues I was experiencing (nausea, indigestion), and there were "incidental findings" of bone lesions and lung nodules. Bone scan confirmed widespread metastatic disease, which was quite a shock, and a bone biopsy determined lung cancer was the primary. Stage IV, but I'm EGFR positive and being treated with Tagrisso, which seems to be working with few side effects.